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Thread: MY Aunt just dx'ed w/IC
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09-15-2004, 12:46 PM #1ICN Member
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MY Aunt just dx'ed w/IC
Hello all,
Wanted to tell you that my Aunt was dx'ed with IC. As you know I have IC and so dose my Mom... she also has 2 cousins with it, now her sister..... hhhhhmmmm begining to sound a little genetic to me.... even tho they say it's not been proven.... She has her first DMSO on Tuesday.. I printed up paper work on it and took it to her.
Brat'The will of God will never take you where the Grace of God will not protect you.'
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09-15-2004, 01:07 PM #2Support Leader
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- Jan 2004
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- North Carolina
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Hey Brat... I'm so sorry to hear another family member has IC!!
I'm sending lots of luck to your aunt, and I hope the DMSOs work for her!
****
Jen
*Diagnosed with severe IC in 2004
*Also diagnosed with PFD, fibromyalgia, chronic myofascial pain, IBS, migraines, allergies/asthma, dermatographism
*Kept trying a million different treatments for all these things until I found what works, and I am doing okay these days with the help of a cocktail of medications and the InterStim, which was first placed in 2007. [I have had 2 revisions - one in 2010 when my battery died and had to be replaced, and one complete replacement (lead and generator) in 2012 after a fall on my stairs caused my lead to move.]
*Current meds include Atarax (50mg at night), Lyrica (150mg twice a day), Xanax (0.5mg at night and as needed), Zanaflex (4mg at night), hydrocodone (10/325, every 6 hours as needed), Advair, Nasonex, Singulair (10mg at night), oral contraceptives, home instills containing Elmiron and Marcaine (as often as I need to do them).
**I am not a medical authority nor do I offer definitive medical advice. I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
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09-15-2004, 03:32 PM #3ICN Member
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My 8 year old daughter came up to me and told me that after she goes to the bathroom it feel slike she still needs to go. I hope she does not get this IC stuff. It does not seem to bother her, so I am going tolet it go for awhile. She has some major dental work coming up.
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09-15-2004, 03:41 PM #4Support Volunteers
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- Jul 2001
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- TN
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Hopefully it's a very mild case for her.......hugs and prayers that the treatments work! I have a cousin who has IC too......that's all for now.
Tons of support,
Jaime
IC angel helping families in need for the holidays. holidayassistance@ic-network.com
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09-16-2004, 11:14 AM #5ICN Staff
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I am so sorry to hear this, Brat. It is never a happy occasion when we add one more to the IC rolls.
Sharon
Shopping??? Did someone mention shopping? I'll get my hat... ;-)
Where I can be found most days.
If not there, then here
Link to the ICN Patient Handbook:
http://www.ic-network.com/handbook/
Link to the IC Diet:
http://www.ic-network.com/diet/
IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
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09-17-2004, 12:44 PM #6ICN Member
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I am very sorry to hear....makes me think there is definatly more than one kind of IC.....some of you have a very genetic form....while so many do not. I am so very sorry your family has this huge burdan.
Faith, Hope, and Love,
Katrina
I believe God is using me. He uses me for God. Things I gain from all my suffering are meant to help others. I hope I can help you too. Email me or start a chat if you like my help or anything. I CARE!Illnesses: IC,IBS, IBD, GERD, PFD, Epilepsy, Endo, Allergies, RLM,Rapid heart beat, low blood pressure,Gastritis,Gall stones,Tendonitis,migraines, Shingles, Prolapsed pouch,ext. fatigue (current problem) I have seen periods of remission and I have seen them end and return. At this time remission is over and working on getting it back! My hope story http://www.ic-network.com/patientstories/katrina.html
http://mandksales.net
IC
Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
or find me on facebook http://www.facebook.com/kat671?ref=profile
Be the Miracle! & Pay it Forward!
carmelann@charter.net please contact me...I am here to help!http://health.groups.yahoo.com/group/ICinWI/ if your from WI please contact me!
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09-17-2004, 12:53 PM #7ICN Member
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ok a little joking on my end, at least we know what to cook on holidays for my family.. lol because we all can't have the good stuff
Catlinsmom, I sure hope your daughter don't have IC... I think my daughter can hold Nigra Falls... she pee's b4 school and don't go any during, comes homes and pee's and then b4 she goes to bed.. I do have to admit I am jealous...
Brat'The will of God will never take you where the Grace of God will not protect you.'
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09-17-2004, 03:59 PM #8ICN Member
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- Aug 2004
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- Metro Detroit
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- 72
I will mention my daughter's bladder on my next uro visit. I think she knows the location of every bathroom in Macomb county. I would hope she does not have IC.
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09-23-2004, 02:46 PM #9Registered User
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- Mar 2004
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- Florida
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Hey just now reading your post. My mother has a kidney disease called nephrities and my grandma always passes blood and protein in her urine but has no other symptoms of IC (mom also passes blood and the smae protien). I am not sure what it means but would be great if someone would research that maybe there is a way to turn it off!!!!
Holidays will be interesting, got any good recipes????
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