View Full Version : Newley Diagonised with IC
08-29-2004, 11:04 AM
Hi! I found out a few months back that I have IC. For years I was being told that I had an overactive bladder. Finally, I had enough and saw a urologist, then I finally found out that I have IC.
It has been very hard for me to cut out food and beverages. Does anyone have any suggestions or helpful hints to help me? Please feel free to send them to me.
Also, has anyone with IC ever travel to China? We will be traveling to China the first of 2005 to adopt a child. And I am not looking forward to the long flight and the squatty potties in China and the long bus trips from one place to another in China. I just know that I will get someplace and have to go and be stuck without a place to go. Any suggestions?
08-29-2004, 01:03 PM
Please go to memebers list and read my posts (there are only 4). I had sufferd with IC a couple of years ago. It all started with using bladder control pads. If you use them stop. Treat your gential area gently, gentle soap, only use unscented sanitary napkins for any leakage. Unscented everything.
Remember antihistamines dry out all mucous membranes. Check all medications for side effects. Watch what you are putting in or near this area.
I haven't posted for a long time because I haven't been having any problems.
I hope you feel better soon. I know I was in agony for a couple of months til I figured out what was causing my pain.
08-29-2004, 01:25 PM
:welcome: Glad you found us. This is a very helpful site. I'm in a lot of pain right now myself and not thinking very clearly, but I know one of the other ladies will come along shortly and post the link for the handbook, etc.
I just wanted to say how wonderful that you will be traveling to China to bring home a special bundle of love! :kissing:
08-29-2004, 02:21 PM
:welcome: to the ICN!! I'm glad you found us. I'm so sorry you have IC, but this is the best place to come for support and information.
Our Patient Handbook is located at http://www.ic-network.com/handbook. This handbook contains all kinds of helpful tips for dealing with IC -- it has information on diagnosis and treatment options, a ton of self-help tips, and a lot more.
Traveling with IC can definitely be a problem; however, there are lots of things that can make it easier. The members here will come along with all kinds of tips soon -- I know there are several that have gone abroad recently and they'll be happy to help you out :)
Again, welcome :)
08-29-2004, 04:00 PM
First of all, I'd like to say :welcome: to the IC Network. I know you'll find a lot of information and support here.
I do have a suggestion for travel where there might not be adequate toilet facilities. If you go to http://www.ic-network.com/shop you'll find information about ordering Travel Johns. They are small enough to carry some in your purse. They have a plastic top that is designed to fit the female anatomy and a folded plastic bag to catch urine. The bag has a moisture absorbant so the urine doesn't slosh around in it. Basically, it's kind of like a urinal for women --- all you need is a bit of privacy to use it.
I think it's wonderful that you will be bringing home a little angel.
08-29-2004, 04:44 PM
I was going to recommend the travel potty, too. In the toilet paper isle you can now get little portable rolls of TP, about 50 sheets a roll. Also, there are travel packs of toilet seat covers. I carry the rolls in my purse in case of emergencies. You know, when you have to go REAL bad and what a surprise, NO TOILET PAPER. :rolleyes: Good luck on your trip! My best friend is looking into adoption overseas, too. :smile fai
One of my good friends will be traveling from Nashville to China at the end of this year or beginning of next to adopt her daughter. Good luck with the adoption! That is awesome. :)
08-30-2004, 12:53 PM
:welcome: :welcome: :welcome: :welcome: :welcome:
Best of luck on your trip...let us know how it goes! :grouphug: :grouphug:
http://www.ic-network.com/forum/showthread.php?t=7562 this link is a pain managment post. The second page has 4 attachments...the last one is a list of ideas for IC pain.....take a look if pain is problem for you.
08-30-2004, 09:42 PM
Hi, welcome :hi:
For the plane trip a good idea would be to bring a foam pillow with you or ask for a pillow when you're on the plane to sit on, although I find foam works the best. Of course this may not help everyone but I find that it helps with the vibrations when I'm in the car.
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