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  1. #1
    Registered User KristaM's Avatar
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    Sep 2004
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    St. John's Newfoundland, Canada
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    51

    Question about Pain Meds.. new and need advice

    Hi everyone,
    First of all, I want to thank everyone for the great advice I get here. I usually don't post a whole lot because I'm new to this disease so I feel like I don't have enough experience yet to give good advice. However, I'm always in NEED of ADVICE. As some of you know my main symptom is burning to the point of not being able to sit for very long. I would like to know... IF you have this symptom what meds work the best for it.. I'm going to my urogyno on Nov 2 and I want to tell him about a few drugs that he could perscribe for this particular symptom. I know that one drug is pyridium.. is there anything else that anyone can think of? also, I'm in Canada so are the names usually the same or different.
    Thanks so much!!!
    Krista
    Also, this burning i have is not a uti because I had it checked..
    When life throws you lemons make lemonade. :dogrun:

  2. #2
    ICN Member theclownster's Avatar
    Join Date
    Jan 2004
    Location
    Michigan
    Posts
    1,006
    Hi Krista! I'm sorry to hear that you have IC and have burning as a symptom. Even though you are newer to IC it's good to know you are here to support others who have IC. It's great that you feel comfortable enough to ask your question.

    You are right about pyridium. There is also pyridium plus (which I think works better then just plain pyridium). I've heard that it's not always safe to stay on that med for longer periods of time. Personally, I don't usually have burning as a primary symptom, but have experienced it some. I did have some other pain symptoms and have found the antihistamine I am on Ataraz and the Elavil (anti-depressant that is used in low doses as a pain med) to have helped tremendously in my overall pain. I'm not sure if this would help with the burning, but it has helped me with my overall pain/discomforting symptoms. I also take prelief (which is not an actual medication) which is a dietary supplement that removes acid out of the food as you eat it. Have you also tried the IC diet? That can help too. There's lot of great info on the main ICN page in the patient handbook.

    I hope that you are feeling better soon! Oh, it might also help to drink lots of water. Some people are sensitive to different kinds of water - some drink certain brands of bottled water. Some brands of bottled water have minerals in them that can irritate the bladder. Sometimes tap water can also be an irritant because of the chemicals that are used to sanitize drinking water.

    Take Care!
    Hugs~
    Jennifer

  3. #3
    Forum Manager ICNDonna's Avatar
    Join Date
    Mar 2000
    Location
    Oregon
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    32,572
    Here's the link to the Drug Glossary --- which will give you the names of the various drugs in Canada: http://www.ic-network.com/glossary

    That said, for burning I usually take pyridium, but it's not meant for long term use. I have also taken Urised. Both will change urine color and they do stain everything the colored urine touches.

    Donna
    Have you checked the ICN Shop?
    http://www.icnsales.com for US & Canada
    http://www.icnshop.com for all others

    Patient Help: http://www.ic-network.com/patientlinks.html

    Diet list: http://www.ic-network.com/diet/2009icdietlist.pdf

    You'll find my story at: http://www.ic-network.com/patientstories/donna.html

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

    Anyone who says something is foolproof hasn't met a determined fool
    .....My Meggie.....

  4. #4
    IC Friend
    Join Date
    Aug 2005
    Location
    Phoenix
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    215

    Krista

    Hi Krista, please don't sell yourself short. What you have to offer is just as important as what anyone else has to offer. We are all experts on what works for us and what we have been through so please share what you can. It's just as important as anything else someone else shares PEACE and JOY JOY JOY
    "I know what I got" For Mike

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