Years of suffering

[pamstew73]

I began having pelvic pain in 1996. My doctor thought it was PID and after numerous visits and hundreds of dollars he referred me to a Gyn. After several visits I was sent to my first urology appt. I felt like I was being tortured. I had a scope, hydrodistension, and numerous DMSO treatments. I finally gave up and thought it was just easier to deal with it. Today a friend of mine went with me to a new urologist. He instilled Heparin and Lidocaine and prescribed Elmiron. He actually listened to me and for the first time in years I have hope that I can feel better and have a somewhat normal life. I have several more treatments to look forward to but I am optimistic for the future. Thank God that I have finally found a doctor who will listen and understand instead of making me feel crazy. I would not wish this on my worst enemy. It's too bad that more doctors don't listen to their patients. :rolleyes:

[dyno]

Hi,
I am glad you found a Dr. you feel like you can trust and like. IC can be a tough disease to get a handle on and half the battle is having a good Dr. There are so many treatments and combinations of things that can be tried now that hopefully you will find the right one for you. Hang in there, there is a lot to be optimistic about!

[ICNDonna]

:welcome: I'm so glad you found us. You'll find a lot of information on this site. You'll want to look at the Patient Handbook at http://www.ic-network.com/handbook

I also am glad you have found a physician you feel comfortable working with; that can be so very important.

Warm welcoming hugs,
Donna

[Dixiefireball]

:hi: and :welcome: to the icn family sorry you been threw so much and i have to agree it is sad that more doctor doesnt listen to us more offen if they did they would find answer quicker and we wouldnt have to suffer as long
Our sweet Donna gave you a great website to check out above i believe you will find it a great deal of help.
sending you hugs and prayers
Rhonda

[SharonA]

:hi: :welcome: :)

[Iris]

Hi and welcome to the ICN, I know how good it feels to have a doc who really listens and helps out, I have a terrific uro, and nurse practitioner, who are both wonderful, and make a lot of difference in my life dealing with IC. You will find lots of information here, as Donna has given you, and also lots of support and compassion, we all know what it is like to live with IC, and share one anothers ups and downs in dealing with this disease. Once again welcome, glad you found us, welcoming hugs Iris. :welcome: :grouphug: :flower:

[mayray518]

I am so happy you found someone. I know how you feel. You have come to the right site. Read the Patient Stories on here and you will feel right at home