View Full Version : advice
09-01-2004, 09:29 AM
hey everyone, my husband and i have been going back and fourth for two years on whether to have a baby or not. iVe been through a lot in the last couple years stress wise, and finding out i have fibro, and ic. we both have had our concerns on how i might tolerate a pregnancy considering i dont feel good a lot of the times. Ive asked my regular doc and an ob and they have both said im ok to get pregnant. so we have started trying and now that its here im kinda worried now. we want this more then anything but im just worried about how im gonna handle all this when i get pregnant. I dont take meds except prelief and my bladder is doing better these days and so is my fibro.
On another note i was suppose to go in and have a biopsy done in oct. after my vacation and thats only because i told the doc i wanted to just get it out of the way because he said he wanted to do one in the future. so he has diag me with ic based on sx and a cytoscope i think thats what it was anyways i was more afraid that maybe it was something worse like cancer so i asked him to do this biopsy and well hes been so horrible to me that i have a second uro im seeing in a week and will ask her when we should do the biopsy i guess i dont know if i should wait on the preg until i get this biopsy out of the way or get preg and wait on the biopsy? well gotta go for now thanks everyone
09-01-2004, 10:41 AM
Why do you think it may be worse like Cancer? Personally I never had a biopsy of my bladder and even though it was the worse pain I had ever been in (I was very close to passing out a few times because of pain) I don't believe I had cancer ...and still don't. Non the less I don't think it is a good idea to have a baby untill you are sure you are ready....so if this is something your heart needs to know....than you should do it for you! You and your husband need to make this decision...I hope you get the answers you need. Good luck when you do try to get pregnant!!!!!
09-14-2004, 04:09 PM
I had the biopsy done at the same time that I had a cystoscopy and hydrodistension. The next three weeks after that surgery was the worst pain that I ever felt in my life. It was a horrible experience. I every time I went to the bathroom, I felt like shards of glass were coming out of my bladder and through my urethra. That is the exact perfect way to describe it.
At the time of my test (April 2003), I had been told by my doctor that the best way to diagnose IC was to rule out every other possible illness, which included a rule-out for cancer which could only be done by biopsy. I was never told that the biopsy had any other purpose other than to test for cancer. Because of my zealousness, I asked him to give me the works and perform every test possible -cystoscopy, hydrodistension, and biopsy. I also wanted to have all three done because I hoped that the cystoscopy and hydrodistension would send me into remission. After three weeks of hell, I did go into remisision - for less than 2 days.
Afterwards, I learned that bladder cancer is an extremely rare condition, and that my chances of actually having bladder cancer were extraordinary slim. I wish I had known that before I went through all the pain I did. I don't know which of the three caused me all that pain, or which combination. But I can tell you that I would never put myself through that again.
Why don't you ask your doctor if this test is truly necessary - be sure to ask what the statistics are for the possibility of you actually having bladder cancer while you're there. Get all the information, so that you can make an educated decision. Don't put yourself through hell if you don't have to.
09-14-2004, 04:45 PM
i had a biopsy in june 2002 on my bladder when dx with IC and one yesterday when they removed my hunners and yes its has been painful for me but we are all diff.
I pray its nothing wrong like cancer i know how that can worry you it did me too the first time.
I believe everything will be go well for you and you will be a good mother God will help you threw this and help you with the energy to help you raise the baby to be.
wishing you well and please keep us updated on your plans.
09-15-2004, 12:10 AM
I had biopsies taken when I had my first hydrodistention back in 1975. To me it was extremely important because my father had symptoms identical to mine with his bladder cancer. It was a real relief to me to have it ruled out.
These are decisions each of us must make. If you have concerns about the possibility of cancer, I do think having biopsies is a good idea.
I am one who has significant relief from hydrodistentions, but I read that only about 50% of IC patients benefit.
Warm encouraging hugs,
09-15-2004, 06:06 AM
This is a question that only you and your husband can answer but if it were me I would want to know that I am okay and healthy enough to become pregnant and carry the baby to term so in the end the baby can be healthy. Best of luck.
09-16-2004, 12:20 AM
This is a big decision!!!!!! One I wish I had know the pro's and con's of in adcance. Don't get me wrong I am thrilled with my new baby, but would have loved to have heard some bad on IC and pregnancy. I looked so forward to going into remission and instead it turned on me and was worse then ever, I had to have cervical biopsies twice during my pregnancy, I can't imagine bladder ones. Pregnancy and IC are a terrible mix if you don't get lucky and go into remission. In the end the outcome was a beautiful little baby that I love more then life itself, but I am not sure he would be hear if I had know how terrible the 2 could be together.
09-16-2004, 03:39 AM
HUGS Leslie, I personally know what a hellish pregency you had, I sure worried about you every day.. knowing what a horrible time you had during your pregnancy, makes me think twice.... I was supposed to have had a tubal (cut and carterized) recently found out that what ever my old gyn it wasn't a tubal... so now I pray I don't become pregnant.
I had a biopsy with my hydro/cysto, this year, and it was the most painful experience..... I peed blodd for 4 days and don't think I have ever stopped flareing since it was done.. Then there are some that its the best treatment for them.. Don't worry about cancer its very very rare....
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