ICN Support Forum - Interstitial Cystitis, Overactive Bladder, Pelvic Floor Dysfunction

Welcome to the ICN Support Forum - Interstitial Cystitis, Overactive Bladder, Pelvic Floor Dysfunction.

  1. Interstitial Cystitis News & Updates Threads / Posts  Last Post

    Read the latest interstitial cystitis news here!

    1. ICN Announcements

      (16 Viewing)

      Read the latest announcements about the Interstitial Cystitis Network here. From new site additions to newsletter releases, this is the place to get the latest ICN news!

      Sub-Forums:

      1. The Latest IC, BPS & Pelvic Pain Research,
      2. Industry News - blogs, videos etc.,
      3. Consumer Alerts & FDA Recalls,
      4. Upcoming Events & Support Group Meetings

      Forum Actions:

      Forum Statistics:

      • Threads: 1,219
      • Posts: 9,032

      Last Post:

    2. Jill's Journal

      (9 Viewing)

      ICN Founder Jill offers daily comments on IC events, activities in the ICN office and more!

      Forum Actions:

      Forum Statistics:

      • Threads: 317
      • Posts: 4,102

      Last Post:

    3. What's New in the ICN Shop

      Find the best books and resources in the ICN Shop, purchases from which support this free forum! Please shop with us!

      Forum Actions:

      Forum Statistics:

      • Threads: 30
      • Posts: 104

      Last Post:

  2. ACTIVISM Threads / Posts  Last Post

    1. 2013 Awareness Month Volunteer Committees

      If you've struggled with doctors not believing that your IC was real, now is your chance to make a difference! Please sign up for a committee today!

      Sub-Forums:

      1. Media Relations,
      2. Writing, Blogging and Poetry,
      3. Facebook, YouTube, Pinterest, Twitter Projects,
      4. Campaign Slogan Ideas,
      5. Donation Strategies,
      6. Art, Logo & Posters,
      7. Proclamations & Political Lobbying,
      8. Canada IC Awareness!

      Forum Actions:

      Forum Statistics:

      • Threads: 17
      • Posts: 44

      Last Post:

  3. Patient Stories Threads / Posts  Last Post

    1. Introduce yourself and share your story

      (17 Viewing)

      Share Your Interstitial Cystitis Story Here. When did it start for you? How did it begin?? What interstitial cystitis treatments worked for you?

      Sub-Forums:

      1. Children with Interstitial Cystitis,
      2. Teens with IC,
      3. College Students with IC

      Forum Actions:

      Forum Statistics:

      • Threads: 4,531
      • Posts: 34,260

      Last Post:

    2. Newly Diagnosed With Interstitial Cystitis

      (29 Viewing)

      Introduce Yourself and share your interstitial cystitis story here!

      Forum Actions:

      Forum Statistics:

      • Threads: 6,440
      • Posts: 50,689

      Last Post:

    3. IC Success Stories

      (7 Viewing)

      Share your Interstitial Cystitis Success Story Here

      Forum Actions:

      Forum Statistics:

      • Threads: 931
      • Posts: 9,821

      Last Post:

    4. My Interstitial Cystitis Is In Remission!

      (1 Viewing)

      Yes, remission happens and happens often for interstitial cystitis patients. If you're in remission, please share your story and success tips here!

      Forum Actions:

      Forum Statistics:

      • Threads: 306
      • Posts: 3,687

      Last Post:

    5. Men with Interstitial Cystitis

      (5 Viewing)

      Are you a newly diagnosed man? Meet others here!

      Forum Actions:

      Forum Statistics:

      • Threads: 342
      • Posts: 2,415

      Last Post:

  4. Diagnostic Methods For Interstitial Cystitis Threads / Posts  Last Post

    1. General Diagnostic Questions

      (12 Viewing)

      Ask questions about the diagnosis of IC, PFD and pelvic pain here!

      Sub-Forums:

      1. Cystoscopy & Hydrodistention For Interstitial Cystitis,
      2. Urodynamics & Other Testing

      Forum Actions:

      Forum Statistics:

      • Threads: 2,185
      • Posts: 18,220

      Last Post:

    2. Not Diagnosed Yet with Interstitial Cystitis?

      (23 Viewing)

      Do you suspect you have interstitial cystitis but haven't been diagnosed yet? Post here!

      Forum Actions:

      Forum Statistics:

      • Threads: 2,100
      • Posts: 15,411

      Last Post:

    3. Symptoms of IC

      (76 Viewing)

      Forum Actions:

      Forum Statistics:

      • Threads: 3,489
      • Posts: 27,051

      Last Post:

  5. Treatment Options Threads / Posts  Last Post

    1. Oral Medications

      (48 Viewing)

      Oral medications are usually the first treatment options suggested for patients with mild to moderate bladder symptoms and/or pain.

      Sub-Forums:

      1. Elmiron For Interstitial Cystitis IC/BPS,
      2. Antispasmodics & Anesthetics,
      3. Antihistamines (Atarax - Vistaril) Used With Interstitial Cystitis,
      4. Antidepressants (Elavil, etc.),
      5. Food Supplements: Algonot, CystaQ, Cystoprotek, Aloe & More

      Forum Actions:

      Forum Statistics:

      • Threads: 4,930
      • Posts: 36,714

      Last Post:

    2. Bladder Instillation Therapy

      (9 Viewing)

      Bladder instillations are often performed for mild, moderate and, in some cases, severe IC.

      Sub-Forums:

      1. Rescue Instillations For Interstitial Cystitis,
      2. DMSO, Cystistat, Heparin - Interstitial cystitis bladder instillations

      Forum Actions:

      Forum Statistics:

      • Threads: 1,913
      • Posts: 15,240

      Last Post:

    3. Pelvic Floor therapy

      (11 Viewing)

      Forum Actions:

      Forum Statistics:

      • Threads: 1,117
      • Posts: 8,027

      Last Post:

    4. Neuromodulation & Medical Devices

      (10 Viewing)

      Sub-Forums:

      1. Post Tibial Nerve Stimulation (Ankle Stim),
      2. Sacral Nerve Stimulation: Considering it?,
      3. Sacral Nerve Stimulation: Undergoing Trials or Surgery,
      4. Sacral Nerve Stimulation: Success Stories,
      5. Sacral Nerve Stimulation: Surgical or Interstim Device Failures,
      6. T.E.N.S Therapy,
      7. Nerve Blocks

      Forum Actions:

      Forum Statistics:

      • Threads: 1,736
      • Posts: 14,269

      Last Post:

    5. Surgical Interventions

      (7 Viewing)

      Surgery is only considered after a patient has tried all of the other traditional therapies and is reserved for the most severe cases.

      Sub-Forums:

      1. Bladder Augmentation & Repair,
      2. Bladder Removal,
      3. Nerve Ablation,
      4. Complex Cases, Reactions or Side Effects

      Forum Actions:

      Forum Statistics:

      • Threads: 999
      • Posts: 11,665

      Last Post:

    6. Experimental or Controversial Treatments

      (38 Viewing)

      Experimental therapies for interstitial cystitis (IC/PBS) are those currently being explored in research studies around the world. Their clinical trial results may not be available or are the result of a smaller, less credible study. We've included antibiotics in this discussion area because the role of bacteria in IC remains controversial at best. We have little conclusive evidence that IC is bacterial in nature.

      Sub-Forums:

      1. Alternative Therapies,
      2. Cyclosporine,
      3. LiRIS - The Lidocaine Pretzel,
      4. Other Treatments,
      5. Botox,
      6. Antibiotics For Interstitial Cystitis Are Controversial

      Forum Actions:

      Forum Statistics:

      • Threads: 3,003
      • Posts: 23,965

      Last Post:

  6. The IC Diet Threads / Posts  Last Post

    Discuss all things related to the IC diet here!

    1. General Diet Questions

      (20 Viewing)

      Ask questions about diet and interstitial cystitis IC/PBS here!

      Sub-Forums:

      1. Fresh Tastes by Bev,
      2. IC & Diet Books

      Forum Actions:

      Forum Statistics:

      • Threads: 5,459
      • Posts: 39,193

      Last Post:

    2. IC Diet: Recipes

      (9 Viewing)

      Share your favorite IC friendly recipes and menu ideas here!

      Sub-Forums:

      1. Breakfast & Brunch,
      2. Sandwiches, Burgers & Pizza,
      3. Sauces, Marinades & Dressings,
      4. Main Dishes,
      5. Casseroles,
      6. Vegetables & Side Dishes,
      7. Appetizers & Snacks,
      8. Salads and Soups,
      9. Breads, Muffins and Scones,
      10. Desserts,
      11. Hot Drinks,
      12. Cold Drinks,
      13. Cookies & Candy,
      14. Cocktails

      Forum Actions:

      Forum Statistics:

      • Threads: 908
      • Posts: 4,124

      Last Post:

    3. IC Diet: Menu Ideas

      Sub-Forums:

      1. Breakfast,
      2. Lunch,
      3. Dinner,
      4. Parties & Celebrations,
      5. Holidays

      Forum Actions:

      Forum Statistics:

      • Threads: 25
      • Posts: 179

      Last Post:

    4. Prelief Acid Reducer for interstitial cystitis

      (4 Viewing)

      Prelief has been used by patients for several years. How does it work? It reduces the acid content of food.

      Forum Actions:

      Forum Statistics:

      • Threads: 380
      • Posts: 2,661

      Last Post:

  7. Self-Help For Interstitial Cystitis Threads / Posts  Last Post

    1. Self-Help Tips Of The Month

      Forum Actions:

      Forum Statistics:

      • Threads: 99
      • Posts: 654

      Last Post:

    2. PMS, Perimenopause, Menopause

      (3 Viewing)

      Are you struggling with hormonal changes?? Are they bothering your bladder?? Need to vent about your body changing?? Do it here!

      Forum Actions:

      Forum Statistics:

      • Threads: 186
      • Posts: 1,305

      Last Post:

    3. Depression & Anxiety

      (3 Viewing)

      Discuss your thoughts and concerns about depression and anxiety here.

      Forum Actions:

      Forum Statistics:

      • Threads: 1,067
      • Posts: 10,856

      Last Post:

    4. Estrogen & Hormone Replacement

      (5 Viewing)

      Forum Actions:

      Forum Statistics:

      • Threads: 491
      • Posts: 3,977

      Last Post:

    5. Exercise & Fitness

      (4 Viewing)

      Forum Actions:

      Forum Statistics:

      • Threads: 414
      • Posts: 3,161

      Last Post:

  8. Managing Interstitial Cystitis Flares Threads / Posts  Last Post

    An interstitial cystitis flare is a familiar and frustrating part of life with IC. Often the result of diet or romance, flares can be reduced and eliminated with several strategies.

    1. Pain Management For Interstitial Cystitis

      (17 Viewing)

      Discuss pain management strategies here!

      Forum Actions:

      Forum Statistics:

      • Threads: 2,574
      • Posts: 22,575

      Last Post:

    2. Help! I'm in an interstitial cystitis flare!

      (23 Viewing)

      Are you in a flare? Need support? Post here!

      Forum Actions:

      Forum Statistics:

      • Threads: 3,243
      • Posts: 24,835

      Last Post:

    3. Flare Coping Strategies For Interstitial Cystitis

      (3 Viewing)

      Please share your best interstitial cystitis flare coping strategies here! This is NOT to post questions about treatments, therapies or managing flares. We JUST want to hear great techniques for handling flares!

      Forum Actions:

      Forum Statistics:

      • Threads: 620
      • Posts: 5,439

      Last Post:

  9. Related Conditions to Interstitial Cystitis Threads / Posts  Last Post

    1. IC & Other Related Conditions

      (73 Viewing)

      Research has demonstrated a clear connection between IC, IBS, vulvodynia, prostatodynia and other related conditions. Discuss them here!

      Sub-Forums:

      1. Irritable Bowel Syndrome,
      2. Pudendal Nerve Conditions,
      3. Fibromyalgia,
      4. Urethral Syndrome/Pain,
      5. Vulvodynia,
      6. Dry Eyes/Dry Mouth,
      7. Managing Yeast Infections,
      8. Other Related Conditions

      Forum Actions:

      Forum Statistics:

      • Threads: 4,037
      • Posts: 29,559

      Last Post:

  10. Pregnancy and Parenting With Interstitial Cystitis Threads / Posts  Last Post

    1. Considering Pregnancy With Interstitial Cystitis

      (8 Viewing)

      Sub-Forums:

      1. Children's Activities,
      2. I'm Pregnant!,
      3. Infertility

      Forum Actions:

      Forum Statistics:

      • Threads: 1,134
      • Posts: 9,182

      Last Post:

    2. Parenting with IC

      When a mother or wife develops IC, it can often impact how she feels about her abilities in those roles. Talk about it here!

      Forum Actions:

      Forum Statistics:

      • Threads: 477
      • Posts: 4,077

      Last Post:

  11. Health Insurance & Disability Benefits Threads / Posts  Last Post

    Are you struggling with health insurance? Don't have insurance?? Looking for drug assistance programs??

    1. Health Insurance

      Is this a can of worms or what?? Ask questions or discuss any issues you might have with your health insurance coverage

      Sub-Forums:

      1. Military Health Care,
      2. No health insurance?

      Forum Actions:

      Forum Statistics:

      • Threads: 21
      • Posts: 155

      Last Post:

    2. Resources for Low Income Patients

      Sub-Forums:

      1. Drug Assistance Programs

      Forum Actions:

      Forum Statistics:

      • Threads: 263
      • Posts: 1,577

      Last Post:

    3. Social Security Disability Q&A

      (1 Viewing)

      Are you considering applying disability insurance? In the Appeals process? Post your questions here.

      Forum Actions:

      Forum Statistics:

      • Threads: 773
      • Posts: 5,676

      Last Post:

  12. Social Life - Family, Friends, Dating Threads / Posts  Last Post

    1. Single Life and IC

      (2 Viewing)

      Sub-Forums:

      1. Dating with IC,
      2. IC Friendly Date Ideas??,
      3. Twenty Somethings,
      4. Thirty Somethings,
      5. Forties Are Fabulous,
      6. Fantastic Fifties,
      7. Savvy Sixties & Above

      Forum Actions:

      Forum Statistics:

      • Threads: 180
      • Posts: 1,434

      Last Post:

    2. Family & Friends Of Patients With Interstitial Cystitis

      (9 Viewing)

      Sub-Forums:

      1. Romance and Sex When A Partner Has Interstitial Cystitis,
      2. Relationships with partners/spouses,
      3. Talking With Family About Interstitial Cystitis,
      4. Family Members Speak Out,
      5. Vacations, Holidays and Interstitial Cystitis

      Forum Actions:

      Forum Statistics:

      • Threads: 1,296
      • Posts: 11,931

      Last Post:

  13. GREAT DEBATES Threads / Posts  Last Post

    1. What do you think causes Interstitial Cystitis?

      (2 Viewing)

      While research hasn't found one specific cause of interstitial cystitis, there are several strong opinions out there. What do you think about the cause of IC? Any ideas? Debate them here!

      Forum Actions:

      Forum Statistics:

      • Threads: 346
      • Posts: 3,403

      Last Post:

    2. Diagnosing IC/PBS - KCL Test or Hydrodistention?

      One of the long standing debates is the validity of the KCL test to diagnose IC rather than the more intensive hydrodistention. What do you think?

      Forum Actions:

      Forum Statistics:

      • Threads: 3
      • Posts: 51

      Last Post:

  14. MEET OTHERS BY REGION Threads / Posts  Last Post

    This section of the ICN Forum is dedicated to Michaeleen Franklin, the longest running IC support group leader in the USA. We honor her memory, her compassion, her wisdom and her support of patients in the Southwestern USA for more than twenty years.

    1. US States

      (2 Viewing)

      Find patients in your neck of the woods!

      Sub-Forums:

      1. Alabama,
      2. Alaska,
      3. Arizona,
      4. Arkansas,
      5. California,
      6. Colorado,
      7. Connecticut,
      8. Delaware,
      9. DC,
      10. Florida,
      11. Georgia,
      12. Hawaii,
      13. Idaho,
      14. Illinois,
      15. Indiana,
      16. Iowa,
      17. Kansas,
      18. Kentucky,
      19. Louisiana,
      20. Maine,
      21. Maryland,
      22. Massachusetts,
      23. Michigan,
      24. Minnesota,
      25. Mississippi,
      26. Missouri,
      27. Montana,
      28. Nebraska,
      29. Nevada,
      30. New Hampshire,
      31. New Jersey,
      32. New Mexico,
      33. New York,
      34. North Carolina,
      35. North Dakota,
      36. Ohio,
      37. Oklahoma,
      38. Oregon,
      39. Pennsylvania,
      40. Rhode Island,
      41. South Carolina,
      42. South Dakota,
      43. Tennessee,
      44. Texas,
      45. Utah,
      46. Vermont,
      47. Virginia,
      48. Washington,
      49. West Virginia,
      50. Wisconsin,
      51. Wyoming,
      52. Northeastern States,
      53. Southeastern States,
      54. Plains (Central) States,
      55. USA - Southwestern States,
      56. USA - California & Hawaii,
      57. USA - Northwestern States,
      58. USA - Midwest/Rocky Mountain States

      Forum Actions:

      Forum Statistics:

      • Threads: 1,999
      • Posts: 9,799

      Last Post:

    2. Interstitial Cystitis Support Group List - USA & Canada

      Click here to view our database of support groups and medical care providers.

    3. Canada Chat

      (2 Viewing)

      Meet others from Canada Here!

      Sub-Forums:

      1. Alberta,
      2. British Columbia,
      3. Manitoba,
      4. New Brunswick,
      5. Newfoundland,
      6. Northwest Territories,
      7. Nova Scotia,
      8. Nunavut,
      9. Ontario,
      10. Prince Edward Island,
      11. Quebec,
      12. Saskatchewan,
      13. Yukon

      Forum Actions:

      Forum Statistics:

      • Threads: 178
      • Posts: 1,257

      Last Post:

  15. SPIRITUALITY, FAITH & POSITIVITY Threads / Posts  Last Post

    1. Prayer Requests

      Forum Actions:

      Forum Statistics:

      • Threads: 1,369
      • Posts: 19,585

      Last Post:

    2. Deb's Gratitude Journal

      Dedicated to the memory of AuntieDebbieF, this board is a place your gratitudes. Please let your story cheer others!

      Forum Actions:

      Forum Statistics:

      • Threads: 758
      • Posts: 6,678

      Last Post:

    3. The Happiness Corner

      For those times when you just need to surround yourself with happiness, these posts will help. Please share any videos, blogs, poems that you think will lift peoples spirits!

      Forum Actions:

      Forum Statistics:

      • Threads: 125
      • Posts: 1,223

      Last Post:

    4. Inspirational Words

      The healing power of words is undeniable. Please share your favorite poems and words of encouragement here!

      Forum Actions:

      Forum Statistics:

      • Threads: 3
      • Posts: 5

      Last Post:

  16. MISC. Threads / Posts  Last Post

    1. Career Concerns & IC

      (1 Viewing)

      Forum Actions:

      Forum Statistics:

      • Threads: 240
      • Posts: 1,892

      Last Post:

    2. Arts, Crafting & Hobbies

      Forum Actions:

      Forum Statistics:

      • Threads: 149
      • Posts: 7,137

      Last Post:

    3. Bathroom Humor

      (1 Viewing)

      Laughter is the best medicine! Help us laugh today. Share your funniest jokes and stories here!

      Forum Actions:

      Forum Statistics:

      • Threads: 673
      • Posts: 4,501

      Last Post:

    4. Daily Chatter/Off Topic/Life outside IC

      (2 Viewing)

      Because IC is only a part of our lives.

      Forum Actions:

      Forum Statistics:

      • Threads: 2,000
      • Posts: 19,208

      Last Post:

    5. Books & Magazines

      A place to discuss an interesting book .... or share information about articles you've seen in recent magazines.

      Forum Actions:

      Forum Statistics:

      • Threads: 123
      • Posts: 808

      Last Post:

    6. Pets Welcome

      (2 Viewing)

      A "Spot" for sharing pet "tails"

      Forum Actions:

      Forum Statistics:

      • Threads: 534
      • Posts: 5,306

      Last Post:

  17. BOARD MGT. Threads / Posts  Last Post

    1. Tech Support : Help! I have a question!

      For Questions About BBS Management & TOS Inquiries

      Forum Actions:

      Forum Statistics:

      • Threads: 182
      • Posts: 913

      Last Post:

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ICN Support Forum - Interstitial Cystitis, Overactive Bladder, Pelvic Floor Dysfunction StatisticsICN Support Forum - Interstitial Cystitis, Overactive Bladder, Pelvic Floor Dysfunction Statistics

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