Welcome back

[Kiyoka]

Hello 20's college students, I see the new semester is almost ready to begin. I wanted to see how you all are doing? Ready to begin again? How was everyones summer? I can't wait to hear all about it. I hope you guys are doing well. I'm praying for you all. I am starting my third year of college and if I can help anyone in anyway, or anyone else that has imput, please feel free to ask questions. I know some of you are getting ready to start your first year, So much fun. If you need help to talk to your teachers or anything like that...let help each other out. I don't want anyone to be alone, and quit...because of ic. I love you guys dearly. HUGSSSSSS forever... :)

I'm not really ready to go back to school, but I have to, I hope this year I would be worried about my studies. Less time at the doctors office. I'm doing okay, I might be abit sick, but not sure yet. the test results will be in monday...soooo far away. My summer was one I will never forget. I went to Thailand for two months I was able to teach english to college students. I got to go up country and help build a lunchroom for a school.

Love, Kiyoka

[MelanieJean]

Welcome Back, hun! I'm glad to hear that you had fun.

~mel~

[A.J.]

Hi!
I'm just starting my first year of college...I leave Monday actually. I'm off to Drake University in Des Moines. While I'm extremely excited about it, and I have doctors already set up there, I'm really scared because of the IC. I've been in a flare for 4 months, which is the longest I've ever had and it just feels like it's never going to go away. Plus, I'm not in a relationship but I have a feeling college will bring that...and I'm not capable of any kind of intimacy. I'm really not, at all. I have before but that was before I ever had IC and now I can't do [I]anything[I]. It's awful. But anyway, good luck to those going to college. I'm looking forward to it, I just hope I can function despite the IC.

[JessicainArkans]

Hello fellow friends, one thing if you have Kiyoka praying for your behalf she has it covered, I have not yet met her but I hope to soon, she has helped me soooo much and I love her for that!! She is a very wonderful person who cares deeply for her family here on the network.
I will not be going back to school until I find out if I wiil recieve SS benifits, but I really want to go, perhaps having my mund on something other than myself and the pain of IC woulf lighten things up, then again I am scared to death about how I will function, I barely get the bills paid out each month
I too hope you are all well !!
Hugs
JessicainArkansas

[PikkuMyy]

I start in 2 weeks. This semester I just have two clases, back to back, on Tuesdays from 4:00 pm to 9:40 pm !!!! Frankly, I'm more worried about falling asleep in class than the IC! Plus it means I'll have to eat dinner at school, which is never any fun.

Kiyoka - it sounds like you had a very fulfilling summer, making some money and helping others~!

[Kiyoka]

Hello Pikkumyy, Good luck this semester. This is going to the first time I'm having evening classes...I will try to stay away with you okay?

Hey A.J. I PMed you I hope you get it. Thanks your posting you guys..hugs

Jessica thanks for everything. I love you sister....I can't wait to talk to you again...hugs

Hey Mel, how are ya? I promise I will email you soon, its' been so crazy here...when can I go visit you..or see you again hugss?

[IcyAngel22]

Hi I'm Kristin
I'm going into my senior year of college. I found out I had IC in Aug 2003 and it really effected my school work. My IC has gotten worse since last semester so I'm scared it will effect my graduation date. I had to push it back one year due to my IC and I just want to finish college and go to law school. I'm just afraid I'll never be able to go to law school with IM because it is so demanding. I go to school in Iowa and I live in Chicago so it is hard to take care of my IC and school.

Kristin

[Kiyoka]

Dear Kristin, thanks for the reply. I know I wish it wasn't so hard to do school and ic. I almost quit school last summer because of my ic. What treatments are you on? What school do you go to in Iowa? You will finish and get into the amazing law school..I know it. Please let me know if I can help ya.

[IcyAngel22]

Kiyoka-

Thanks for the support. I go to St. Ambrose Unverisity. I've tried everything. I did pelvic floor thearpy, Interstim , elavil, hydrodistension and now botox. I won't know for a few more days to see if it worked. So how is your IC? where do you go to school? I hope things are going well for you. I wish you a good semester.

Kristin

[Kiyoka]

Dear Kristin, my ic is doing okay. I had six treatment of dmso, which worked pretty well. So much better then all the other oral meds I have tried. I go to school at Eastern New Mexico University, Portales. Thanks for the wishing of my good luck for the next coming semester I will surely need it. I really do enjoy posting with you. I hope we are able to keep intouch.

[IcyAngel22]

Kiyoka-

I enjoy posting with you too. School starts next week. I'm freaking out but I'm excitied as well. I hope the start of school for you is less stressful. Keep in touch and good luck. You have a friend in me.

Kristin

[Kiyoka]

Hey Kristin, sorry it took so long to reply. Hugs. I hope school is going well. I know times are hard, but I know you will pass with flying colors...and I really can't wait to hear about it. School starts for me next week...I hope everything will be okay on the paper work side. email me if you need anything kiyokafett@yahoo.com

[Kiyoka]

yeah I did it, I had my first day of class today. I went pretty well. I have one more class to try and then I will know what I got myself into. my goal is to get all A's but one class is very hard. I hope everyone's classes are going great. I miss you of you guys.

[IcyAngel22]

Hello I had my first two days of school but today I had a bad flare. So the third day into school I 'm having some pain and due to the botox I'm having problems empting my bladder. I hope everything is going well for everyone else. Kiyoka- thanks for the support I really needed it.

Kristin

[Kiyoka]

Hey Kristin, Dude i'm sorry you are in a flare...I know how hard it is. I haven't been all that well in the first place. My goal is to get almost all A's this semester. It's amazing how much pain you can get into...from a flare...I just want to sleep all day..but we are surely not going to let it stop us..right?? I hope you are drinking tons and tons of water..so the flare will go away. I wish there was more we can do to feel better...grr please let me know how you are doing in the next few days..if possible. I hope the rest of your week gets better...

Love,

[IcyAngel22]

Kiyoka-

I'm having a good day IC wise and I hope you are doing well also. My flare was a very short one about two days or so. Before the botox I had more flares than good days. Botox is my new friend have you treid botox? Thanks for checking up on me. How are you doing? I hope you are working hard on those A's. Good luck to you keep me updated.

kristin

[Kiyoka]

Hey Kristin, that is soooo great. I'm happy your flare is letting loose. I have not tried botox..just dmso. I'm okay, I guess..I been hurting a whole lot. I don't think it's all from my ic. I bein crying a whole lot lately. I am having some test done tomorrow..then I will have to wait 11 days for the labs to be back. sooooo long..grrr abit upset..I wish they would check everything out all at once instead of six test and wait and six more...I might have a infection..but I have to do the test before I can take any antiboitics..:( the sadness rolling into my eyes. I am trying to work hard on my grades..but it's only the first week of school..haven' had very much homework yet. I hope all is well and stays as well for you my dear friend...I hope you keep up with whatever makes you feel better.

Hugs,

[JessicainArkans]

:) My sister,

I hope you are getting over the episodes that have been causing you so much pain, I know you do not suffer alone, I pray for all of us who feel this pain, you are always included in my prayers.
I am grateful for your friendship, your call enlighted my very dark days since I had spoken to you last. I am a better person for having known you!! Miss Kiyoka you are a blessing and I love you for that!!
You will do well in anything you set your mind to, it seems the problems that come your way willl always pass because of your great fortitude and ability to fordge on, by caring for others like you do. You are collecting blessings so plentiful you cannot imagine, they will come as sure as the sun willl shine.
Use these sometimes unruely and dreaded IC experiences as launching pads and reach for the sky!
Always a friend,
Jessica :love:

[IcyAngel22]

Kiyoka-

I'm so sorry to hear that school is off to a bumpy start. I had a hard time controling my IC last vsemester but I got thu. You need to just hanging in there. Botox was my help I hope DSMO ios yours. I can actually sleep thru the night for thje most part. Things will get better but if you need someone to listen or talk to0 let me know I'm here to help you. I check my e-mail everyday for the most part so if you need a friend i'm only a double click away. PhelanKristinE@ambrose.sau.edu I really feel your pain and I understand how hard it is to deal with IC while in school. Just take care of yourself and let me know how those test results are. You are in my thoughts and prayers.
Kristin

[Kiyoka]

Hey Jess, Thanks for the reply I called your house today, but couldn't find you. I miss you too Jess. You played a important role in my life and i'm so happy you are in it I can't wait to hear from you. please take care my dear sister. I love you.

Kristine, Thanks for being a friend. I'm still not feeling all that well lately. It's like a never ending battle..test test and more test. Dmso is helped more then all the other oral meds I have tried. I emailed you so more..I hope you get it. Please take care hugs forever.

LOve you guys

[IcyAngel22]

Kiyoka-

Today is going well. How about you? I can feel a flare coming because my period is coming. I've never tried DSMO I've done elmiron and heparin instills. How is the DSMO?I heard it was painful. I'm in the mood to take a nap but I have class til 5. So my bed will have to wait. Are you tired alot like I am? I do have more energy after the botox but I still feel the need to take a nap.
Kristin

[Kiyoka]

Kristin, that is great well days don't came all the often in my life. I hope that your flare that is coming doesn't last for a long time. Dmso is pretty good in my book. The first time it didn't hurt at all. the second-sixth it hurt, but only for a few second to get in the catha. I'm always tired, I think I will go take a nap too. Could you tell me abit about Botox, I really don't even know what they do..or what it is? I hope your tireness goes away sooon.

Kiyoka

[IcyAngel22]

Kiyoka-

They do a cysto and inject botox in the bladder wall. In my case 27 injections only painful for the first fews days but they give you lots of drugs in case it hurts more. It takes 2-4 weeks to see the full effect botox has on your bladder. In my case nothing else worked so I went for the botox and it is amazing. No more instills or interstim. Ask your doctor if you would be a good pateint to try it. I was. Just something else to keep in mind. My insurance paid for surgery but I paid $480.00 for the actual botox. Some insuance will cover the botox too. Take care of yourself. I hope you enjoyed your nap yesterday. I';m going to taje my nap at 3:00 once I finish work study.

Kristin

[Kiyoka]

Hey Kristin, I hope your nap went well. sorry it took so long to reply. Wow are you sure the botox doesn't hurt? Any side effects. Things are working with dmso, so I think I will stick with it, until it stops working. How are classes going? I hope all is well for you, I can't wait to hear back from you. I really do enjoy being able to ask you these question...hugs

Love, Kiyoka

[XoChelsey03Xo]

I started my 2nd year of college a few weeks ago. I really felt as if I had no summer because I took 3 classes over the summer terms. Yuck! Anyways...good luck to everyone in their studies this semester!!!! Chelsey

[Kiyoka]

Hello Chelsey, How are you doing? I know exactly what you mean by not having a summer. Three classes is a lot for the summer. If you need any help with anything, we are here for you. What is your major.

[IcyAngel22]

Chelsey-

Hi. I'm Krsitin. I'm in my last year of college. Summer is suppose to be fun but I had alot of surgeries so my fun was staying in all summer. Hang in there. Things will get better. I just tried botox on Aug 11, which is what is helping me alot. I feel like I've gotten my life back in a way. I hope this year for you will be flare free and allow you to do your best in class. I know how hard it is, we all do here so if you need help just let any of us know. We are stronger together than divided. We all need a little support sometimes so don't hesitate to ask for it.

Kristin

[XoChelsey03Xo]

Hello Chelsey, How are you doing? I know exactly what you mean by not having a summer. Three classes is a lot for the summer. If you need any help with anything, we are here for you. What is your major.

My major is special education in deaf studies. I want to work with hearing imparied students. Chelsey