Thread: Just was disgnosed....
10-12-2004, 04:22 PM #1
- Join Date
- Sep 2004
Just was disgnosed....
I thought I would update in this thread since I went to the doctor and he did the TEST and told me that I do have IC. To make a long doctors apt. short I am now taking the following meds..... Elmiron, Elavil, and Atarax all for IC. He said they all may help w/ the pain and w/ the spasms. I am also going for the next 9 weeks for treatments. These treatments are "heprin" (sp?) treatments to help out as well.
An suggestions would be great on pain management, husband management, and life stlye changes.
10-12-2004, 04:31 PM #2
Now you know. I think my most difficult time with IC was that time before I was diagnosed.
Your job now is to learn as much as you can about IC and its treatment options. It does sound like your doctor is on the right track there. Are you following an IC diet? If not, I suggest you begin now. You'll find the diet in the Patient Handbook at http://www.ic-network.com/handbook/
I'm sure what you mean is heparin, which can be instilled into the bladder and helps many IC patients.
Sending warm encouraging hugs,
DonnaHave you checked the ICN Shop?
http://www.icnsales.com for US & Canada
http://www.icnshop.com for all others
Patient Help: http://www.ic-network.com/patientlinks.html
Diet list: http://www.ic-network.com/diet/2009icdietlist.pdf
You'll find my story at: http://www.ic-network.com/patientstories/donna.html
I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
Anyone who says something is foolproof hasn't met a determined fool
10-12-2004, 04:43 PM #3
Sounds like you have a wonderful start on treatments! You must have a uro who knows what he is doing - that's awesome. It helps so much to feel like we are working with someone competent and who knows his or her "stuff".Kim
Diagnosed August 2001
Current IC meds: Elmiron (since 2001), Levaquin (one pill after intercourse to prevent UTIs), Effexor (for depression & anxiety)
Past IC meds: Amitriptyline (Elavil), Hydroxyzine (Vistaril), Detrol LA, Lexapro (for depression & anxiety, but also helped my IC) (They all helped, but I was able to discontinue them.)
My IC story: http://www.ic-network.com/patientstories/kim.html It's very outdated now. I've been virtually symptom free and able to eat & drink whatever I'd like for about 8 years now.
“We who lived in concentration camps can remember the men who walked through the huts comforting others, giving away their last piece of bread. They may have been few in number, but they offer sufficient proof that everything can be taken from a man but one thing: the last of the human freedoms -- to choose one's attitude in any given set of circumstances, to choose one's own way.” ~ Viktor Frankl
“You cannot control what happens to you, but you can control your attitude toward what happens to you, and in that, you will be mastering change rather than allowing it to master you.” ~ Brian Tracy
10-13-2004, 01:47 AM #4
I agree with the others it does sound like your doctor is on the right track
I take heparin treatments at home and its been a blessing to me.
before i started doing these treatments i was in a much wrose state.
I hope it works great for you too.
Also like Donna said the IC diet can be a lot of help if your not already trying it please check it out.
Also please remember that diet isn't set in stone your body can only decide that.
Sending you hugs and prayers
RhondaMedicine taken daily or as needed:
1. Heaprin and Marcaine rescue installment 1 to 3x daily as needed.
2. MS.Cotin 100mg 3x daily
3. MSIR 30mg 1 or 2 every 4-6hrs as needed for breakthrew pain.
4. Fentanyl 100 mg Change every 48hrs.
5. Gentamicin 80mg install after each rescue treatment
5 Leviquin 500mg self start as needed.
6. Klonopin 1 or 2 daily as needed.
7. Prosed/DS as 1 every 6hrs as needed.
I have IC, but IC doesn't have me anymore!
10-13-2004, 09:28 AM #5
- Join Date
- Sep 2004
Thanks for all your prayers and thoughts. I am starting to follow the IC diet and luckily there is no chocolate allowed in my house b/c I daughter is allergic to it. I plan to sit down w/ my husband and talk w/ him regarding everything tonight.
As for my doctor, my OB is the one taking care of me. My URO does not even know that I have IC. I have been seeing my URO for over a year and he never tested me for this. So my plan is to stick w/ my OB and see how it goes. He seem to be into this subject and is looking into other treatments for me just incase!
I will keep you up to date!
10-13-2004, 11:09 AM #6
- Join Date
- Oct 2004
- Seattle, WA
/bonk your uro!!! (bonk is a quick tap to wake someone up, online mmorpg is it's origin.)
Glad one of your doctors is awake and aware!!
10-15-2004, 06:45 PM #7
I am on Heparin too! so glad you found us!
http://www.ic-network.com/forum/showthread.php?t=7562 this link is a pain managment post. The second page has 4 attachments...the last one is a list of ideas for IC pain.....take a look if pain is problem for you. I love the handbook but my list of ideas is something I wish I had as a newbie. I hope you get all the relief you need. Stay in touch.Faith, Hope, and Love,
I believe God is using me. He uses me for God. Things I gain from all my suffering are meant to help others. I hope I can help you too. Email me or start a chat if you like my help or anything. I CARE!Illnesses: IC,IBS, IBD, GERD, PFD, Epilepsy, Endo, Allergies, RLM,Rapid heart beat, low blood pressure,Gastritis,Gall stones,Tendonitis,migraines, Shingles, Prolapsed pouch,ext. fatigue (current problem) I have seen periods of remission and I have seen them end and return. At this time remission is over and working on getting it back! My hope story http://www.ic-network.com/patientstories/katrina.html
IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
or find me on facebook http://www.facebook.com/kat671?ref=profile
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email@example.com please contact me...I am here to help!http://health.groups.yahoo.com/group/ICinWI/ if your from WI please contact me!
10-15-2004, 11:32 PM #8
Good for you that you have at least one good doctor, and a diagnosis now and the best treatment available!
I think you will soon be feeling much much better!
10-16-2004, 12:55 AM #9
the only way i can use this board is ansering u guys wish i could put my own post
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