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  1. #1
    Registered User Just Mary's Avatar
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    Aug 2004
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    Mono/Epstein-Barr & IC

    Hello again everyone. It's been a busy week, so I haven't had time to post.

    I wasn't sure where to post this.

    I was reading in Gillespie's "You Don't Have to Live With Cystitis" book last night and had a possible revelation.

    I has mono when I was 13. I am going to the dr this afternoon to see if he can to the titer test to see if I still have the active virus in me causing my IC and fatigue and cronic cold symptoms.

    I hope he takes me seriously. I'm taking the book with me!
    Mary :dogrun:

  2. #2
    Registered User RedLione's Avatar
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    I also post on a fibromyalgia board, where I found that there was a Pain Management conference in San Antonio Wednesday. Specialist Dr. David Johnson presented research that fibro and chronic fatigue sufferers test positive for several of 17 specific viruses, Epstein Barr among them. He said they all respond well to anti-viral meds. Since it may be a while before I can afford to have my doc test me for all those viruses, thus convincing him to let me try anti-viral medications, I was wondering if anyone knows of any natural anti-viral therapy, like purple cone flower or something. Thanks!

  3. #3
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    I really don't think this a possability, since mono is such a contagious and very common virus.

  4. #4
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    That's funny, I was just reading through my chart yesterday and came across the tests I had years ago when I felt horribly exhausted all the time, weak legs like spaghetti, sore etc. She had me tested for mono/epstein-barr, and it showed that I had had mono in the past, and had the markers for epstein-barr. At least i think so, I may be reinterpreting it wrong. But it's definately something to check into!

  5. #5
    Registered User shennan's Avatar
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    hi,

    what kind of doctor tests for mono and epstein-barr virus?

    thanks.

  6. #6
    Registered User Just Mary's Avatar
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    Exclamation Results from Dr visit

    Well, that was an interesting visit. First of all, he said my 1984 gilipsie book was out-dated. But he said he would test me for the EBV. Since I have known this dr all my life, and my mom used to be his nurse, I bluntly asked him if he was doing the test to make me happy, or because he thinks this could mean something. Well, he said he was doing it to make me happy, and wanted to know what I hoped to gain if it came back possitive. I said it would just be nice to have a valid excuse for why I was sick all the time and felt tired and crappy most of the time. He was flipping through my chart and noticed that even when i visit the dr for non viral things (yeast, backache), I run a log fever (100.5 ish). He then started to really think I might have some kind or "something" and that this test would be one of the first things to see what it is. Depending on the results ( due next week), he might send me to and immuno???? dr. I told him I didn't want to open a new can of worms, but he said it needed looked into. He then sent the nurse in who did and excellent job of a no-pain, no-poke blood draw. I almost wanted to hug and kiss her!

    PS. He is just my normal PCP/family dr.

    I will keep you posted.

    Oh, I found on a web site and the dr confiremed this, that mono is not such a tabo thing anymore and so many people have had it that don't even know they had it. I wonder if my hubby and dtr are among them!?
    Mary :dogrun:

  7. #7
    I had mono in January, but I can't relate it to my IC since I've had the IC symptoms for years. I did a ton of reading (I was too tired to do anything else), and I found the same info you did about most people having had it by the time they are in their 20's. It's just that when you get it as a young child it only affects you like a mild cold. The biggest thing I discovered is that they really don't know how long you stay contagious; I may have gotten it from drinking after a friend who had it five years ago! It was really hard for me to convince my boss that I could go back to work because we had a girl in the office who was going through chemo, and since I never ran a fever, we had very little indication of whether or not my infection was still active.

    Laura

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