Two IC patients need your support & encouragement

[icnmgrjill]

Hi Folks,

I would really appreciate it if you could send some encouraging and hopeful words to SueC and Louise. Both are struggling right now and can use any encouragement you can offer. Please keep them in your prayers, send them lots of healing wishes and hope for a better tomorrow!

This is one of those times when I get very sad because I can't, personally, make it better.

Jill

[HillaryD]

:pray: :grouphug:

[dyno]

:smile fai Hugs and prayers to both of you. Hang in there, tomorrow will hopefully better. :grouphug:

[kelly McC]

sending my prayers :angel: :angel:
huggs,
Kelly

[Annie2]

Lots of caring, tender :grouphug: to both of you. Please know that my prayers and thoughts are with you.

Annie

[blondiecat]

:pray: Send lots of good vibes to you both :grouphug:

[jaime15]

Hugs and prayers for the both of them........wish I could do more to make them better too. :angel:

[ICNDonna]

Warm hugs and prayers are on their way to both of you, SueC and Louise. I hope your tomorrow will be better.

Sending healing thoughts,
Donna

[July]

Hang in there you two! We are here for you anytime.

Prayers,
July

[jen_dahling]

Hang in there, girls! Well wishes are on the way.

[Iris]

Hugs, and warm thoughts, you both are in my prayers. Support and love coming your way, Iris. :hi: :kiss: :pray: :grouphug: :flower:

[arcticfox]

:grouphug: :pray: :pray: :grouphug:

My thoughts and prayers are with you both as you go thru this trying time.
Hang in their girls and now that we are all 100% behind you in getting well.

Lynn :) :angel:

[donutgirl]

:pray: :pray: :pray: :pray: :pray:

Lots of prayers coming your way ladies....please know that we care and understand.

DIANE

[Katrina]

Sue has been having such a ruff time....in pain with no diagnosis....she has my prayers and I have been posting and asking for prayers for her...Thank you Jill for doing so too....she needs them soooooo much. :love:

Louise has been in such a ruff time for so so so so long it saddens my heart...and I have been praying for her.... :love:

Many prayers for my two friends. :pray: :pray: :pray:

[Sarojini]

Sending lots of :grouphug:s!!! I hope you both feel better soon.. hang in there. :)

[SharonA]

:grouphug: :kissing: :pray: for the both of you.

[Deb1130]

Thoughts and prayers with them. Hang in!

[tillysav]

Hugs :grouphug: and prayers :pray: for SueC and Louise.

Hope you feel better soon! :smile fai

[theclownster]

I just wanted to send my warm thoughts - may you both feel better soon!
I'll be keeping you both in my thoughts and prayers.
Jennifer

[khatinger]

This is my first post, I hope you both have better days ahead.

Kelly

[curlycue]

I am sending my thoughts and prayers out to you ladies SueC and Louise.

[gwynnie]

i will be keeping them in my prayers..

[louise]

Hi,

I have been away from the message board for a few days due to feeling very depressed and devastated after my appointment with the Pain Clinic.
I know I posted elsewhere about my visit and I was so hopeful that they would have something to offer me in the way of treating my intractable chronic pain as a disease as well as IC and chronic pelvic pain with a little severe osteoporosis, fibro, etc. thrown in. I don't mean to sound as if I am feeling sorry for myself because I know lots of you are feeling just as bad and as miserable as I am.

So when I came across Jill's posts about two of us out of the hundreds that are really suffering with this horrific disease, I could hardly believe my eyes.
Not that I should be surprised at all because I know Jill and others on this board are so understanding and compassionate about other people's pain and do so much to try and relieve everyone else's suffering while they live with their own pain demons.

Then to add to my state of mind at present, my GP's office called a few days ago to tell me that I have a UTI with E Coli. Some of you with very good memories may remember me when two years ago I developed a very nasty dose of C.Difficile and was hospitalized for ten days and it took me eight months to eradicate this terrible bacteria. I was on Vancomycin for almost the whole time which is not a pleasant antibiotic to be on. After I finally beat that "critter", I was told by all of my doctors that I could only take antibiotics for a severe infection. So now I am on Cipro for two weeks to treat the UTI and do you think I am concerned about getting C.Difficile again? You can bet your boots I am!! So I really believe Jill's call for help was not a coincidence and I can't thank her enough for bringing all these wonderful and kind posts for both of us who have for some reason been singled out (or is that doubled out?!) for extra prayers and kind words.

I have also been feeling melancholy because in about 18 days my only daughter will be married in Maui and her Mother and Father will not be present due to this miserable bladder and pelvic pain. For most of us, riding in a car and flying in a plane spell disaster in the form of excruciating pain.
And I am one of those so my daughter has been very understanding and compassionate about my situation and has told me to not spend one minute feeling guilty about not being able to get this decrepit (sp?) body to Maui to see her get married. I am just happy for her as she is marrying the most kind, gentle, understanding guy any of us would hope our daughters would find. Recently, he phoned me and totally made my day by saying that if I did go through the agony of travelling to Maui and then was in so much pain that I was not able to make the wedding that would be even more stressful for me. That is my future son-in-law speaking. I think he is wonderful and has allayed most of the guilt I do feel because I won't see my daughter and her great fiance become Man and Wife.

So, many, many thanks to all of you who left a kind word or a kind thought for us. Jill, you have no idea how much your thoughtfulness means to me!
As I am sitting here, I have tears rolling down my face - not tears of sadness or pain or misery but tears of happiness and joy due to the generous support of a lot of wonderful people.

SINCERE THANKS!!

Louise

[louise]

Hi Sue,

I just wanted to say I hope all of these kind words, thoughts and prayers will help you to feel better as well. I will be thinking of you and wishing you better days to come.

Take time to be kind to yourself - you deserve it!!!

SINCERELY,

Louise

[curlycue]

I will continue to keep you in my thoughts and prayers.

[theclownster]

Hi Louise! I just want to commend you for your compassion and heartfelt thoughts you have given us, when you yourself are in incruciating pain. I can not imagine what it must be like for you. I just had a very wacky day and was getting ready to vent - and now I just feel very lucky - but also sad that there are people who have to go through everything you go through. Thanks for your encouragement. You are a gift to the rest of us. I feel really sad you won't get to see your daughter get married. I had an idea when I read your post. I have heard of people who have watched weddings through a live feed to the internet. Is this somehow possible in your situation? Just a thought. Reading your post, I wished I was gifted with computers, cause I would find a way to make that happen. It was just a thought that maybe would be worth checking into. I know it's probably a long shot, but I thought I'd mention it.

I will continue to keep you in my thoughts and prayers.
Take Care!!
Jennifer

[blue]

Sending Prayers!

[RedLione]

Louise, these two kids will have you in their lives as they start their future together, and there will be future "big events" when you will all be together. They'll lean on your wisdom and your compassion throughout their lives, and won't remember for a second that you weren't there "that day." The love you all have for each other makes you a single unit, and they're very blessed to have you. I'm sending strength and healing your way.

[tigger_gal]

sending you lots of well wishes and hugs.....
Brat

[louise]

Hi,

Thanks for the many wonderful posts of support and encouragement. They mean a lot to me.

Regarding my daughter's wedding in Maui, I did want to add (so it is not all doom and gloom!!) that when the newlyweds return from their honeymoon her family plans to have a small get together so we can see the bride and groom dressed up in their wedding attire. Then we can take pictures and have a dinner celebration in their honour. So that is something for me and my family to look forward to as I am sure my daughter and her husband will also be looking forward to.

Sincere thanks for the overwhelming outpouring of friendship and love.
Over the years of dealing with IC, I have found that meeting and making new friends has been the one wonderful outcome that I can attribute to the diagnosis of this miserable disease. The encouragment and compassion I have felt here in the past couple of days (in particular) have been so heart warming and uplifting for me. As you know living with IC is difficult enough but having a UTI as well is just plain mean! Like a lot of you, I often ask myself what did I do to deserve having to live with this terrible disease and poor quality of life.

As the saying goes, "misery loves company", and while I wouldn't wish any of this misery on anyone, I have a good friend who is also suffering with a severe UTI as well as IC, so please also say a prayer for her and anyone else who is in this same difficult dilemma.

Sincere thanks,

LOUISE

[shirley47]

Just hang in there,Everyone here knows what you"re going through,
My prayers are with you!

[Angela boyer]

My thoughts are with you both . Big Hugs to you hope you feel better soon.

[shirley47]

Thanks for the support!