in pain 24/7

[alana rose]

Maybe someone could shed some light on this for me. I have had ic for over three years now. At first, I would have to take pain meds 3-4 times a week. Over the course of time it is getting worse. I take pain meds 4 times a day. I watch my diet very closely-I just don't understand why it has gotten this terrible. I am so limited in my activities now. It has been at this pain level since november 2003. The doctors have tried every treatment and medication available. The only med that works is demerol. I am very lucky that I have a doctor that believes that I need a life and does not hesitate to give me a prescription. She always says 'you take your pain meds to have a life, not to escape from your life.' But why is the pain there, and this bad 24/7? I have no idea what it is like to wake up and not be in pain.
alana

[JudyS]

I think that there are several reasons for that....some of what is happening is that the pain signal is becoming "hardwired"; the longer it continues, the less stimuli it actually needs to be sent. That's why it's so important to begin pain management as soon as possible. I suffered with my pain for more than 15 years before I was diagnosed and finally got some help with my pain and by that time, the pain was very stubborn. I would get response from the meds for a while, but eventually the pain would get stronger. Another major factor is that the body becomes tolerant of the medication and it loses its effectiveness at the initial dose.

That's why I was so grateful for my motorcycle....the vibration seems to interrupt the signal while I'm riding, and my pain doesn't worsen, even with the sitting. I wish I could find a way to replicate the effects for those who don't have the ability to ride....my husband suggests sitting on a vibrating massage cushion, but I don't think that I can get the same focused vibration that way....but maybe something similar.....

[vm]

I have no answers for you, but lots of hugs and positive vibes coming your way, hon. :kissing:

[RedLione]

Alana, it might be one of your meds. I've been bad off and on and finally figured out that antidepressants irritate the snot out of my bladder! When I don't take them, my bladder's pretty good. Of course, I'm a basket case and can't sleep, but what the heck! It's a constant trade. When I get tired of not sleeping, I go back on them and then back on the Elmiron. When I get tired of peeing, I go off the antidepressants again. It's a circle. Hope you find what works for you.