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View Full Version : I'm so grateful for my uro, he's great!


ICLori
07-09-2004, 08:27 AM
I got an appointment right away, for 10:20 this morning, which was wonderful.

Then he listened to me, really believed me when I talked about my symptoms, and asked me if I'd be willing to undergo a hydrodistention! Isn't that wonderful? I am so happy! Because I think I might get a couple weeks of remission out of it, which would be great! Maybe even longer if I'm lucky, who knows?

Anyway I am scheduled for a hdyrodistention on this Tuesday, and hopefully they will get lots of photos of my bladder taken etc. I have to remember to get the old photos out of the X-ray storage room so they can compare. I'm hoping the photos will show how my IC has progressed, because I know it's gotten worse since I was diagnosed 4 1/2 years ago. My biggest fear is he'll look and say "it's all in your head, your bladder looks fine to me" LOL but surely if they saw all the glomerulations last time, they will see them again this time...

You know what is weird? Now that I have the hydro scheduled, my bladder is starting to feel better. Must be the relief or something, a body/mind connection!

Oh and he gave me a consult to a uro/gyn to go see if the endometriosis is impacting my bladder, etc...just to see what else we might do.

And I'm still going to the pain clinic on 27 July.

And he gave me a script for 50 Percocet, which I am going to try very hard to save for my trip to Montana (12 days total) from 2 August until 12 August so that I can be functional then. I mean, I can sort of handle being housebound when I am not required to ride in a car, on the plane, stand in long lines, etc. or be sociable. It's THOSE times that I need the meds the most, really. So I will do my best to save them for that time. Plus maybe I will get enough relief from the hydrodistention, maybe I won't need the pain pills for awhile, god-willing!

He said I could go ahead and go up to 3 Elmiron 3 times a day!!! Just to see if that would help some.

I really got the feeling he believed me, and cared. That was so nice!

He's not too optimistic about a cure coming soon for IC, though. He said there's been a lot of false hope over the last 30 years, the same story over and over, they think there is a cure but then....

Anyway he's such a great doctor! Really everyone who works around him just adores him too, everyone in the hospital knows him. I hear "your doctor is Dr. Finger? He's a great doctor!" over and over from other practitioners.

I'm really lucky to have had him for my uro. I think I would have given up by now except for him.

Blessings, Lori

Katrina
07-09-2004, 08:33 AM
Congrats!!!!!! Good luck on your pain doc appointment.

I hope you get relief now. Good luck on Hydro....hope it helps you.


Take Care

ICLori
07-09-2004, 08:45 AM
Thank you so much, Katrina! I hope you are feeling okay these days, too - I know you are going through a lot. You are too nice of a person to have all these bad diseases happen to you! :)

Blessings, Lori
P.S. I think I am going to see if I can try Neurontin for the pain clinic - that seems less scary to me than narcotics. I mean, it would be wonderful if I could find something other than narcotics that works to make my bladder shut up, you know? If all else fails, I will look into narcotics, I will have no choice really but I am hoping so much that some miracle will happen and the Neurontin will work, or that the estrogen cream I am going to ask the uro-gyn for will work, or a hysterectomy might work, etc.

cbsummer
07-09-2004, 02:10 PM
I went to my uro today also. I am also very lucky to have someone that is not ready to give up on me as my last uro wanted to. He was ready to remove my bladder which I wasn't ready for. My new uro has not given up hope on me. We just keep changing treatments and combinations in hopes of something that will works. He also understands for me what worked yeaterday could backfire today. He sits and listens he is great wishI had told him how much I appreciate him. Sometimes I feel I complain about things but forget to thank those that need thanking. Thanks to all of you PS sure do miss Deb's posts and encouragements she was very special

kelly McC
07-09-2004, 02:19 PM
Glad to hear you like your uro:thumbsup: its nice when you get someone who is geniunely concerned and listens ! best wishes and good luck with hydro,
Kelly
huggs and prayers:pray: :pray: