Botox here I come

[IcyAngel22]

I'm so excited because after being turned down many times by the insurance company and tons of medical red tape, I'm going in for my first botox treatment on Wednesday. All I can say is YEAH. I'm hoping botox will be the anwers to my prayers. I've tried everything else and so botox here I come. I don't really know what to to expect in terms of pain or soreness after the surgury. As far as I'm concerned it can't be worse than what I'm going through now. So I just wanted to say I'm going for it and I'll let you know how things go. I'm scared so keep me in your prayers. i hope it works for me.


Kristin

[DebraLeeS]

[B]Good luck keep us posted I am also very interested in Botox:)
Hope it works for you,us:)

[IcyAngel22]

Ok well things went well. I have to wait 3-7 days to see if it worked. I'm in pain and peeing burns really bad. :toilet: :toosh: I'm glad i went through it and I'm sending my prayers to those going through the process of red tape and those cosidering it. I'll keep you posted. :grouphug:

Kristin

[Ginny]

I am praying that you find relief in Botox.

Ginny

[IcyAngel22]

In my mind I thought well botox paralysis the nerves so I won't feel a thing . Oh was I wrong. Day 4 a little improvement but now I can only pee with the sound of running water. Very strange. I'm still in the waitinmg period to see if it was effective. thanks you everyone for all your prayer. You are in my prayers as well.

[curlycue]

You go Girl,
I was under the impression that it would do the same thing about paralizing the muscles or bladder.


Kristin there is a lady by the name of Flore that is Mexico and she has had it done and she states that it has really worked for her.

Good luck and let us know how it went.

[Flore]

Hi Kristine!!

Where did you have the injections??, and how many units did your dr put??

I have had the injections 4 times, and this is a treatment that really helps me. I never have had retention, because my dr all the times puts in the urethra, and this helps to empty my bladder

My dr usually puts 100 or 150 units. The last time was on past march, and I´ll have the next on Nov or Dec.

I think that you will beging to see the effects after 10 or 12 days, so you try to be in calm, ok???

I hope that you be fine very soon!!!!, and keep us on touch

[IcyAngel22]

Flore -

Thanks for your support. I got 100 units in my bladder. I want to try pelvic floor and urethra. I know it will take a few more days for me to see the full effects. I'm so excited and I want this to be the treatment that works for me. I know i need to take a few deep breaths and relax but the pain is really bad. I started my period on the day of the botox surgery so I think it is added pain. How long did it take you to recover pain wise from this? Have you had it is the pelvic floor or anywhere else. I hae PFD with my IC so I want to try that the second time around. Thanks for your support.

Kristin

[Flore]

Hi Kristin

I have had 4 times de injections, but only 2 were in my bladder. I have PFD and vulvodynia too.

1st injections: Urethra
2nd: urethra, bladder and pelvic floor (via my vagina)
3th: urethra and bladder
4th: urethra and pelvic floor

And I think that Botox helps more with my PDF, because 15 days after the procedure, I began to urinate very well and without pain. Botox helps me too with the frequency

I never have had pain after the injections, in fact, I can leave the hospital in the same day. Everytime that I have the injections, the first 2 weeks, I feel strange, because I have retention periods, or alot of frequency, and I have had incontinence periods. But I never have had pain. And after 12 or 15 days I begin too feel very well

My dr wants to put every 8 months, so I had the last on March, and the next will be on Nov or Dec.

For pain, my did on July the hydro and the first electro-fulguration. This was very painful, in fact, I had to be at the hospital for 2 nights, and I was with a lot of spasms for 2 weeks, but now, I´m very well, and 100% pain free

How do you feel today??

I hope you can understand my bad english

Bye!!

[IcyAngel22]

Flore-

Today is better than yesterday, I'm still in pain but my doc says that is normal. I had 27 injections in the bladder I don't know if you had the same or not. My doc said that every doc does it different. My bladder before the surgery was very tender and if I bumped it around that area it felt like I had a bruise but it doesn't look like one. I have really bad pain like you. Pelvic floor thearpy hasn't helped but I still do it. Thanks for telling me about your experience and I hope the pain stays gone for you.

Kristin

[ICLori]

Hi, Kristin, hoping and praying your bladder symptoms subside very soon and you will have blessed relief for many many months!

Blessings, Lori

[Flore]

Kristin:

I don´t know exactly how many injections my dr uses to put, because everytime he does different. But I can tell you that he allways put 100 units (as you dr), and only in the second time, he used 150

Do you know if your dr did a hydrodistention??, because may be the pain that you are feeling is because of this

When my dr put only in urethra and pelvic floor, he doesn´t have to make a hydro, and I´m without pain, but the times that he puts inside my bladder, he has to do it, and I´m with pain

Anyway, after every procedure I have, with or without pain, I have to be in my home for may be 3 or 4 days and lay down the most time posible

So, I recomend you that take a rest and try to sleep!!

[IcyAngel22]

Flore-

I don't know if my doc did a hydro but I'll ask. Thanks for the tip to take it easy.


Kristin

[IcyAngel22]

ICLori-

Thanks for the prayers and the support.


Kristin

[IcyAngel22]

Ginny -

Thanks for the support and prayers for my relief.

Kristin

[curlycue]

I will keep you in my thoughts and Prayers and hope that this will be the procedure that works for you.

[donutgirl]

Ladies...I applaud and admire both of you. Sounds like a lot of pain. Please let us know how these treatments work for you.

DIANE

[CinSin]

Hi Kristin,

I haven't been on the boards in a month or so. I sent you a pm before I read your posts.

I have had botox four times and only had pain after the 1st time.

1st time - bladder only (200 units - approximately 40 injections)
2nd time - bladder only (100 units)
3rd time - bladder and urethra (150 units)
4th time - bladder, urethra, pelvic floor (200 units)

When he only injected my bladder I had trouble with retention but when he injects the urethra and pelvic floor it is easier.

After the first time he also injected marcaine with the botox and I didn't have any pain after the injections until the next day and then it wasn't much.

I hope things get better for you real soon,

Cindy

[curlycue]

Hi CinSin,

I would like to know in a level of 1-10 how much pain are you in once you come of surgery.

[CinSin]

Hi Curlycue,

Pain level when waking up from botox

1st time about a 6, 2nd through 4th the doctor used marcaine with the botox and my pain level was maybe a 2 at the most.

Cindy

[curlycue]

Thanks for your response, my dr has suggested Botox to me but I am so scared. I am afraid of more pain? I am sooo tierd of the pain.

[IcyAngel22]

Things are going well. I'm pain free for the most part. A little pain here and there. When I had it done about two weeks ago (Wednesday) my doc put heprin instill after it was done. My bladder is very sensitive so many of you may not be in as much pain as me. My pain was about a 6 after surgery but the next 36 hours after a fulll rest cause you really need it. I love that everyone is showing their support in everyway they can. All of you are in my prayers so I hope you Ic is doing well.
Kristin

PS My post op is tomorrow so I'll let you know how my bladder is responding.

[curlycue]

Cant wait to hear how it goes I hope well

[IcyAngel22]

I went for post-op today and things are good. I'm having trouble with retension but in the mildest sense. Not bad but I'm starting a new med to help relax my pelvic floor to ease the retension.

Kristin

[curlycue]

Kristin,
What kind of meds do they have you on? If you dont mind me asking.

[IcyAngel22]

Ruth-

I'm taking Celexa,Pyridium Plus,Keflex,and darvocet as needed. Celexais for depression from ICplusit issupposeto help IC symtoms. Let me know ifyou have any other questions. I just started school in a little pain do to more activity. I hopethings are good on your end.

Kristin

[curlycue]

Hey thanks for the reply . I am on elmiron and prozac and tylenol pm at night.

How are you doing are you still recuping it from the Botox

[IcyAngel22]

Ruth-

Thanks for asking I'm doing much better I feel like I have my life back in a sense. I still have a little bladder retension. Otherwise all is good. I can't take elmiron I'm allergic to it. Have a good IC day. : )

[curlycue]

I am glad to hear that you are doing well. I am sorry about the Elmiron. Have a nice long weekend.
Ruth

[IcyAngel22]

Ruth-

I'm a new person. I can sleep almost the whole night without getting up to go the the bathroom. During the day I've noticed a small change and I love that I can go to the movies without ;eaving to go the bathroom. Wow I'm on top of everything. I can even focus because I'm not so tired from the constant6 trips to the bathroom. I'm a new person and I like the new me.
I hope everything is going well on your end. Thanks for the support.

[curlycue]

KP,
can you say that this has really helped you? I mean all the meds that you have tried has this been the best treatment that you have recieved.
Ruth

[IcyAngel22]

Ruth-
Botox has been the best treatment I've tried. I would recommend trying it if you can. i takes agood momnth to see the overall benefits. Sleep is my new best friend. I can actually sleep thru most of the night. One trip maybe two but mostly early morning.

[Ginny]

I am so happy for you. Keep us posted.

Ginny

[Flore]

Kristy:

I´m very very very very happy for you!!!!!!!!!!!!!!!!!!!!!!!

I´m only taking Atarax and Cysta-q, and when I have retention, I take Secotex (Flomax in other countries)

My frequency at night in only twice!!!, and a day may be 20 times, and as you, I can drive my car in the terrible trafic of México City without stop to look for a bathroom

I had the last injections on March, and I´ll have the next on Oct or Nov

Congratulations!!!!!!!!!!!!!!!!!!!!!!!!

[IcyAngel22]

Thanks Flore-

I'm very happy. I'm planning around my school schedule so Dec will be my next treatment. I'm also going to get my interstim taken out which will make me so happy because I hate the thing right now. Botox is a better solution. Take care you yourself and keep me posted. You are in my prayers .

Kristin

[IcyAngel22]

Ginny-

Thanks for the support your very sweet. Take care of yourself.
Kristin

[curlycue]

I am sooooooooo verrrrrrrrryyyyy happy for you. I hope it continues to work for everrrrrrrrrrrr. Flore and yourself are the poinerrs for Botox.

[CinSin]

Hi Kristin,

I am so happy for you. Botox gave me my life back!! Isn't it wonderful just not having to get up six to ten times a night to go to the restroom?

Cindy

[Ginny]

Can you tell me what state you are from? I would consider Botox if I could find a doctor to do it. I mentioned it to my Uro but he did not know anything about it.
So glad you ladies are finding some relief. It is such a nasty illness to deal with.

Ginny

[IcyAngel22]

Ginny-

I'm from Chicago. IL My doctor never did it bbefore me but got the mapping for the injection from a docotr in Calif. My doc attends many conferences to see the new treatments out there, encourage you doc to do the same. I hope you can find someone to do it for you. You are in my prayers and thoughts.

kristin

[Ginny]

Bring on the retension. I'm sorry, I know it must be annoying but at this end it seems like the best thing that could happen to me.
I had asked my Uro to look into it. I did not hear from him. Can anyone tell me where I can get info for him?

Ginny

[IcyAngel22]

Ginny-

Retension is welcomed inmy booktoo.It's annoying but I can take it. Itsnot that bad my doc gave me a pillto helpwith that. I don't know where to tell you to look for info but I'll ask my docon my next visit. I don't know when that is yet. I'll keep you updated.

[ICLori]

Oh, I'm so happy for you, that's wonderful! They don't offer botox at WRAMC so I will probably end up doing Interstim, if the Cyclosporin is denied me or if it doesn't work (I see my uro tomorrow, am hoping he will give me a referal to that doctor so I can try cyclosporin!).

I wonder how long it will be, if they keep getting wonderful results like these, for most uros to offer botox?

I know it's a bit expensive, but probably not as costly maybe as Interstim, and even Elmiron is not cheap...wonder how botox figures into the cost ranking?

I think the main problem is, not many docs are trained on it or believe in it right now. If the success rates continue so high, and it proves to be the best remedy out there, I don't see how docs can resist learning how and doing this...

Oh I am so happy you have your life back, that is wonderful news!

Blessings, Lori

[IcyAngel22]

Lori-

Botox is expensive. I paid $480.00 just for the botox anf my insurance covered the cysto need to inject the botox. Botox is suppose to work for 4-6 months so $480.00 to me was worth it. So if you consider how long it lasts the cost is very low. Some insurance even covers the botox. My doc bought the boto from the company so that's why it is so low. Most doc do it that way cause if the hospital buys it then then charge you $1,800 for the same botox I paid $480.00 for. Just a tip. My interstim doesn't wor for me anymore and I have had it for a year. The cost for it was well over $50.000 but the insurance paid for it. then you have to pay for adjustments every couple of weeks which is about $500.00 a visit. So the interstim is the most expensive in my mind and it didn't help me long term. What is cyclosporin?
kristin

[ICLori]

Hi, Kristin, Cyclosporin is an immunosuppressive drug, like they give to patients who get organ transplants. It's supposed to stop the immune system from attacking the body.

Boy, Interstim is expensive. You don't know how many stories I've read, where it stops working within the first year. I wonder if docs know how frequently the interstim stops working quickly? Or do they just hear the stats from the medtronic reps??? Just wondering...

Blessings, Lori

[CinSin]

Ginny,

What state are you in? My uro is in Houston, Texas. He did a Q & A with the ICN. His name Christopher Smith - check it out.

Cindy

[Ginny]

I am in New Jersey. My URO does not have any info on it. I had asked him months ago about it and he had not heard anything.
I think I did read the Q & A by Dr. Smith but will look at it again. Thanks.

Ginny

[IcyAngel22]

lori-

My medtronic rep thinks it's all in my head that it isn't working anymore for meSo at this point i just want it out. I don't wanto to try to fix it or anything. They just don't listen.I hope that drug works for you. What are the side effects? I've never heard about that. Where did you hear about it? Do you have any info on it? Goodluck.

Kristin

[CinSin]

Ginny,

You can do a internet search on Botox for IC and there are many articles available.

Kristin,

I am so happy that the Botox is working for you.

Cindy

[glory10]

I'm so excited because after being turned down many times by the insurance company and tons of medical red tape, I'm going in for my first botox treatment on Wednesday. All I can say is YEAH. I'm hoping botox will be the anwers to my prayers. I've tried everything else and so botox here I come. I don't really know what to to expect in terms of pain or soreness after the surgury. As far as I'm concerned it can't be worse than what I'm going through now. So I just wanted to say I'm going for it and I'll let you know how things go. I'm scared so keep me in your prayers. i hope it works for me.


Kristin

Good luck Kristin!! I hope that I will do my first botox treatment too in an italian hospital, with my loved doc uro Porru.
Sorry for my english, i'm italian.
love, Glory10 :angel:

[IcyAngel22]

Glory-

Thanks. Good luck to you as well. Your english is just fine.
Glad to hear people all around the world are benefiting from botox.

Kristin

[Flore]

I have been for 2 weeks with trouble in my pelvic floor, I´m with pain, I can´t urinate well, I´m constipated too. So I went to see my dr this morning and he thinks is time to put Botox again

He is going to put the injections this time only in the urethra and vagina. He is going to do the hydrodistention and electro-fulguration too

I´m schedule for next Oct, 28, and belive me, I´m counting the days!!

[IcyAngel22]

Flore-

Good luck with the botox. I know it can't come soon enough for you. I hope things go well.

[curlycue]

Flore,
Espero que te encuentres bien. Espero que te sientas bien Y PRONTO. Una pregunta que tengo para ti? Que es Electro-Fulguration? Y porque te injectan la Vagina y no la Vegia?

[Flore]

Hi Ruth (Te contesto en inglés porque este sección es para habla inglesa, ok??)

The electro-fulguration is a technique that is used to remove cysts in the bladder, and I saw that for the EC too. I don´t know to explain well, but Dr burns the trigone and with this helps to kill the nerves in this zone

My dr made the prove with me and was great.

I´m not going to have the injections in the bladder this time because the 2 times that he put there I didn´t have much relief. In fact, all the times that he injects in the urethra and vagina I am very well, and without retention

So after 2 years that we have been working together with my IC, I can say now that I have the right treatment for me:

For my IC: Hydro and electrofulguration
For my PFD: Botox in the urethra and vagina

Those treatments are maybe every 4 or 6 months, and in the mean time I take Atarax and Cysta-q

Do you understand me????

ICAngel: Thanks for your words, and how are you doing now with Botox???

[IcyAngel22]

Flore-

I've been in a flare for the past two days. Overall things are going well. I haven't gotten my period since the botox though. I don't know if anyone else had the same problem. Take care Flore I hope things are going well for you as well. For the PFD did botox help with the pain? I"m still having pain so I'm considering that for next time.

Kristin

[curlycue]

Flore,
Thanks I really appreciate you time and effort explaining that to me.

[curlycue]

ICAngel22,
How are you doing? I hope well. How is the botox working?

[IcyAngel22]

Ruth
I'm in what seems to be a flare and it is buming me out. The botox has really helped. I'm in a rough patch right now but I the botox is still working. Thanks for checking up on me. How are you doing? I hope things are going well with you too.

Kristin

[Flore]

Kristin:

I´m sure that my Ic is because of my PFD, so all the time that my dr puts Botox in my urethra and vagina I can urinate very well, with this I find a very big relief in my symptoms. The times that my dr put inside my bladder I didn´t have the improve that I was expecting

Ruth:
Are you going to have the injections too???

[curlycue]

Flore,
I dont know yet I am afraid? I dont know why I am always up to any kind of new treatment. I am going to think about it see how I do in the next couple of months.

Kristin,
I am glad it has worked for you I hope you get over this flare. Have a good relaxing weekend everyone.

[IcyAngel22]

Hello everyone-

How is everyone doing these days? I've got a cold or something that is driving my bladder crazy. I hope everything is going well.


Kristin

[curlycue]

Everything is ok here? I have been doing good no flares. I am scared cuz when I get a flare its really a FLARE and I am going to Hawaii for thanksgiving so I hope I am ok for that.

[IcyAngel22]

Ruth-

I hope you stay flare free for Hawaii. And every other day. Take care.

Kristin

[curlycue]

Thanks Kristin I really appreciate that you care.

[IcyAngel22]

Ruth-

I wish I could be more helpful. Sometimes it's really hard to plan for things in advance. I dread telling people at the last minute that I'm not able to be there. I hope your vacation is IC free and relaxing. Be sure to stay away from the nasty bugs going around it makes my IC crazy.

Kristin

[curlycue]

KP,
I always say that things happen for a reason. If something or some illness keeps me away form Hawaii well then I guess it was not meant for me to go. I will be sad cuz my family is going but as long as I am healthy some what I am happy.

[IcyAngel22]

Ruth-

I've never been to Hawaii so let me know how it is. I agree with you about the whole if it was meant to be it will happen. Sometimes i just wish things were easier. I'm in my last year of college if i can finish my classes. I'm struggling to keep up but at the same time I've lost my drive which I do miss. IC has in a way made me lose my disapline because I can't push myself like I use to or would like to. Do you find that too? Hugs and prayers

Kristin

[Flore]

HAWAII!!!!!!!!!!!!!, is one of my dreams, to be there!!!!

Ruth, I travel so much, because of my association, and something that allways help me is visit my dr before and arriving for the travel, with this, he can check me how I´m and prevent for any flare, and arriving I use to visit him because I allways have problems with my PFD, and if the travel is so long I arrive with retention

So please, enjoy your trip, ok????????

Kristin: How is your cold now???, and how is working the Botox

I continue with pain in my vagina, my dr says that is because I have contracted my pelvic floor, so I continue waiting for Botox

Bye!!!

[IcyAngel22]

Flore-

I can't sleep lately and I have two problems. 1. I can't pee 2. I don't have an urge so I leak. I never used to leak. I feel really old I'm 22 and I'm falling apart. I may have an infection so I'm seeing my dr on friday. I'm so sorry to hear about your PFD. I hope relief is on the way for you. When is your next botox treatment? Take care

Kristin

[curlycue]

KP,
I am sorry that you are going through all that. I hope you get some relife soon.

Flore,
I have been doing good. I hope it stays that way untill I go on the 21 of November. I will be there for Thanksgiving.

[helpinghubby]

My wife is going in next week for her first try at botox. She does't have the problem with urgency only pain. She has been on all kinds drugs, and went through 2 series of BCG. She decided that the amount of pain from the surgery wasn't worth the short time of painn relief. So My general Question is, How long has everyone been pain free after the Botox? Is it worth her going through the surgery? Should her doc do the pelvic floor? Will she need to stay the night at the hospital? etc.etc. If anyone can help it would be greatly appreciated.

Thanks,
Rod and Lee Carnahan

feel free to email us at...
Carnahans2@msn.com

[IcyAngel22]

Rod & Lee-

I"ve only had botox in my bladder but for pain I've been told the injection into the pelvic floor helps with pain. The surgery is outpatient and depending on the dr it can be done in his office. My IC is really bad and I have a blood disorder so I had to go to the hospital. I had pain for a few days but I wasn't getting botox for the pain. I'm getting botox in PF in Dec. The recovery time is minimal. I slept the first two days alot from having general anes. It hurt to pee at first but my dr gave me pyridium plus. Everyone reacts to botox differently but it took 2 weeks for the botox to kick in. I was on the high side because most people get relief in 3-5 days. Good luck to both of you. Just plan on having your flare kit ready if you have pain and stock up on your favorite comfort foods. If you have a general anes. your throat with hurt alot so stock up on ice cream or tea. Whatever helps you out. Keep us up to date. You will love botox.
Kristin

[CinSin]

I had more pain the first time with the injections but the second through 4th the doctor used marcaine along with the botox injections and I was pain free when I woke up.

Cindy

[curlycue]

That is good to know.

[Flore]

Kristin: I don´t understand you, because you say that have problems to pee, and in the other hand you have urgency with incontinence??

The times that I had the injections I had retention problems, but may be for 15 or 20 days

Can you explain me better??????, remember that my english is not good

I´ll have the surgery next Oct, 28

Ruth: I´m sure that you are going to have a grate trip in HAWAII!!!!, take care and talk to your dr and tell him that you are going to travel, maybe he can give you meds for the trip

Rod and Lee: My dr uses to put the Botox when he does the cysto-hydro, and this last is painfull, so I use to stay for 24 or 48 in the hospital with a cath and analghesics in my vain

Botox is the treatment that changed my life. This helps me much with the frequency and urgency, and when I have problems with my PFD, the injections in my pelvic floor and urethra allways help me with pain because I can void very well

CINDY: How are you doing????????

[curlycue]

Muchas Gracias Flore

[IcyAngel22]

Flore-

I have the urge to go and then I can't. To get anything out I feel like I'm squeezing a wet towel. Now when I cough I leak a little bit. I'm taking a pill to help with retention. It doesn't really help in my opinion. But I can live with it. I couldn't live before botox. So my bladder is just crazy. Flore I read that you stay in the hospital after botox. I get a hydro and cysto too but I went home two hours after the surgery. Alot of docs here do it in there office. Not with me cause of my blood disease. So I was surprised to here you had to stay in the hospital. Is that normal in Mexico? Let me know I'm interested to know. Good luck on your next botox on the 23rd. Keep me posed on how you are doing.
Kristin

[curlycue]

Kp,
Things are alot diffrent in Mexico. I love the dr over there. I have much more respect for them over there than here in the USA. I have had a couple of surgerys in Tijuana Mexico its only a hour and a half from my home and they are so carring and compassionate they really like to check how you are doing at least for 24 hours and they like to keep you there and check on you I think its great I wish they would do stuff like that here. It seems like in the USA they like to get you in and out like the drive thrue windows at the fast food places.

I hope you are feeling better tonight.

[Flore]

Hi Kristin!!

I agree with Ruth, I think in México we don´t have many drs that know about IC or other relation diseases, but the few drs that treat them are very nice with their patients

In my case, all the times that I have the Hydro I wake up with alot of pain, and my dr prefers to leave me in the hospital for 24 hours. Last July I have the Hydro and the first electro-fulguration, and I had more pain than with only the hydro, so my dr thought that I could be more commfortable one more day in the hospital with analghesics

Here drs use to leave their patients for at least 24 hours in the hospital after the hydro, because they prefer to do in the surgery room because of the pain after the procedure

My dr puts Botox at the same time that he does the hydro. I mean their patiens have to be in the hospital

I continue in a flare, I have like a menstrual cramp (but I don´t have my period anymore (I have a hysterectomy 1.5 years ago)). Next tuesday I have an appoinment with my dr and he is going to instill an analghesic coktail, and I hope this help me to stay better until the surgery (next Oct, 28)

I´ll have Botox injections in my vagina and urethra, cysto/hydro and electro-fulguraration. All the surgery late 2 hours aprox. I will be from tuesday to saturday.

[curlycue]

Good Luck. I will be thinking and praying for you.

[helpinghubby]

Well My wife had her treatment today. She got 3 vials that i believe were 50 units each. She got 3 morphine fixes within the first hour she woke up. (she was hurtin pretty bad.) We're hoping that this surgery was worth the pain she went through. We will post in a couple days and give an update.

Rod & Lee

[Jen_Cole]

Hey Rod-I called to see how things went earlier tonight, and she was sleeping. Is she going to be off from work awhile? I guess I'll call her in a couple days if I don't hear from her.

[curlycue]

What type of surgery did she have? I hope she has a speedy recovery.

[CinSin]

Hi Rod,

Botox usually comes in vials of 100 units. Did Lee have all three vials injected into her bladder or did she have her urethra and pelvic floor injected too? The reason I ask is that when I had two vials (200 units) injected only in my bladder I woke up in bad pain. It only lasted for about a day - this is why I asked before in private email if the doctor had planned to use lidocaine or marcaine with the injections. It really helps with the pain from the injections.

I hope Lee feels better real soon and receives as many benefits from the Botox as I have.

Cindy

[helpinghubby]

She had 3 vials done. I don't know how much is in each vial. The Doc used licoiane (didn't seem to work well since she got 3 shots of morphine once she woke up). Just got a letter from insurance today saying they ain't gonna pay for the botox. We'll see about that. I'll take it to level 2 appeals if I have to. Freaking Insurance saying that it's not pertinent to her disease. I'll start googling articles as soon as I'm done here. But anyway, the only thing that seems to be lingering from the surgery is nausea. Burning after she P's rather while in the process of P'ing.
Thanks for everyones concern.
Hey Jen Lee ever get a hold of you?

Rod & Lee

[Jen_Cole]

No, I tried to reach her today but she didn't return my call. I left a message but it probably sounded really weird because I have laryingitis. I just wanted to make sure she was ok-sounded like she had lots of pain meds.

[helpinghubby]

Ohhh so that was you that called. WOW you sounded like death. get a cough drop or drink some hot tea.
Lee's doing pretty well. Give her a call or she'll call you J. She's working tomarrow.