Fairly new to IC

[walleymom]

Hi everyone. Along with IC, I also suffer from Fibromyalgia (daignosed 11 years ago) and am undergoing tests to rule out diabetes, thyroid problems, etc. because I have been experiencing horrible, horrible fatigue. In the past, when I'd have a Fibro-flare, the fatigue might last a day or two. But, this has been going on for weeks. My dear husband, who is in Family Medicine, says I have all the symptoms of Chronic Fatigue Dysfunction Syndrome. Thus, the ruling out of other disorders. When I haven't been at work or trying to prepare meals for my family, I've been in bed.

I was diagnosed with IC a few months ago, underwent 6 weeks of DMSO therapy and WAS feeling better...until yesterday. I had had a few twitches of pain here and there (I'd take UTA for those), but yesterday I began to feel a soreness in my bladder that is worse with movement or if I touch my tummy. Is this the IC? The original IC pain was a sharp pain that felt as though my bladder was turning completely over. I have taken the UTA, but it doesn't seem to help this. I am really, really scared. The mind can play horrible tricks on you when you're in pain! The "C" word keeps coming to mind. Does anyone else experience the "soreness" I am describing?

I work part time at a local Quilt Shop. I love my work, but even that is becoming more difficult as pain and fatigue are taking their toll. I am so scared. Please tell me that others who suffer with IC experience the same feelings.

Thanks so much!
Donna in Alabama <><

[Babs RN]

Donna,
Welcome to the boards. You are not crazy. I was diagnosed with IC last June and have good periods and bad periods. I currently have a superimposed UTI which is making me tired, nauseated, sweaty and miserable. I have a 3 year old daughter who I try to suck it up so she doesn't see me on the couch miserable again. I am also have spasms this time like I have never had before. As far as the work thing, I am an ER RN and have had to cut back to a PRN position because I am just not reliable with those 12 hour shifts anymore. Even with all the negatives though, this board is a place to come and receive some of the most awesome support. So when you have questions, or just need to scream...we are all here for you. Everyone has their own experiences, so you can take pieces from postings and intergrate them into your own life. Take care.

Hugs,
Barb

[~*~Christine~*~]

Hi Donna, welcome to the board :hi:
I don't have the same symptoms that you have such as pain when touching the stomach but everyone is different. We do both have Fibromyalgia though.
*hugs*

[Sarojini]

:welcome: to the ICN!! :)

It's possible your soreness has to do with the IC... I know that I get a similar feeling sometimes. UTA, Urised, Pyridium, and other urinary tract analgesics like them do not help me either when I get that (the only thing those do for me is reduce urethral burning). My other pain meds help more with that soreness... as do muscle relaxants like Zanaflex, which I take for fibro/chronic myofascial pain syndrome.

I'm sorry you are suffering with all of these health problems!!

You'll find some great people on these boards, by the way... lots of support and love here!! :) Also some great information about IC. Have you read our patient handbook at http://www.ic-network.com/handbook yet? I highly recommend it if you have not.

[Dixiefireball]

:hi: and :welcome: to the icn network please check out the link about that Sarojini gave you its has a lot of helpful information there even the IC diet.
sending you hugs and prayers
Rhonda

[Katrina]

:welcome::welcome: Just wanted to add my welcome and say I am sorry you deal with so much fatigue.....I do too and know it is no fun.

[kelly McC]

Hi and welcome,
Sorry your going through so much right now. Hopefully when your tests are complete you'll have some answers and can get feeling better.
Hard to say what the soreness is from but it sounds like a different kind of pain for you. I would let your doctor know if it continues. Hope your feeling better soon,
Huggs,
Kelly