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  1. #1
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    Unpleasant Doctor

    I can't believe this! My family doctor sent me to see ob/gyn because he wanted to make sure that I didn't have endometriosis on top of IC.(So did uro #2) I was soooooooo hoping to get an ob/gyn that was up-to-date on IC. This ob/gyn said, "Well, I would need to do laparoscopy (spelling?) and I could damage some other organs when I do it and then you would need major surgery. They are risks to this surgery." As if I would want to proceed with this given that the ob/gyn tells me that he can damage some of my other organs. As if fighting IC for two years isn't enough! I told him I have had 2 years of hell with my bladder and I didn't need anymore surgeries--especially given this ob/gyn's attitude toward the surgery! So, he put me on the birth control pill continously for three months to see if that doesn't help the burning pain I have in my left ovary on a fairly daily basis. Honestly, I have had rotten luck with dr.'s since I get IC! Needless to say, I left his office totally depressed. Do other doctor's say they can damage organs when they do a laparoscope?

  2. #2
    ICN Member
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    I am on C.B.C.P. and have been for 5 months..it's wonderful...no periods, no mess, no yuck and no flareups....
    After suffering with IC for 40 years, my bladder was removed in Dec 05...YAY!

  3. #3
    Registered User johnnarees's Avatar
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    I'm a surgical tech and I have never heard of such a thing. It is the least invasive way to go. Please find a new dr.

  4. #4
    ICN Member Dixiefireball's Avatar
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    South Carolina USA
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    i'm dealing with the same thing right now my doctor sent me to a gyn because he thinks i have the same thing but before he can do that i he has to do something else first they have found mass cells from my pap.
    My gyn is up to date on I.C but yet i'm still scared.
    I would find another gyn he shouldn't have told you something like that seem to me he doesn't know what he is doing
    Medicine taken daily or as needed:
    1. Heaprin and Marcaine rescue installment 1 to 3x daily as needed.
    2. MS.Cotin 100mg 3x daily
    3. MSIR 30mg 1 or 2 every 4-6hrs as needed for breakthrew pain.
    4. Fentanyl 100 mg Change every 48hrs.
    5. Gentamicin 80mg install after each rescue treatment
    5 Leviquin 500mg self start as needed.
    6. Klonopin 1 or 2 daily as needed.
    7. Prosed/DS as 1 every 6hrs as needed.





    I have IC, but IC doesn't have me anymore!

  5. #5
    Angel watching over us
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    While there is a risk to any surgery of injury to organs, I agree this is the least invasive way to go. Just my 2 cents though.

    Barb
    (Babs passed away in April 2009. We honor her memory and remember her fondly. - Jill O. ICN President & Founder)

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  6. #6
    Registered User Betsie's Avatar
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    Call me naive,but I have never heard of a laparoscopy being dangerous in any way. I assume there is a risk to "any" procedure, but laps have long been used as very worthy diagnostic procedures. I hate to slam a Dr., especially one I don't know...but I have to agree with Johnnarees...get another Dr. and don't be so sure that GYNs are that educated on IC...it really takes patience to find Drs with the proper knowedge.

    I highly recommend Dr. Moldwin's book...the Interstitial Cystitis Survial Guide (available on this site at the book shop). It is highly informative, easily read and discusses many topics for females especially.

    Good luck and I hope you receive better information.
    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
    "No one can make you feel inferior without your consent."
    Eleanor Roosevelt, This Is My Story, 1937

  7. #7
    Registered User shennan's Avatar
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    twiggy,

    try and find a new doctor here on this list.

    http://www.ic-network.com/md/careproviders.html

    hang in there.

    don't give up.


    shenna

    ps: doctors do try and rule out other conditions before declaring that the patient has ic, but a good uro will either evaluate you with questions and/or do a cysto under hydro/anaesthesia.
    imo...

  8. #8
    ICN Member A.J.'s Avatar
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    Denver, CO
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    Quote Originally Posted by Imustpee
    I am on C.B.C.P. and have been for 5 months..it's wonderful...no periods, no mess, no yuck and no flareups....
    what is cbcp? not only do I have periods that keep me in bed for days because of the cramps and heaviness, but now I notice the IC getting awful at that time every month. I would love to hear about a bc that works--so far I've tried 3 and none have helped in the slightest. thanks so much

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