Thread: Follow up
10-20-2004, 12:38 AM #1
Well today I go to the Doc to get the results of my cysto/hydro. Hopefully they have good news for me but I don't think so. As I have been keeping track of how many times I go and what days I have pain (which seems to be every day). And everything seems to leading towards IC So wish me luck that I have something that can be treated and will go away.
10-20-2004, 12:45 AM #2
I wish you lots of luck!!!!! :thumbsup:The best way to cheer yourself is to cheer somebody else up. -- Mark Twain
In three words I can sum up everything I've learned about life: it goes on. -- Robert Frost
10-20-2004, 02:10 AM #3
good luck today...To the world you might be one person but to one person you might be the world..
I am a newbie Angel ~IC Angel Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
10-20-2004, 02:39 AM #4
Good luck today! Hope it's not IC... but if it is, then you'll know and can start treatments that can help you feel much, much better****
*Diagnosed with severe IC in 2004
*Also diagnosed with PFD, fibromyalgia, chronic myofascial pain, IBS, migraines, allergies/asthma, dermatographism
*Kept trying a million different treatments for all these things until I found what works, and I am doing okay these days with the help of a cocktail of medications and the InterStim, which was first placed in 2007. [I have had 2 revisions - one in 2010 when my battery died and had to be replaced, and one complete replacement (lead and generator) in 2012 after a fall on my stairs caused my lead to move.]
*Current meds include Atarax (50mg at night), Lyrica (150mg twice a day), Xanax (0.5mg at night and as needed), Zanaflex (4mg at night), hydrocodone (10/325, every 6 hours as needed), Advair, Nasonex, Singulair (10mg at night), oral contraceptives, home instills containing Elmiron and Marcaine (as often as I need to do them).
**I am not a medical authority nor do I offer definitive medical advice. I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
10-20-2004, 02:41 AM #5
10-20-2004, 02:56 AM #6
Just remember that even if it's IC, there is life with IC. Nearly all ICers live normal lives with treatment and diet.
Sending warm encouraging hugs,
DonnaHave you checked the ICN Shop?
http://www.icnsales.com for US & Canada
http://www.icnshop.com for all others
Patient Help: http://www.ic-network.com/patientlinks.html
Diet list: http://www.ic-network.com/diet/2009icdietlist.pdf
You'll find my story at: http://www.ic-network.com/patientstories/donna.html
I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
Anyone who says something is foolproof hasn't met a determined fool
10-20-2004, 08:50 AM #7
well he thinks it is ic but he is not sure as the only test that they can give to verify for sure if it is ic is to give you potassium which plays horrible havic on your bladder and causes horrible pain and he wont do that therefore he gave me dixopan and elmiron for the next month then if that is working they will assume i am ic
so if potassium causes such havic on our bladders then i would think twice about eating anything that has that in it.
10-20-2004, 08:55 AM #8
Sorry he gave me ditropan xl. Looks like my road is not good. The good news is that he thinks I am mild case so lets that it was caught early enough that i wont become a severe case and i can live on few drugs. As they have serve cases that knock on the door less than a month to have a hydro done.
10-20-2004, 10:15 AM #9
Hi Jan. I probably would be concidered a mild ICer. Just wanted to send some positive vibes your way and let you know that almost 10 months after beginning treatment, I have many more good days than bad. It's taken some trial-and-error and lots patience, but IC doesn't hang over my head like a dark cloud anymore. I use diet and wardrobe modification as well as taking several prescription meds and some OTC stuff.
I hope you find a treatment plan that works for you soon.
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