10-25-2004, 01:21 PM #1
Pain specialist, then endocrinologist
Even though Dr. K still hasn't given me the results of my blood test, a nurse from his office told me that I "may" have a hormonal problem, and told me to get a refferal to an endocrinologist from my GP. Dr. K must have mentioned something to her about me having hormonal problems if she were to tell me a thing like that, right?
I really, really, REALLY hope this is some kind of hormonal thing and not IC!
Well, in the nearer future, I get to see a pain specialist tomorrow. I'm going to ask for a trycylic anti-depressant like Elavil.
Dr. K says he only sees a few IC patients a year, since he's a pediatric urlogist. He's going to send me to a regular urologist.
I think I should start seeing a gyn, too. Then I could ask the gyn about endometriosis and about possibly getting a laparoscopy.
So many docs!
Medical Conditions: interstitial cystitis, bipolar disorder (type I), hypothryoidism, tachycardia (chronic)
Other Occasional Health Problems: blepharitis and allergies
Current IC Treatments: just avoidance of triggers
Current BP I Treatments: Seroquel and lithium orotate
Current Thyroid Treatments: Natural Sources Raw Thyroid
Current Tachycardia Treatments: Metoprolol
Past IC Treaments:
pelvic floor therapy
avoidance of flare-causing beverages
cystoscopy with hydrodistention
MSM Sulfur Dietary Supplement
adherence to the traditional IC diet
& the herb dandelion, although the tea tasted good
10-25-2004, 01:42 PM #2
Oh I so know the feeling of multiple docs...drives me crazzy!!!!! I so hope you results go well and you don't have IC....endo isn't much fun but I would prefer it to IC...boy the choices are not my favorites....Anyway hormonal problems really can screw things up in your body so I hope you can fix that right away...the symptoms of that can end up being a lot of pain too...but so fixable for most people. Hope you are a lot better real soon!!!
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I believe God is using me. He uses me for God. Things I gain from all my suffering are meant to help others. I hope I can help you too. Email me or start a chat if you like my help or anything. I CARE!Illnesses: IC,IBS, IBD, GERD, PFD, Epilepsy, Endo, Allergies, RLM,Rapid heart beat, low blood pressure,Gastritis,Gall stones,Tendonitis,migraines, Shingles, Prolapsed pouch,ext. fatigue (current problem) I have seen periods of remission and I have seen them end and return. At this time remission is over and working on getting it back! My hope story http://www.ic-network.com/patientstories/katrina.html
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10-25-2004, 02:09 PM #3
Good luck with the Doctor tomorrow I hope you find all your answers soon.
10-25-2004, 02:25 PM #4
Good luck! It can be frustrating ruling this and that out but I'm hoping you have something that is relatively easy to fix, like a hormonal problem where you can just take a pill and be okay again, you know?
Keeping my fingers crossed for you...
10-26-2004, 02:08 AM #5
Ugh... how frustrating!!
I hope you can get a diagnosis as soon as possible -- as well as adequate pain control!!****
*Diagnosed with severe IC in 2004
*Also diagnosed with PFD, fibromyalgia, chronic myofascial pain, IBS, migraines, allergies/asthma, dermatographism
*Kept trying a million different treatments for all these things until I found what works, and I am doing okay these days with the help of a cocktail of medications and the InterStim, which was first placed in 2007. [I have had 2 revisions - one in 2010 when my battery died and had to be replaced, and one complete replacement (lead and generator) in 2012 after a fall on my stairs caused my lead to move.]
*Current meds include Atarax (50mg at night), Lyrica (150mg twice a day), Xanax (0.5mg at night and as needed), Zanaflex (4mg at night), hydrocodone (10/325, every 6 hours as needed), Advair, Nasonex, Singulair (10mg at night), oral contraceptives, home instills containing Elmiron and Marcaine (as often as I need to do them).
**I am not a medical authority nor do I offer definitive medical advice. I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
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