XkaraX
08-29-2004, 07:30 AM
Hi, my name is kara, i'm 24 years old.
I have had IC pretty much my whole life. (the only thing where i can even think i got it from was when i was 2 i had cellulitis throughout the tissues in my whole body) although i wasn't diagnosed until i had a cystoscopy with hydrodistention this past january...which made my symptoms 5 million times worse than they already were.
i would have very random flare ups in my teenage years but had no idea what they were and never brought them up to anyone. the couple of times i complained to the doctors about my symptoms, i was diagnosed with a gastric ulcer and ovarian cysts.
everytime i would give a urine sample they would always tell me i had white blood cells in my urine but since i didn't have any uti symptoms to just keep an eye on it. last july they started putting me on antibiotics for them, so i was medicated to death. i had an emergency abdominal CAT scan and they told me i just had more ovarian cysts that had popped. so i went on birth control pills and it actually helped a lot with the symptoms. i went to the gyno where they told me i had a PID and gave me more antibiotics. the uti symptoms with come back every couple of weeks, until finally my doctor had me make an appointment with a urologist. who i saw and who gave me more antibiotics, 2 days later i called again and saw him right away, he told me i most likely have a condition called interstitial cystitis and prescribed me elavin and an antihistamine. both made me EXTREMELY tired and i had a very difficult time fuctioning since i felt like i was in la-la land for the 2 months i took them. i had my cystoscopy with hydrodistention and the extreme pain after the procedure never went away, when supposedly it's supposed to after a few weeks? i was then put on elmiron and have been on it for a lil over 6 months and am doing great on it. i take 2 pills in the morning and 2 at nite. i still have an occasional flare that is usually related to my period, but it is better than living every day in a flare like i used to.
also the first month i was on elmiron i got instillations with some sort of a cocktail. they really helped a lot, it was great not to be able to "feel" my bladder for a few hours after i would get it done!
i currently don't have health insurance which sucks, i have a month left of my elmiron so i am hoping my application for the patient assistance program goes through by then!
no one in my family knows i have IC because i don't want them feeling sorry for me...plus my mother has a tendency of being a hypochondriac and thinking she has everything everyone else does...which is pretty annoying if you have chronic pain and are trying to live a normal life. :rolleyes:
xoxox
I have had IC pretty much my whole life. (the only thing where i can even think i got it from was when i was 2 i had cellulitis throughout the tissues in my whole body) although i wasn't diagnosed until i had a cystoscopy with hydrodistention this past january...which made my symptoms 5 million times worse than they already were.
i would have very random flare ups in my teenage years but had no idea what they were and never brought them up to anyone. the couple of times i complained to the doctors about my symptoms, i was diagnosed with a gastric ulcer and ovarian cysts.
everytime i would give a urine sample they would always tell me i had white blood cells in my urine but since i didn't have any uti symptoms to just keep an eye on it. last july they started putting me on antibiotics for them, so i was medicated to death. i had an emergency abdominal CAT scan and they told me i just had more ovarian cysts that had popped. so i went on birth control pills and it actually helped a lot with the symptoms. i went to the gyno where they told me i had a PID and gave me more antibiotics. the uti symptoms with come back every couple of weeks, until finally my doctor had me make an appointment with a urologist. who i saw and who gave me more antibiotics, 2 days later i called again and saw him right away, he told me i most likely have a condition called interstitial cystitis and prescribed me elavin and an antihistamine. both made me EXTREMELY tired and i had a very difficult time fuctioning since i felt like i was in la-la land for the 2 months i took them. i had my cystoscopy with hydrodistention and the extreme pain after the procedure never went away, when supposedly it's supposed to after a few weeks? i was then put on elmiron and have been on it for a lil over 6 months and am doing great on it. i take 2 pills in the morning and 2 at nite. i still have an occasional flare that is usually related to my period, but it is better than living every day in a flare like i used to.
also the first month i was on elmiron i got instillations with some sort of a cocktail. they really helped a lot, it was great not to be able to "feel" my bladder for a few hours after i would get it done!
i currently don't have health insurance which sucks, i have a month left of my elmiron so i am hoping my application for the patient assistance program goes through by then!
no one in my family knows i have IC because i don't want them feeling sorry for me...plus my mother has a tendency of being a hypochondriac and thinking she has everything everyone else does...which is pretty annoying if you have chronic pain and are trying to live a normal life. :rolleyes:
xoxox