Thread: Good news!!!
10-01-2004, 08:50 AM #1
I promised in the other thread I wouldn't whine today, lol. My visit with the new urologist today went *GREAT*! They had to cath me to get a urine sample *yuck*, but that was the only bad part (I'm even getting used to all of these pelvic exams, lol). The office staff was super nice and the doctor must have spent 30 minutes just talking to me (and LISTENING too ). They also let my husband stay with me for the entire exam (the other urologist kicked him out :-/). Hubby said it was "like night and day" between the two.
The urologist is leaning towards a diagnosis of IC, but he is giving me DetrolLA just to rule out overactive bladder. I'm going back in two weeks, and at that point if the Detrol hasn't helped he's going to make a presumptive diagnosis of IC and start trying treatments right away. The best part is I won't have to repeat any of the painful diagnostics. He also made most of the same recommendations that you guys have as far as the IC diet and lots of fluids, and he actually recommended reading online over any of their handouts because the information is more up to date, which I thought was pretty enlightened for a doctor!
Anyways, thanks for all of the positive thoughts! I'm definitely on my way to getting some help.
10-01-2004, 09:04 AM #2
Hey, that sounds really, really good. What a difference that will make to be working with a doc you have so much confidence in --- and one who
has confidence in you! Awesome!Kim
Diagnosed August 2001
Current IC meds: Elmiron (since 2001), Levaquin (one pill after intercourse to prevent UTIs), Effexor (for depression & anxiety)
Past IC meds: Amitriptyline (Elavil), Hydroxyzine (Vistaril), Detrol LA, Lexapro (for depression & anxiety, but also helped my IC) (They all helped, but I was able to discontinue them.)
My IC story: http://www.ic-network.com/patientstories/kim.html It's very outdated now. I've been virtually symptom free and able to eat & drink whatever I'd like for about 8 years now.
“We who lived in concentration camps can remember the men who walked through the huts comforting others, giving away their last piece of bread. They may have been few in number, but they offer sufficient proof that everything can be taken from a man but one thing: the last of the human freedoms -- to choose one's attitude in any given set of circumstances, to choose one's own way.” ~ Viktor Frankl
“You cannot control what happens to you, but you can control your attitude toward what happens to you, and in that, you will be mastering change rather than allowing it to master you.” ~ Brian Tracy
10-01-2004, 10:56 AM #3
- Join Date
- Aug 2003
- Wherever the wind blows us as we love to travel! Originally from the Dayton, Ohio area. We now call Georgetown, TX home.
So glad to hear all went so well! :woohoo: Finding a competent and compassionate uro is essential! Now you are on your way to healing and feeling so much better.
As with the diet, our responses to meds and treatments are very individual. What works for one may not work for someone else. It may take a bit of time, trial and error to find just the right combo that does the job for you. Do keep in mind that the vast majority of ICers DO get there and can go on to live normal, productive lives. Detrol helps some of us but doesn't work for others. It was the first thing RXed for me, too, and it did help my frequency so I am still taking it (cut my frequency from every 20 minutes to once every couple of hours). It didn't help with flares or pain, however, so I slowly began adding other meds and treatments. I certainly hope it will give you some relief, too. Do keep in mind, however, there are LOTS of different meds and treatments available.
You and your hubby will probably want to spend some time now reading about possible meds and treatments so you will be informed and can, along with your physician, decide what is best for you.
We'll be here,too, to support you and, to the best of our abilities, answer questions you may have.
10-01-2004, 11:54 AM #4
:woohoo: Stella, I told the 2nd time around is usually better :woohoo: I sure hope he takes better care of you.. I sure sounds like it... I have never had a gyn kick my hubby out.. if it was a man gyn and he did that.. it would really make me uncomfortable.... keep us posted...
Brat'The will of God will never take you where the Grace of God will not protect you.'
10-01-2004, 12:43 PM #5
Congrats!!! Sounds like this uro is a keeper!!!!!****
*Diagnosed with severe IC in 2004
*Also diagnosed with PFD, fibromyalgia, chronic myofascial pain, IBS, migraines, allergies/asthma, dermatographism
*Kept trying a million different treatments for all these things until I found what works, and I am doing okay these days with the help of a cocktail of medications and the InterStim, which was first placed in 2007. [I have had 2 revisions - one in 2010 when my battery died and had to be replaced, and one complete replacement (lead and generator) in 2012 after a fall on my stairs caused my lead to move.]
*Current meds include Atarax (50mg at night), Lyrica (150mg twice a day), Xanax (0.5mg at night and as needed), Zanaflex (4mg at night), hydrocodone (10/325, every 6 hours as needed), Advair, Nasonex, Singulair (10mg at night), oral contraceptives, home instills containing Elmiron and Marcaine (as often as I need to do them).
**I am not a medical authority nor do I offer definitive medical advice. I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
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