Help what else will help me with this pain?

[crystilclear]

Hi I'm still having aweful pain after the hydro. Every time I go to the bathroom after I'm done it hurts so bad. Like there are knives in there that stab me afterwards for 15-20 minutes. Then it dies down to hard spasms. The hydro was on Monday is it normal to feel like this afterwards? I have only sen this new uro twice and I hate to admit that I am so wierd about asking for help. I just feel like if I do then they might treat me like the other uro did. I was wondering is there something that might help better than this is helping? Anyways the muscle pain is not as intense as yesturday. I think taking 2 flexeril helped it become more managable. Anyways I am just looking for suggestions. Thanks - Chris :(

[sms]

I had my cysto/hydro two weeks ago. I was in bed for three days after with pain, the second night being the worst. My uro started me on ditropan a week later that helped with frequency. I am still having pain in my bladder and lower back, they sent me for a urine culture yesterday so I'm waiting to see if I have an infection. In the mean time I have no pain meds just my heating pad. It's hard to say what is normal since we are all so different.

I hope you find some relief from you pain soon. Take it easy and take care of yourself. I'll be thinking of you.
:dogrun: :pray:

[ICNDonna]

I think it would be a good idea to call your uro. There's always the possibility that you have infection and, if nothing else, that should be ruled out. Also, you might find this new doctor will order pain meds for a few days to get you past the post surgery pain.

Sending gentle hugs,
Donna

[crystilclear]

Thanks I think I'm going to go to the doctors because I am caughing out green flem. I think it may be a sign of an infection. I've had a sore throat and flem that won't clear for about a month. The other doc said the flem was from allergies but I don't buy that. It's getting worse and I think it's time for a secong opinion. Thanks - Chris :kiss:

[creatingkarma]

I usually hurt for a couple weeks after a cysto/hydro. Did your doctor prescribe you Pyridium? That helps sooooo much with the stabbing knife in your urethra pain. I would definitely call & have him prescribe it for you. You can't take it everyday, but after surgery for a short period of time is fine. If you can't get a script, then there are over the counter meds that work in the same way, they just aren't as strong. There's AZO & Uristat.

Please don't be afraid to ask your new uro for help. At worst, all he can say is no.

Wishing you quick healing,
Karma

[TiaTia]

Chris...

PLEASE do go to the doctor, and please let us know what is going on after. Signs of any kind of infection should definitely be taken seriously after any surgical procedure. Also, I know from talking to you in the past that you are hesitant to ask for help from the doc as far as pain meds go, but it really, really is valid right now. You should never have to be in pain, but especially now after a hydro. Please, please ask. If this doc is going to be a butthead, better to find out sooner rather than later, right? :rolleyes:
I know that you have had bad luck with that in the past, but please, try and see if this doc will help. You deserve the best care possible. Please keep us posted...
Cristina

[kelly McC]

I am sorry your still very uncomfortable. I also had a cysto/hydro 3 weeks ago and can tell you for me I waited Big mistake for me to wait so long as I did have a infection and it's taking a toll on me and alot longer to feel better. I would call your doctor to let them know and I hope your feeling better soon,
HUGGS,
Kelly

[crystilclear]

Thanks you all I have a follow up app. on Friday. Today I'm having lower back pain and pain after I go for about 10 min. Everytime I think I have an infection I don't! Just wondering can the hydro make you late on your period? I had the hydro done a few days before my monthly was due. It's day 32 and it's not here yet. But in the last 6 months or so they've been irregular and longer. Just wondering. Thanks for the concern but it will be ok. The worst thing right now is staying awake. I am so tired I could fall asleep sitting up. How do other people deal with the tiredness? And I'm sure some of this pain is just from the monthy horror and not just from hydro. I will work harder on my communication with the doctors. I really don't know why I get so anxious over it? Thanks for your advice. Take care - Chris :cat:

[ICLori]

Hi, Chris, I hope your appointment goes well and you get good pain relief very soon!

When you said lower back pain and pain for a few minutes after going, that got me wondering if it could maybe be kidney stone pain? Just an idea...

I sure do hope you feel better soon, you don't deserve to go through this awful pain.

Blessings, Lori

[Katrina]

I hope you feel better soon. ((hugs))

IC Pain Relief Methods (This list put together by Katrina)

This list is for when you are already in pain


• Ice/Cold (I believe alternating between hot and cold is best)
o Ice packs
o Ice
o Cold spray water
o In a water bottle
• Drinking almond milk
• Drinking baking soda and water mix (about 1 teaspoon baking soda per glass)
• Herbs
o Marshmallow root (althaea officinalis) helps sooth irritation and inflammation due
o Licorice (glycyrrhiza glabra and g. uralensis) good for inflammation and anti allergic but should only be used short term
o Uva Ursi (arctostaphylos uva-ursi) is an antiseptic of the urinary track also used as a diuretic, also for inflammation…also only for short term use
o Black Cohosh (cimicifuga racemosa) not good for me since has similar effects to the hormone estrogen. Is used as a sedative and to relieve menstrual cramps. May have anti inflammatory effects. Avoid large doses.
o Catnip (nepeta cataria) eases menstrual pain, soothes the nerves, and as a sleep aid.
o Chamomile (Matricaria chamomilla) mild sedative, creduces inflammation, relieve menstrual cramps, http://www.ic-network.com/cgi-bin/ustorekeeper.pl?command=goto&file=Foods-Tea.html
• cornsilk tablets are unreal!!!!!
• Drinking a burger king milkshake
• Resting/relaxing (some goes as far as to say laying down….at times I could only lay on my side)
• Acupuncture (Check page 6)
• aroma therapy (either in a warm wash cloth across face, in a bath, inhaled from a bowl of steamy water, vaporized on an oil burner, sometimes candles, applied to the skin, or taken orally)
o almond oil
o lavender
o lemons oranges
o all essential oils
o honey
• reflexology (see page 7, 8, 9)
• physical therapy
• Yoga mine see page 10, ICN: (http://www.ic-network.com/shop/)
• Prilosec OTC or something...not so much for pain but because it is newly non prescription acid reducer
• Water (drinking plenty of water helps with burning pain and helps dilute urine so that it is less harmful to the bladder wall
• TENS unit Ask your doctor for a TENS unit. A TENS unit is believed to work by providing another source of stimulation to "divert" the brain from paying attention to your bladder. It's based on the spinal gate theory. Some patients find TENS very helpful while driving, or in situations when a pain medication isn't appropriate.
• Migraine Ice Patches
• Tylenol with 4 Prelief (many non prescription meds can hurt the bladder….be careful and watch out for what bothers you) http://www.ic-network.com/handbook/nerve.html
• Topical analgesic…Menthol example ICE Blue Gel
• Heat
o Thermal Care Heat wraps
o Heating pad (http://www.ic-network.com/shop/)
o Thermal care adhesive body warmer (http://www.ic-network.com/shop/)
o Spraying heated water
o a microwaveable pad (http://www.ic-network.com/shop/)
• Extra Prelief (http://www.ic-network.com/handbook/prelieffactsheet.html)
• Taking a shower or Tums if your desperate
• Warm Baths (NOT HOT!!!!) No bubble bath or strong soaps, please! Soft soaps, perfumed soaps, bath salts & bubble baths can be very irritating to an IC patient. However, you can put baking soda in the tub for extra comfort. SITZ Baths Definition: A sitz bath (also called a hip bath) is a type of bath in which only the hips and buttocks are soaked in water or saline solution. Its name comes from the German verb "sitzen," meaning "to sit." I recommend: (a tub divided into two …one half is filled with hot water and the other cold. With part of the body on one side and than switching and back again in quick succession)
• Foot baths
• Visualization [relax your mind. Make sure you are warm and comfortable, and practice deep long breathing, concentrate on the rhythm of your breathing, as you breath imagine the air going in and out of the painful area (such as the bladder), As you inhale, imagine a warm glow healing the pain, and as you exhale, imagine the pain being expelled. Next imagine your pain as a red ball, now take that wipe it with your washcloth, as you wipe the ball gets lighter and lighter in color, keep whipping until the ball is white.] That was 2 examples do what suits you best.
• Trying things to distract you
o Listening to music
o Watching a movie or TV (some choose to have tapes ready for late night flares)
o Reading
o work on a craft or project
o spending time online
o writing letters
o Working around the house (Do what feels comfortable to you. Don't push it.)
o Being constructive and helping others
• Venting here or to friends
• Hugs
•
• Praying
• Staying positive….believe the pain will end
• Meditating (http://www.ic-network.com/handbook/meditation.html)
• Ask for help if you need it (family, friends, doctors)
• Instillations (http://www.ic-network.com/handbook/instill.html)
o DMSO
o Heparin
o Marcaine
• AZO for Urinary Pain Relief or URISTAT
• Ask for a foot message from your spouse or partner (actually I think it is the receiving one that helps with the pain :)
• Pain meds patch
• Pain meds oral (Remember, the earlier you catch a flare and pain, the easier it is to stop and the less medication it can take to stop it. So, don't wait until you are crying and desperate... because that allows that pain cycle to get firmly started. Try to catch in early!) (http://www.ic-network.com/handbook/painmed.html)
o Oxycontin (Pain med’s are recommendations from other ICers)
o Pyrradium
o Perocets
o Klonopins
o Neurontin
o Codein
• Cold water in a balloon in vagina
• Taking slow deep breaths/other breathing therapies (http://www.ic-network.com/handbook/breathing.html)
• Practice relaxing the muscles near the bladder
• Put some work into lessoning your stress
o Use art to help visualize and express your stress…you can even use it to visualize and than erase your pain
o Spend time your pet!!
o Play with your children or with children (if you have none of your own)
o Sing (you don’t have to let anyone hear you)
o Listen to a guided relaxation audio tape to relax your body. Commonly available at book stores, we recommend the tapes by Potential's Unlimited (Barry Konicov). If you can't find those, try the Health Journey's series of tapes. [http://www.ic-network.com/shop/]


NOTE: AS WITH ANYTHING BECAREFUL….AND IN RISKY THINGS ASK YOUR DOCTOR BEFORE TRYING NEW PAIN METHODS!!!!!

:grouphug::grouphug::grouphug:

[CareBear]

Hi Chris,

I'm sad to hear you are in so much pain. Whenever I get burning, the baking soda and water thing always works for me. I pretend I'm eating a pretzel while I drink it, because that's what it tastes like to me. :)

My doc gave me a script for Urimax and that has also really helped me.

I have the same problem as you with not wanting to call and "bother" the doctor when I hurt. I guess I'm afraid of them ignoring or negating or telling me the pain isn't real. This has caused me to suffer so many times unnessecarily. Please try not to be afraid.

Cari

[Krowe5656]

Hi Chris:
wow, looks like you've gotten a lot of great ideas to help you. i wanted to tell you that for about 2 yrs. i went in every six weeks for the hydro/disten and i was always in more pain for the 1st 3 to 7 days afterward. my doc i had at that time would alwasy prescribe me "extra" pain meds. for the "extra" pain from the procedure. quite a few times he would even admitt me to the hospital overnight for pain reliefe. though one time i recall he left the hospital and the doc who took over refused to admitt me to the hospital for the night! ?? go figure. anyway, he would place Zylocaine in my bladder after the procedure which helped me a lot w/the pain. and would prescribe me a tube of Zylocaine to place on my urethra which helped w/voiding. maybe this could help you too? also, please don't apologise for how you feel about anything, no one can help how they feel and if get anxious about anything w/your health care it's understandable. please allow yourself to feel whatever you feel and try not to get down on yourself. take care and hope you're feeling better soon. Lv. Kara

[crystilclear]

I went in on Friday and no infection ofcourse! We went over my ex-doctor's notes and over the treatments and such I'm on. She thinks that a big part of my pain is comming from endometriosis or a cyst on the overies or something. But noone seems to be worried over it and talk about it very nonchallantly. She put me on Detral LA and said if I don't feel better than we'll do the laproscopy. I was having mild involentary jerking of my arms for the first two days of taking it and just felt drugged up or something. She gave me them in free samples so I couldn't see the side effects and such. Anyways I already have dry mouth from a pill I'm on and I can't stand it. My vision has been blurry too but seemed to be better this morning. Is anyone else taking Detral LA and know of side effects and how long it took before you noticed a difference? Just wondering thanks everyone - Chris :cat:

[Krowe5656]

Chris :
I took Detrol LA a long time ago. i recall the dry mouth and i couldn't stand it at all. i tried to tolerate it long enough to see if it would help but i didn't notice a differance. i don't recall any other side effects. sorry you're having trouble. i hope it clears up and helps you! call your pharmacy and ask if you can come by for side effect info on the Detrol. i am sure they will have info for you. or maybe look it up on the internet? hope you feel better soon. Lv. Kara