View Full Version : What can I do?? This is all new for me
09-01-2004, 04:04 AM
I went to another dr. today to get a second opinion. I have been in pretty severe bladder pain for a month now. I called my old urologist and he didn't even want to see me he just wanted me to take a cat scan to see if I have kidney stones. Hello, I have IC not kidney stones! So I saw a new one today. He didn't do any kind of exam, just felt my belly a bit and then told me to wait a month and keep taking the ditropan and that it was supposed to help with pain. Then he wanted me after the month to come in for another cystoscopy. I don't get it, I just had one done 2 months ago, why should I have to wait a whole month in pain?? I'm not a drug addict for gods sake I still have the 15 vicodin left from the 20 the last dr. gave me that isn't working. They don't work, if I take more than 2 I immediately vomit. Ugh, I'm just so frustrating, why do I keep finding dr.'s that don't want to take a proactive stance on anything, they ALL say, well wait a month and come back. What's up with that? Do you have any advice, what can I do, is there any IC specialists list somewhere I can look at? Should I go to my primary dr., he's a very caring guy but I don't know if he can help with this. I even told the guy straight up that I didn't want a narcotic, aren't there other options like doing instillations or something that you can do when someone with IC is having a flare?? Sorry so long, thanks for listening.
09-01-2004, 07:59 AM
Mindy, sorry to hear about the dr trouble issue. I agree with Dianne I don't think Dr.'s are very knowledgeable when it comes to IC. I went through 4 Dr's before I finally got sent to a specilalist. She (the dr.) said that on average it takes people 7years to get a correct diagnosis with IC. That is pretty sad. Keep your faith and continue to see different Dr.s until you are happy with the results. Just because they are a Dr. doesn't mean they know everything. You know how you are feeling they don't! Good luck
09-01-2004, 11:31 AM
I was diagnosed with IC under general anesthesia when my dr. did a cystoscopy right before he excised my endo so I know that is what I have. How do I get a list of the dr.'s through the icnetwork?
09-01-2004, 11:32 AM
I live in Milwaukee currently.
09-01-2004, 11:35 AM
Look on the ICN main page link for healthcare providers:
Welcome and good luck to you!
09-01-2004, 11:54 AM
:welcome: :welcome: Welcome to ICN!!! Sounds like we need to find you a good doc....in the meantime I have some ideas for your pain treatment
http://www.ic-network.com/forum/showthread.php?t=7562 this link is a pain managment post. The second page has 4 attachments...the last one is a list of ideas for IC pain.....take a look if pain is problem for you.
I may be able to set you up with contact person in Milwaukee that has IC....can't gaurantee that her doctor will be better but maybe you can help each other. Let me know ok?
Powered by vBulletin® Version 4.2.0 Copyright © 2013 vBulletin Solutions, Inc. All rights reserved.