09-28-2004, 07:13 AM #1
Hi all..I have IC and I have been going through period of NO ENERGY..I mean I cannot even clean without feeling exhausted. I only wanna sit down! I feel lazy! My husband says I have no prob on computer but thats cause IM SITTING..If I sit I can do. My arms, legs etc get very tired...they feel very heavy and I can only say I HAVE NO OOOMPH to doooo. Can anyone tell me is this normal..I wasnt always this way...is it the IC , its been last few months, some days Im better than others BUT like today Im trying to clean and I get so discourraged and cry cause Im exhausted...I slept last nite! Some night (most) I dont, but I did...is this par for the course??
09-28-2004, 08:08 AM #2
You know, Chris, I've been horribly ashamed to admit to anyone really how "lazy" I've been since coming down with this disease. I used to be an Army officer, working 12 hour days, going on 4-mile runs on my lunch hour. I used to be a hard-working person with adequate energy.
Since coming down with IC, I have hurt all over - not just in my bladder - joint pains, etc. I just in general don't feel completely well, almost as if I'm coming down with the flu.
I feel as if I "have" to have a nap daily now, and I sleep longer than I used to. I seem to "need" 12 hours of sleep total per day, and all I want to do is lie down. Nothing seems worth the effort anymore, although I do force myself to do things. I don't seem to have any natural enthusiasm any more, or energy.
I have heard from others who have talked about low energy with this disease and I am really beginning to think, it truly is a part of IC.
09-28-2004, 09:42 AM #3
I battle being tired all the time. I am so tired of being tired. I never feel like I get enough sleep.Sharon
Shopping??? Did someone mention shopping? I'll get my hat... ;-)
Where I can be found most days.
If not there, then here
Link to the ICN Patient Handbook:
Link to the IC Diet:
IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
09-28-2004, 11:33 AM #4
i have fatigue, exhaustion, joint pain, morning sickness, and just have no energy.
have to take pain medicine to get anything done.
i think it all goes along with ic....
09-28-2004, 11:52 AM #5
I'm always tired as well. I love sleeping. Seems like that is the only time when I feel good is when I'm sleeping. How sad huh??? I don't think your the only one with the tired feeling. Many others seem to have it as well. I hate it as well. I have the most messed up sleeping schedule ever. I can be up for only a few hours and I feel as if I need to go and lay down because I'm so tired. I have an appt. tomorrow with my uro and I sure do have a lot of questions to ask. I'll ask her if people with IC are tired a lot. Chelsey
01-01-2013, 12:48 PM #6
wow i feel exactly like all of you!! It's crazy. I have yet to find a doctor who was willing to address this or help me with it. The pain meds i've been given (tramadol, vicodin) make me feel sick and tired so they don't help. Did any of you find any solutions for your energy problems? I know it's been almost ten years since this thread was started ...:-)IC symptoms since Dec. 12 2010 after confirmed bladder infection "never went away." Recently also diagnosed with PCOS, piriformis syndrome, and pelvic floor dysfunction, sinus issues. I was in great health before fall 2010.
Current medications: citalopram 40 mg, valium 2.5 mgs a night, lidocaine patch (for back pain), Prelief
Therapies tried or continuing: stretches, walks, baths, internal massage, physical therapy, IC diet, IF unit, heating pad, mindfulness based stress reduction classes, cognitive therapy, books on IC and pelvic pain...
Drugs Tried: the urinary analgesics, 4 kinds of muscle relaxants (including in suppository form), hydroxyzine, 3 kinds of TCA's, lyrica, cymbalta, 6 months elmiron, vesicare, antibiotics, prednisone (after sinus surgery), NSAIDS...
Supplements: over 20 herbs and supplements, including regimens from TCM practitioner and a naturopathic MD
Intravesical/Surgical: 3 instills of Uracyst, 2 “rescue instills” lidocaine, bicarb, elmiron; 1 self-instill of marcaine, a steroid, bicarb and heparin; 1 hydrodistention and capsaicin instill (made me worse, still recovering two months later...)
Other: Acupuncture treatments, magnets (LOL), Anti-Candida Diet (2 months), Wheat free diet, water pH
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