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IC Patient Support Forum - Interstitial Cystitis, Bladder & Pelvic Pain

Welcome to the IC Patient Support Forum - Interstitial Cystitis, Bladder & Pelvic Pain.

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    ICN Announcements

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    Read the latest announcements about the Interstitial Cystitis Network here. From new site additions to newsletter releases, this is the place to get the latest ICN news!

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    Forum Statistics:

    • Threads: 612
    • Posts: 4,518
  2. Patient Stories Threads / Posts  Last Post

    1. Share Your Interstitial Cystitis Story Here. When did it start for you? How did it begin?? What interstitial cystitis treatments worked for you?

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      • Threads: 5,208
      • Posts: 39,099
    2. Introduce Yourself and share your interstitial cystitis story here!

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      • Threads: 6,716
      • Posts: 53,068

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    3. IC Success Stories

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      Share your Interstitial Cystitis Success Story Here

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      Forum Statistics:

      • Threads: 1,022
      • Posts: 10,834
    4. Yes, remission happens and happens often for interstitial cystitis patients. If you're in remission, please share your story and success tips here!

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      • Threads: 348
      • Posts: 4,127
    5. Are you a newly diagnosed man? Meet others here!

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      • Threads: 398
      • Posts: 2,805
  3. Diagnostic Methods For Interstitial Cystitis Threads / Posts  Last Post

    1. Ask questions about the diagnosis of IC, PFD and pelvic pain here!

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      • Threads: 2,495
      • Posts: 20,339
    2. Do you suspect you have interstitial cystitis but haven't been diagnosed yet? Post here!

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      • Threads: 2,298
      • Posts: 16,993
    3. Symptoms of IC

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      • Threads: 3,755
      • Posts: 28,946
  4. Treatment Options Threads / Posts  Last Post

    1. Oral Medications

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      Oral medications are usually the first treatment options suggested for patients with mild to moderate bladder symptoms and/or pain.

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      • Threads: 3,965
      • Posts: 28,554
    2. Bladder instillations are often performed for mild, moderate and, in some cases, severe IC.

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      • Threads: 2,001
      • Posts: 15,848

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    3. Pelvic Floor therapy

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      • Threads: 1,181
      • Posts: 8,611
    4. Surgery is only considered after a patient has tried all of the other traditional therapies and is reserved for the most severe cases.

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      • Threads: 1,023
      • Posts: 11,842
    5. Experimental therapies for interstitial cystitis (IC/PBS) are those currently being explored in research studies around the world. Their clinical trial results may not be available or are the result of a smaller, less credible study. We've included antibiotics in this discussion area because the role of bacteria in IC remains controversial at best. We have little conclusive evidence that IC is bacterial in nature.

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      Forum Statistics:

      • Threads: 3,103
      • Posts: 24,671
  5. The IC Diet Threads / Posts  Last Post

    Discuss all things related to the IC diet here!

    1. General Diet Questions

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      Ask questions about diet and interstitial cystitis IC/PBS here!

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      Forum Statistics:

      • Threads: 5,946
      • Posts: 42,222
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      • Threads: 40
      • Posts: 279
  6. Self-Help For Interstitial Cystitis Threads / Posts  Last Post

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      • Threads: 140
      • Posts: 869

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    2. Are you struggling with hormonal changes?? Are they bothering your bladder?? Need to vent about your body changing?? Do it here!

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      Forum Statistics:

      • Threads: 228
      • Posts: 1,514
    3. Depression & Anxiety

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      Discuss your thoughts and concerns about depression and anxiety here.

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      Forum Statistics:

      • Threads: 1,102
      • Posts: 11,132
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      • Threads: 528
      • Posts: 4,181
    5. Exercise & Fitness

      (3 Viewing)

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      • Threads: 439
      • Posts: 3,324
  7. Managing Interstitial Cystitis Flares Threads / Posts  Last Post

    An interstitial cystitis flare is a familiar and frustrating part of life with IC. Often the result of diet or romance, flares can be reduced and eliminated with several strategies.

    1. Discuss pain management strategies here!

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      Forum Statistics:

      • Threads: 2,656
      • Posts: 23,130
    2. Are you in a flare? Need support? Post here!

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      Forum Statistics:

      • Threads: 3,460
      • Posts: 26,139
    3. Please share your best interstitial cystitis flare coping strategies here! This is NOT to post questions about treatments, therapies or managing flares. We JUST want to hear great techniques for handling flares!

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      Forum Statistics:

      • Threads: 629
      • Posts: 5,510
  8. Related Conditions to Interstitial Cystitis Threads / Posts  Last Post

    1. Research has demonstrated a clear connection between IC, IBS, vulvodynia, prostatodynia and other related conditions. Discuss them here!

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      Forum Statistics:

      • Threads: 4,176
      • Posts: 30,235
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      • Threads: 1,172
      • Posts: 9,397
    2. When a mother or wife develops IC, it can often impact how she feels about her abilities in those roles. Talk about it here!

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      Forum Statistics:

      • Threads: 477
      • Posts: 4,079
  9. Health Insurance & Disability Benefits Threads / Posts  Last Post

    Are you struggling with health insurance? Don't have insurance?? Looking for drug assistance programs??

    1. Is this a can of worms or what?? Ask questions or discuss any issues you might have with your health insurance coverage

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      Forum Statistics:

      • Threads: 24
      • Posts: 187
    2. Forum Actions:

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      • Threads: 265
      • Posts: 1,582
    3. Are you considering applying disability insurance? In the Appeals process? Post your questions here.

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      Forum Statistics:

      • Threads: 788
      • Posts: 5,743
  10. Social Life - Family, Friends, Dating Threads / Posts  Last Post

  11. GREAT DEBATES Threads / Posts  Last Post

    1. While research hasn't found one specific cause of interstitial cystitis, there are several strong opinions out there. What do you think about the cause of IC? Any ideas? Debate them here!

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      Forum Statistics:

      • Threads: 362
      • Posts: 3,574
    2. One of the long standing debates is the validity of the KCL test to diagnose IC rather than the more intensive hydrodistention. What do you think?

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      • Threads: 7
      • Posts: 79

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  12. MEET OTHERS BY REGION Threads / Posts  Last Post

    This section of the ICN Forum is dedicated to Michaeleen Franklin, the longest running IC support group leader in the USA. We honor her memory, her compassion, her wisdom and her support of patients in the Southwestern USA for more than twenty years.

    1. Click here to view our database of support groups and medical care providers.

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      Forum Statistics:

      • Threads: 182
      • Posts: 1,329
  13. SPIRITUALITY, FAITH & POSITIVITY Threads / Posts  Last Post

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      • Threads: 1,377
      • Posts: 19,636
    2. Dedicated to the memory of AuntieDebbieF, this board is a place your gratitudes. Please let your story cheer others!

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      Forum Statistics:

      • Threads: 761
      • Posts: 6,690
    3. For those times when you just need to surround yourself with happiness, these posts will help. Please share any videos, blogs, poems that you think will lift peoples spirits!

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      Forum Statistics:

      • Threads: 129
      • Posts: 1,243

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    4. The healing power of words is undeniable. Please share your favorite poems and words of encouragement here!

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      • Threads: 7
      • Posts: 18
  14. MISC. Threads / Posts  Last Post

    1. Career Concerns & IC

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      • Threads: 246
      • Posts: 1,936
    2. Forum Actions:

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      • Threads: 156
      • Posts: 7,164
    3. Laughter is the best medicine! Help us laugh today. Share your funniest jokes and stories here!

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      • Threads: 684
      • Posts: 4,524

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    4. Because IC is only a part of our lives.

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      Forum Statistics:

      • Threads: 2,035
      • Posts: 19,369
    5. A place to discuss an interesting book .... or share information about articles you've seen in recent magazines.

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      Forum Statistics:

      • Threads: 127
      • Posts: 818

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    6. Pets Welcome

      (1 Viewing)

      A "Spot" for sharing pet "tails"

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      Forum Statistics:

      • Threads: 543
      • Posts: 5,367
  15. BOARD MGT. Threads / Posts  Last Post

    1. For Questions About BBS Management & TOS Inquiries

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      Forum Statistics:

      • Threads: 201
      • Posts: 965

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There are currently 436 users online. 8 members and 428 guests

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IC Patient Support Forum - Interstitial Cystitis, Bladder & Pelvic Pain StatisticsIC Patient Support Forum - Interstitial Cystitis, Bladder & Pelvic Pain Statistics

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