View Full Version : How much did your bladder hold?
DanaW
11-26-2003, 01:17 PM
I was also wondering how much your bladder held when you had the Hyrdrodistention done? Mine was 650 cc. He told me I had inflamation and some pinpoint glommerations (sp?) Thanks
Dixiefireball
11-26-2003, 01:33 PM
I'm not sure how much my bladder holds but the last time the uro checked he said i held alot i have rather a large bladder but if i'm flareing it sure don't feel like it then.
ICNDonna
11-26-2003, 03:21 PM
Normal bladder capacity, while awake is approximately 500 cc (about a pint). Under anesthesia normal bladder capacity is about double that amount. When I have a hydrodistention, my uro is able to distend mine to usually around 650 to 700 cc --- not bad for an IC bladder, but less than a normal bladder. My usual capacity is somewhere around 300 to 350 cc.
Donna
Dianne
11-27-2003, 03:07 AM
Thanks, Donna, I had wondered that. Recently I was very full and measured it just for the heck of it and it was 400cc. I was 650cc under anesthesia back in May (without stretching), down from 900cc back 9 yrs. ago when first diagnosed. I also had a 650cc void back in May when they told me not to void before coming in for urodynamics. Since it was a 90 mi. drive first thing in the morning, that's what I got. I could hardly walk though I was in so much pain. I have another question. What is considered normal residual if any? I still have about 100cc residual since the botox in Aug. but I'm wondering if I always had that and didn't know it until I learned to crede out (push on bladder) to complete emptying after the botox.
Morgan Stone
11-28-2003, 04:46 AM
My first hyrdo showed I could hold 900 cc so I guess that is pretty good for IC bladder. I don't have the frequency as much as I do urgency so I'm pretty sure my bladder never keeps much in it anyways. I also think I am still in beginning stages of IC because I did not have pinpoint bleeding either.
grouphug
Morgan
I've had many hydro's and my capacity has ranged from 450cc's to 1200cc's which is a HUGE amount of pee;) I do believe that even tho I no longer have the interstim, it did help to increase my bladder capacity......
It's nice to know what my bladder is capable of holding because when I leave the house and get that feeling that "I gotta go, and I gotta go RIGHT now" I can ignore it and just live with how uncomfortable it is.
ICNJess
11-29-2003, 03:34 AM
Wow, those are some good size bladder capacities you've all got! :D
With my hydro, mine was somewhere between 150-250 cc's..and I don't know why, but when I first got my interstim I could pee 1 1/2 cups or so, but then I went back to my regular 3 oz. But no urgency or bladder spasms, and no more 40 times a day. Try figuring that one out! lmao
Anyway, I am really impressed with everyone's capacity! Pee all that you can pee! wink
Hugs and love,
Jess
tigger_gal
11-29-2003, 03:43 AM
omg you guys are so lucky :D ...... My bladder held less than 350 cc under sedation with severe pain banghead according to my dr and the written medical record I was given. My blood pressure went very high during the procdure. I have the interstim wink that has made a world of difference with my urgency and cut my frequency nearly in half, :D but I still am only able to void 2 ounces anything more about kills me toilet . I'd give my eye teeth for a bigger bladder... scream
Glad you all got one bigger than my tiny useless bladder from hell. cussing
Brat
Hey Brat, Believe it or not I was happy to hear
I'm not the only one with such a small bladder
capacity. I thought I must be the worst one on
the board. I've had IC for 11 years and now
have to void at least 30 to 50 times in a 24 hr
period. However I am truly blessed that I do
not have the severe pain that most of the girls
have. When I flare (which is often) I do have
extreme burning and pain in the whole vaginal
and rectal area. My Dr. perscribed Demeral for
that. I hate taking strong meds but sometimes
it is necessary. Hope you have a pain free day.
(((HUGS)))Rita
grouphug grouphug
Zookeeper
11-30-2003, 03:18 AM
Hi there!
My urodynamics test showed I can hold 145 cc to 190 cc.I know I can hold more then that on a good day.
grouphug
Take care.Love Zookeeper Kim
KarenNielsen
11-30-2003, 03:50 AM
At my one and only hydro (for diagnosis)18 years ago, my bladder held only 100cc under general anesthesia. 12 years later, when I was in the hospital after childbirth, I took advantage of that little plastic hat they leave in the toilet and measured my awake bladder capacity, which was 1200cc. So everyone with a small bladder capacity, there is hope to increase it! I increased mine over the years by drinking tons of water several times a day and holding it - always stretching my limits.
havingsuccess
11-30-2003, 12:10 PM
My bladder held around 1400cc under anesthesia and awake i usually pee around 500-600cc and if I'm really about to bust I can hold about 800.
Success
tigger_gal
11-30-2003, 01:27 PM
GGGGGEEEEZZZZZZ Why do I have such a tiny bladder banghead I never go over 2 ounces which is aprox 150 cc's.... and nothing changed really after my hydro except the urgency.....
I WANT A BIGGER BLADDER :D
Brat
LisaK
11-30-2003, 04:16 PM
I agree with Brat I want a bigger bladder too. 125cc here. LOL
mayray518
12-01-2003, 10:07 AM
Mine held 1000 under distention which amazed me because it was so inflamed. Now that I feel better on elavil I go as much as I used to (before IC) which is about 4 times a day. I think ICers with Hunner's may have smaller capacities, am i right?
kiffy313
01-02-2004, 04:54 AM
Hi everyone,
Just had my 2nd cysto with hydro, under anesthesia, Dr. went to 550cc, awake, 200cc, not as much as back in August, but he told my family that my bladder looked better. I wonder if that is because he did not go up as much as in August, of is the Elmiron working??? I hope its the Elmiron...I will see him on 1-7, and will find out more then. I also had urethral dilation, does not seem to have helped, yet, I hate sounding so negative... I, too always feel like I need to go, I know it is a no-no to push, but I cannot start the urine if I don't, HELP!!! And, when I do the "stream" is pitiful and I "dribble". Sounds like a bad Poise pad commercial... eek . Hope everyone is having a good New Year,
Kandy
tigger_gal
01-02-2004, 08:04 AM
May,
I don't have hunners at all, my bladder under sedation is less than 350 ccs or 10 ounces in pain. Awake and with the interstim my bladder only holds 100 cc or 2 ounces I hit 125 cc or 3 ounces I am doubled over in pain.
Brat
Coleen
01-03-2004, 01:45 AM
Hi! I am not sure what the correct amount for someone without IC holds. I do know I had my very first Hydro yesterday and under anestesia my bladder held 950cc. That's all I remember the doctor saying to me as I was waking up. It was like a blurr. He passes by with a tidbit of information then *poof* he's gone. What does the amount that your bladder holds have to do with anything anyway? I can have a large capacity but I still go a million times a day and its always not alot...... Just my info on bladder capacity...
Thanks, Coleen
peiti
01-03-2004, 11:36 PM
I agree with what Coleen said here. I have a not so small bladder. The doctor said my capacity under anesthesia was about 770cc. However, before InterStim and Elavil treatment, I could only hold up to 200cc. If I had to hold more than that, I would have cold sweat and feel dizzy (of course, with painful bladder).
BTW, have you ever been asked to have the leakage test before? I don't know how it is done there? Here, my nurse asked me to drink around 1000cc water and wait till I really wanted to pee. The nurse didn't let me pee right away, instead, she asked me to wear a pad on my underwear then I needed to walk around, jump and cough to see if I had urine leakage. This was the worse test that I have ever done.
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