Elmiron and hair loss???

[indiana]

I read a thread where someone was scared to take Elmiron because of hair loss, Alopecia. When I asked my doctor what the side effects of this drug were she didn't mention this.

Has anyone experienced hair loss with the use of Elmiron? I already have a hair thinning condition and can't afford to lose more.

Any input will be helpful......

by the way, my second night on meds and I only got up once to go pee!! :woohoo:

[vm]

It is only supposed to occur in 3-4% of patients. I haven't had any.

Way to go on a more rested night!!!!!! :)

[sparklebabyprincess]

To my understanding hair loss does not happen to often. And it is supposed to reverse if you stop taking the pills. So it is always worth a try just in case the pills help and you do not get the hair loss side effect. :)

[stillprayin']

I was just diagnosed last thursday. Started elmiron knowing hairloss maybe a side effect. I feel so terrible at this time I would be okay with the hairloss if I could feel better. I am sick from work again today worried I'll loose my job. It is such a small percentage(hair loss) I figure I'll give it a try. I hope it works for you, I know as a woman loosing hair is a scary thought but my dr did tell me it will grow back if you stop the meds. good luck.

[Sarojini]

Laura --- :welcome: to the ICN. :) I saw this post and your other one in another thread and wanted to welcome you. The hair loss issue is a bit concerning with Elmiron, but keep in mind that it only happens to about 3-4% of those who take it. I have been on it just over 6 months and have not experienced any hair loss whatsoever. In fact, I have hardly any side effects -- during the first week I was on it I had a little upset stomach, but that went away... and now that my dosage was increased I notice a slight increase in bruising, but not enough to concern my doctor.

I'm glad you got a diagnosis -- now no one can ever tell you this is in your head again!!! :)

Please keep posting -- there are a LOT of supportive, loving people (both men and women) here, and it is a wonderful place for support and information. Have you checked out our Patient Handbook at http://www.ic-network.com/handbook yet? :)