Thread: Recently diagnosed with IC
12-08-2004, 06:57 PM #1
Recently diagnosed with IC
I was diagnosed with IC in September. It was very difficult to ajust to the pains and the lack of being active. But over a couple of months I'm learning to cope with IC. I finding meditation, relaxation and yoga really help. And also eating the right foods. My husband has been very supportive, and my step-son Isaak keeps me smilling.
12-08-2004, 07:22 PM #2
I'm so sorry you have IC.. I learned to cope with IC myself I've been doing really well just by staying postive. I'm glad you joined the board don't be a stranger keep posting take care god bless u.Angela aka sleepyangel30
12-09-2004, 12:40 AM #3
Glad you found us.Kim
Diagnosed August 2001
Current IC meds: Elmiron (since 2001), Levaquin (one pill after intercourse to prevent UTIs), Effexor (for depression & anxiety)
Past IC meds: Amitriptyline (Elavil), Hydroxyzine (Vistaril), Detrol LA, Lexapro (for depression & anxiety, but also helped my IC) (They all helped, but I was able to discontinue them.)
My IC story: http://www.ic-network.com/patientstories/kim.html It's very outdated now. I've been virtually symptom free and able to eat & drink whatever I'd like for about 8 years now.
“We who lived in concentration camps can remember the men who walked through the huts comforting others, giving away their last piece of bread. They may have been few in number, but they offer sufficient proof that everything can be taken from a man but one thing: the last of the human freedoms -- to choose one's attitude in any given set of circumstances, to choose one's own way.” ~ Viktor Frankl
“You cannot control what happens to you, but you can control your attitude toward what happens to you, and in that, you will be mastering change rather than allowing it to master you.” ~ Brian Tracy
12-09-2004, 01:00 AM #4
[I] and to the ICN family.
It does seem like your on the right track I'm glad you found us here we are here to help support you when you need a friend who understands.
If you have time please look over the icn handbook at www.ic-network.com/handbook that way you can see many helpful treatments when the time comes you may need them.
please keep us posted on how you are we do care.
sending you hugs and prayers
RhondaMedicine taken daily or as needed:
1. Heaprin and Marcaine rescue installment 1 to 3x daily as needed.
2. MS.Cotin 100mg 3x daily
3. MSIR 30mg 1 or 2 every 4-6hrs as needed for breakthrew pain.
4. Fentanyl 100 mg Change every 48hrs.
5. Gentamicin 80mg install after each rescue treatment
5 Leviquin 500mg self start as needed.
6. Klonopin 1 or 2 daily as needed.
7. Prosed/DS as 1 every 6hrs as needed.
I have IC, but IC doesn't have me anymore!
12-09-2004, 01:33 AM #5
I'd just like to add another to the IC Network and second the suggestion about reading the Patient Handbook. There are also two books I recommend (both available from the ICN Shop):
"The Interstitial Cystitis Survival Guide" --- Written by urologist Robert Moldwin, it's an easy to understand reference book. I believe every IC patient should have a copy.
"A Taste Of The Good Life" --- Bev Laumann, an IC patient, wrote the book. It contains some excellent information about the IC diet, and also has some wonderful recipes that are IC safe.
Sending warm welcoming hugs,
DonnaHave you checked the ICN Shop?
http://www.icnsales.com for US & Canada
http://www.icnshop.com for all others
Patient Help: http://www.ic-network.com/patientlinks.html
Diet list: http://www.ic-network.com/diet/2009icdietlist.pdf
You'll find my story at: http://www.ic-network.com/patientstories/donna.html
I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
Anyone who says something is foolproof hasn't met a determined fool
12-09-2004, 04:19 AM #6
to the best support board in all of "Computer Land". I am so glad you have joined us.Sharon
Shopping??? Did someone mention shopping? I'll get my hat... ;-)
Where I can be found most days.
If not there, then here
Link to the ICN Patient Handbook:
Link to the IC Diet:
IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
12-09-2004, 07:05 AM #7
Hi! Just wanted to add my welcome too, this place has been a life-saver for me!! I know you will find many useful things here, plus the support is wonderful!!
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