View Full Version : Flare With No End
08-16-2004, 06:33 PM
I have about had it with my most recent flare. I am trying to be upbeat and motivated but my body is shot. I can't sleep because of the pain, and once I do fall asleep I usually wake up writhing in the morning. The pain after I void along with the spasms are horrible. I follow the diet, drink tons of water, take my meds like a good girl...what else can I do? I've also tried warm baths and showers and nothing is helping. I have a very high tolerance for pain but this is a bummer. I feel like a whiner too. Well, let me give the sleep thing a try. Thanks for listening.
Babs, I hope you are feeling better soon. I know this diease just sucks. It's hard to keep up with the smiles, and pretending everything is ok. I do the same thing.
I wish you well!
08-17-2004, 01:25 AM
Barb... :grouphug: :grouphug: I'm so sorry. I hope you were able to get some sleep last night. I know about the writhing in pain in the morning... I only got up to pee once last night, but it's a double-edged sword-- I got some quality sleep, but because my bladder was "fuller" than normal, by morning I was in agony, and that only got worse the second I voided. I'm okay now that I took my morning meds, but geeze. Yuck. This disease stinks. :mad:
08-17-2004, 02:47 AM
Barb, you are not a whiner. Hope you get some relief soon--and sleep too!
08-17-2004, 04:30 AM
You are so far from a whiner, but when we feel this bad I understand. If you need to talk I am at my parents still. I pm'd you their # last week, did you get it. We will be here until thurs.
I am so sorry you are in so much pain, I can so relate to you....
Just wanted to add my sorry your having a hard time. Any chance your Dr. could try anything different to see if it could help? Hope you are doing better soon. :smile fai
08-17-2004, 06:38 AM
"pain after you void" could be a bladder infection. Get a culture to be sure.
08-17-2004, 06:53 AM
Hon i'm so sorry I know how bad theses flares suck :yikes: I'm in awful pain right now my self looks like we could get a break somewhere doesnt it.
i'm sure you have already checked for an infection but to be on the safe side i would check again.
Donna i believe said this a while back and i found it to be very true.
you can go into the doctor office one min. and not have an infection at all but still hurt from it wait a few hours later I ended up in the er from so much pain and told them no way did i have an infection i was just checked a few hours ago and my doctor changed my pain medicine for there report to come back that i have a full blown infection.
So she was very much Right.
if there is anything i can do for you please let me know
sending a lot of prayers up to heaven for you to feel better.
08-17-2004, 07:27 AM
Oh, sweetie, I'm so sorry (((HUGS))) I'd give anything if I knew a way to make your pain go away and get you a good night's sleep.
I hope and pray so much you get relief soon. You are not a whiner, you are a very strong, caring person!
I also wonder if it could be an infection hanging on.
You know, I gave a urine sample at my appointment yesterday, sent it to the lab, and I used a cath to do a straight cath of it because I have a problem doing a clean catch. Basically my bladder only holds a bit of urine at a time, hardly enough for a sample, and plus my stream is so weak and intermittent that it flows all over my lower regions before it falls into the cup. So what I have to do, to get even a few tablespoons of urine, is smash the cup up against my whole lower region there and hope for the best. Naturally that gets germs in it and cells from my tissues. So they ignore the germs because they figure, it's from the cells.
Only this time, she let me have a catheter so I could get a much cleaner catch, and now she just called me a few minutes ago to tell me, I have a UTI.
Impossible for me to tell, heck I feel the same all the time whether or not I have a UTI, you know? But anyway she called in some antibiotics which I will go pick up first thing tomorrow morning, some Ciprofloxacin. (She asked what was the best antibiotic for me, isn't that nice? So I told her the one that seems to make my bladder feel best.) What a wonderful doctor she is, this gynecologist!
And I told her about how the cream (estrogen cream) was so soothing, how it made my vulva area feel much better and also my urethra. It cut my pain in half just from that alone. I can still tell the bladder is riled up some, it didn't cure that 100%, but the pain cessation of the urethra and vulva alone means I am much more comfy than I was!
I am hoping your case too is a UTI. Isn't that weird, how us IC'ers always hope, when we are in pain, it's a UTI? But that is because, if it's a UTI, it can be fixed.
08-17-2004, 07:56 AM
Hope you got some sleep and are feeling better today!!!
08-17-2004, 08:33 AM
You are not alone.I have been in a horrible flare for about a week and a half. Nothing seems to help.I hope you get to feeling better soon.
:kiss: TexasHoney :kiss:
08-17-2004, 09:46 AM
I thought I was in a major flare last week-- I even posted on the boards about it. It felt like a UTI, the first culture that was sent out came back negative. I was convinced and went to the Dr. that same day and Insisted on another urine culture. This one came back POSITIVE! I actually do have a UTI.. the office called today to confirm. I would double check. Good luck to you. liz
08-17-2004, 12:58 PM
I hope this flare ends soon for you! Hope your able to get some sort of rest... Take care of yourself,
08-17-2004, 02:15 PM
Well, I spent hours trying to get ahold of my doc with the beeper number he gave me. No response. I tried to leave a message with the central computer area and they closed early. I'm on Tequin for the UTI they diagnosed during the ER visit from hell, and I don't think it's helping. I still have the fever, night sweats, and severe nausea. I'm afraid to go back to the ER. If I don't go tonight, I am hunting my doctor in person tomorrow. Thanks for everyone's kind responses.
Hugs and a pain free night to all,
08-17-2004, 02:27 PM
Oh Man! I am so sorry you are going through this. Wish there was something you had now to help out. Try and rest the best that you can. Good luck barb. Feel better soon. :rolleyes: Like that really helps. Sorry.
08-18-2004, 10:12 AM
Just wanted to update everyone. I got ahold of my doc this morning(turns out he has a temporary beeper right now and that's why I couldn't reach him. He is going to light a fire under someone to get the consult pushed through. He told me to stay on the Tequin and gave some different meds to try. I just don't want to have to go to the ER here EVER. So some positives there...my husband is acting like a poo-poo head again. Yelled at me for being on the boards and that the people that I communicate with are crazy, depressed and we feed each others pain. Unbelievable, I thought we had made so much progress. He told me he resented me for being sick too. Hope everyone is doing ok.
08-18-2004, 11:25 AM
Barb, that's horrible. I can't believe Old Poopy-Head is being so, well, POOPY again!!!!!!!! I, too, thought you guys were doing better, and now this. :mad:
Well, I wouldn't call the people on these boards crazy... some of us are kinda depressed or dealing with anxiety sometimes (me included) but I don't call that "crazy." I would imagine that if your husband had 24 hour pain, or horrible urinary urgency all the time, he would be a bit more depressed and/or anxious than normal too!
Yikes :yikes: I'm so sorry you went through this again today.... :grouphug:
08-18-2004, 11:52 AM
Babs, you are most cetainly not!!! a whiner.I feel bad that you are having such a tough time. I hope you are feeling better really soon.
08-18-2004, 01:31 PM
Why do so many poo-poo heads make us feel "guilty" for something that is happening to us that is NOT IN OUR CONTROL! I also suffer from depression and have for about 9 years. For the most time, I feel like the meds have it "under control", but there are so many stresses in life that I know the "little pill in the bottle" can only do so much. I don't wish any of my chronic health issues on anyone. There is a big difference in depression and being "crazy".
I don't KNOW anybody here on this board, however I do KNOW that venting to others that can understand what each of us goes through is the best treatment thus far. Hope you feel better soon! Thanks to everyone for continual support and sincerity!
08-18-2004, 02:42 PM
Thanks for everyone's caring replies. Hubby is behaving himself so far today, I'll keep my fingers crossed. The new meds are starting to work some too. All in all, today was much improved over yesterday.
08-19-2004, 09:34 AM
I'm so glad you are feeling a bit better! I can't help but wish your hubby could be in your body for one day to see what you feel all the time...he'd sure be singing a different tune.
08-19-2004, 05:59 PM
I am glad to hear you are feeling better.
08-19-2004, 06:24 PM
So sorry your husband said those hurtful things. I think if my husband put down my support system at this board he would be getting a very loud earful...but that is just me. :grouphug::grouphug::grouphug::grouphug::grouphug::grouphug::grouphug:
I'm sorry you're going through so much right now. A member of my family also has lashed out at me & said the same thing about the boards. What I said back is that "the boards are where I learned the diet that cut my pain in half & allowed me to return to working. The boards are where people coached me on how to handle relatives upset by my illness & my diet during the holidays. The boards are where I go since you & so many others tell me you don't know what to do & feel helpless. No one I know outside the boards has successfully dealt with this illness. No doctor has taught me the self-help techniques for pain relief or given me the diet or taken time to listen to my feelings. I am learning there. I am better because of it. So back off." That was the last discussion on the issue.
People have no idea what we deal with between the illness itself & dealing with the medical system. And on top of that we're somehow expected to be noble & make everyone else comfortable about it while our lives may be falling apart...
Wishing you better days soon!
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