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  1. 10-25-2004, 01:21 PM #1
    green_the_fish
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    Pain specialist, then endocrinologist

    Even though Dr. K still hasn't given me the results of my blood test, a nurse from his office told me that I "may" have a hormonal problem, and told me to get a refferal to an endocrinologist from my GP. Dr. K must have mentioned something to her about me having hormonal problems if she were to tell me a thing like that, right?
    I really, really, REALLY hope this is some kind of hormonal thing and not IC!
    Well, in the nearer future, I get to see a pain specialist tomorrow. I'm going to ask for a trycylic anti-depressant like Elavil.
    Dr. K says he only sees a few IC patients a year, since he's a pediatric urlogist. He's going to send me to a regular urologist.
    I think I should start seeing a gyn, too. Then I could ask the gyn about endometriosis and about possibly getting a laparoscopy.
    So many docs!

    Medical Conditions: interstitial cystitis, bipolar disorder (type I), hypothryoidism, tachycardia (chronic)

    Other Occasional Health Problems: blepharitis and allergies

    Current IC Treatments: just avoidance of triggers

    Current BP I Treatments: Seroquel and lithium orotate

    Current Thyroid Treatments: Natural Sources Raw Thyroid

    Current Tachycardia Treatments: Metoprolol

    Past IC Treaments:


    Ortho Tri-Cyclen
    Hydroxyzine
    Elmiron
    Urocit-K
    pelvic floor therapy
    avoidance of flare-causing beverages


    cystoscopy with hydrodistention
    Detrol LA
    MSM Sulfur Dietary Supplement
    Prelief
    Neurontin
    Pyridium
    adherence to the traditional IC diet


    Elavil
    DMSO
    Ditropan XL
    Levbid
    & the herb dandelion, although the tea tasted good

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  2. 10-25-2004, 01:42 PM #2
    Katrina
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    Oh I so know the feeling of multiple docs...drives me crazzy!!!!! I so hope you results go well and you don't have IC....endo isn't much fun but I would prefer it to IC...boy the choices are not my favorites....Anyway hormonal problems really can screw things up in your body so I hope you can fix that right away...the symptoms of that can end up being a lot of pain too...but so fixable for most people. Hope you are a lot better real soon!!!

    Faith, Hope, and Love,
    Katrina

    I believe God is using me. He uses me for God. Things I gain from all my suffering are meant to help others. I hope I can help you too. Email me or start a chat if you like my help or anything. I CARE!Illnesses: IC,IBS, IBD, GERD, PFD, Epilepsy, Endo, Allergies, RLM,Rapid heart beat, low blood pressure,Gastritis,Gall stones,Tendonitis,migraines, Shingles, Prolapsed pouch,ext. fatigue (current problem) I have seen periods of remission and I have seen them end and return. At this time remission is over and working on getting it back! My hope story http://www.ic-network.com/patientstories/katrina.html
    http://mandksales.net
    IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
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    carmelann@charter.net please contact me...I am here to help!http://health.groups.yahoo.com/group/ICinWI/ if your from WI please contact me!
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  3. 10-25-2004, 02:09 PM #3
    work it
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    Good luck with the Doctor tomorrow I hope you find all your answers soon.
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  4. 10-25-2004, 02:25 PM #4
    ICLori
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    Good luck! It can be frustrating ruling this and that out but I'm hoping you have something that is relatively easy to fix, like a hormonal problem where you can just take a pill and be okay again, you know?

    Keeping my fingers crossed for you...

    Blessings, Lori
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  5. 10-26-2004, 02:08 AM #5
    Sarojini
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    Ugh... how frustrating!!

    I hope you can get a diagnosis as soon as possible -- as well as adequate pain control!!
    ****
    Jen

    *Diagnosed with severe IC in 2004
    *Also diagnosed with PFD, fibromyalgia, chronic myofascial pain, IBS, migraines, allergies/asthma, dermatographism
    *Kept trying a million different treatments for all these things until I found what works, and I am doing okay these days with the help of a cocktail of medications and the InterStim, which was first placed in 2007. [I have had 2 revisions - one in 2010 when my battery died and had to be replaced, and one complete replacement (lead and generator) in 2012 after a fall on my stairs caused my lead to move.]
    *Current meds include Atarax (50mg at night), Lyrica (150mg twice a day), Xanax (0.5mg at night and as needed), Zanaflex (4mg at night), hydrocodone (10/325, every 6 hours as needed), Advair, Nasonex, Singulair (10mg at night), oral contraceptives, home instills containing Elmiron and Marcaine (as often as I need to do them).

    **I am not a medical authority nor do I offer definitive medical advice. I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
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