Thread: Totally Depressed
11-29-2004, 02:59 AM #1
- Join Date
- Sep 2004
Well, after two years of CONSTANT antibiotics, urine samples are coming back negative, negative, negative. Five negative ones in a row but still as much pain as ever. Antibiotics didn't help me at all. Still have IC. Maybe amoxicillan (sp?) would have worked, I had every a/b but that one. Started Elavil--10mg/morning and night. It isn't helping that much either. Uro doesn't want me on Elmiron because it upsets my stomach too much. SO, now what ... uro only schedules visits one every two months. Hence, unless I call my uro and speak to his receptionist, it will be another two months of pain. Believe it or not, you can be dying and you will not get to see my uro until the next "scheduled" appointment. I am sooo sad that this disease cannot cured with antibiotics and fed up with pain and peeing all the time. I want my life back. It has been two years of straight hell.
11-29-2004, 03:16 AM #2
I feel like amoxicillan is the best for IC. Right after I started suffering with IC pain, I took a prescription of amox. for another reason. I had no IC pain during that time. It was only a good while later that I realized that was probably what it was. I haven't taken amoxicillan since but if I ever start to have pain like I did at first, I will request it from my doctor.Marilyn
I have not failed. I've just found 10,000 ways that won't work.
11-29-2004, 09:51 AM #3
If you call your urologist will he work you in sooner than two months from now? If you are miserable, please call so you can be working towards getting some relief.
Has your uro discussed what treatments you might try in the future?
I hope you can get in to see him soon and get working towards feeling better.Kim
Diagnosed August 2001
Current IC meds: Elmiron (since 2001), Levaquin (one pill after intercourse to prevent UTIs), Effexor (for depression & anxiety)
Past IC meds: Amitriptyline (Elavil), Hydroxyzine (Vistaril), Detrol LA, Lexapro (for depression & anxiety, but also helped my IC) (They all helped, but I was able to discontinue them.)
My IC story: http://www.ic-network.com/patientstories/kim.html It's very outdated now. I've been virtually symptom free and able to eat & drink whatever I'd like for about 8 years now.
“We who lived in concentration camps can remember the men who walked through the huts comforting others, giving away their last piece of bread. They may have been few in number, but they offer sufficient proof that everything can be taken from a man but one thing: the last of the human freedoms -- to choose one's attitude in any given set of circumstances, to choose one's own way.” ~ Viktor Frankl
“You cannot control what happens to you, but you can control your attitude toward what happens to you, and in that, you will be mastering change rather than allowing it to master you.” ~ Brian Tracy
11-29-2004, 05:09 PM #4
You were given some good advise...not to impressed with your uro.
http://www.remedyfind.com/hc-Interstitial-Cystitis.asp Here is a list of treatments and self helps maybe it can help you know what treatments you would like to try. I do think you should ask your uro his plan....plan a, b, c, d, e, and what things are good to combine. Good luck! I hope you feel better soon. I wish this would cure too!
Faith, Hope, and Love,
I believe God is using me. He uses me for God. Things I gain from all my suffering are meant to help others. I hope I can help you too. Email me or start a chat if you like my help or anything. I CARE!Illnesses: IC,IBS, IBD, GERD, PFD, Epilepsy, Endo, Allergies, RLM,Rapid heart beat, low blood pressure,Gastritis,Gall stones,Tendonitis,migraines, Shingles, Prolapsed pouch,ext. fatigue (current problem) I have seen periods of remission and I have seen them end and return. At this time remission is over and working on getting it back! My hope story http://www.ic-network.com/patientstories/katrina.html
IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
or find me on facebook http://www.facebook.com/kat671?ref=profile
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email@example.com please contact me...I am here to help!http://health.groups.yahoo.com/group/ICinWI/ if your from WI please contact me!
11-30-2004, 06:28 AM #5
I can't take elimron either but can use the heparin which is a stronger form of elimron but since it doesnt touch my stomach it dont upset it.
Heparin has been a blessing for me.
You may be able to use the heparin since elimron don't work.
You may want to talk to your doctor about it.
sending you hugs and prayers
RhondaMedicine taken daily or as needed:
1. Heaprin and Marcaine rescue installment 1 to 3x daily as needed.
2. MS.Cotin 100mg 3x daily
3. MSIR 30mg 1 or 2 every 4-6hrs as needed for breakthrew pain.
4. Fentanyl 100 mg Change every 48hrs.
5. Gentamicin 80mg install after each rescue treatment
5 Leviquin 500mg self start as needed.
6. Klonopin 1 or 2 daily as needed.
7. Prosed/DS as 1 every 6hrs as needed.
I have IC, but IC doesn't have me anymore!
11-30-2004, 07:24 AM #6
- Join Date
- Sep 2004
Thanks for the site, Katrina. I checked it out. Thank you to everyone for their replies. I am on uro #2 and treatment options have been slllllllooooowwwww. The elavil seems to be kicking in more although the dose my need to be increased. I just hope I don't become too zombie-like. I would love to try Elmiron directly instilled, but I guess it is not used everywhere. Thanks again ladies for your encouraging words. Rhonda, I am so very glad you are feeling better!
11-30-2004, 09:14 PM #7Originally Posted by twiggy
We should have buttons and bumper-stickers, all the other popular clubs have them
*please mind my sarcasm*
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