HELP Pain md made me worse

[ad8123]

I am so angry and frustrated this doctor said she had treated IC and understood it, 3 weeks ago at our first appointment she changed my meds took my off valium and atarax and put me on oxybutynin (detripan?) and Iflared so bad I almost wentto the ER but I refuse to go we ive in a smal town amd ALL the md's I have seen hre say they know wha it is and then ask dumb questions like why are you on Pain meds and say things like you should drink cranberry juice OUCH as they press on my bladder. I AM SO ANGRY I JUST WANT TO SCREAM (sorry do not mean to be rude). My pain Md will not write me anything more for pain she gave m lidoderm patches but they only help a little I told er I need to go back to work rnning out of money but she justsaid no, tofay she wanted to take away my antacids se said I am tooo Alkiline (DUH-that was the point so I could pee without screaming and crying) and she suggested CRNBERRY juice. I was so upet an in o muh pain when I came home that I called my urologist 40 min away and got an appointment next week, I am going to hav to get a pain MD wih a clue and they are all in Tampa (40 min ride) UGH I am just so angr and disappointed I was so looking forward to moving here and now I hate it, all the md's here are clueless about IC and we have a hospital and the Watson Clinic that are supposed to b up to date and all Fancy but that is such a lie, unless I had cancer then maybe they could help-yes I am that angry ad cranky tonght. Thanks for listening maybe this should have gone under venting? What do I do now?

[kadi]

I am so sorry. That is completely ridiculous. If it takes going to Tampa, then hit the freeway! It's worth it to have good care even if it's farther away, because when you have effective treatment, you will feel better and not need to go to see them as often!!!

Wishing you better days (and smarter doctors) soon.
Love,
Kadi

(PS. I drive 1-1/2 hours each way to see a doctor at a major medical hospital & consider it well worth it)

[kelly McC]

I am so sorry you have to deal with all that. I hope your upcoming visit with uro will be better and hopefully you can get your pain under control.
kelly

[ICNDonna]

:grouphug:

Donna

[ad8123]

Thank You,

Kadi 1 1/2 hours wow, at least I am not the only one driving to get to md, sorry your drives is so long. Today I feel a little better emotionlly I think I was justso disapointed to have such a terrible set bec because of a MD. But today I remember there are ups and downs and at least Iam diagnosed! not knowing what you have or having others not believe you is so much worse.



having a better day!:D

[kadi]

Hello ad8123,
Well, the one and a half hours is a drag, but the good part is that since friends are driving me to the appts for DMSO (because I'm taking Darvocet to be able to hold it the 20min & can't drive on that ), we go to lunch first at a really cute diner. It makes the trip a bit more "normal" to have burgers & milkshakes together. Then after the DMSO, I curl up while my friend drives, & don't feel quite like such a pain because we had fun first! I focus on how grateful I am to be able to go there at all (geographically & insurance-coverage).

There's someone else who posts here that she takes a train to see the same doctor I do & makes it a fun overnighter at a friend's house! :D So, you're not alone in the medical commute!

I really hope that you find a knowledgeable & compassionate doctor and don't worry if it takes a few tries. Seems to take most people between 5-10 doctors just to get diagnosed.. And you've now got that part done and you're on your way to getting it managed...

Just hang in there, there are very good and caring doctors out there who are fighting to help us & find a cure...

Hug,

[ICLori]

Kadi, what a wonderful, positive idea! It's wonderful how you've taken a difficult situation, and put the silver lining into the clouds. Posts like this are so inspiring! It shows we can still have good times and happiness even if we are going through something hard.

Blessings, Lori

[crystilclear]

I know it's hard and frusterating but it helps me to know that we're going through it together and are here to help. Sending you lots of :grouphug: and :kiss: take care - Chris

[Katrina]

Angela, sorry you went through that stressful situation with the local docs....sometimes they are ok and sometimes not. You had a bad bunch there. Thank the Lord you knew better!!! I hope driving to the Tampa pain doc works out well.

:kiss: :kiss:

[kiffy313]

ad8123,
I just read your post and wanted to say I hope you are feeling better and getting some relief...It is awful when the Dr.'s just won't listen or even try to understand. It makes it so nice when we find one who is great and even if they don't know about IC are willing to learn and listen...I have finally found a good Dr. and I wish you well. I, too have driven a ways to get help and it is worth it in the long run (pardon the pun:D ) I think that is a great idea that you and your friends have a nice meal, that helps make it not such a negative experience...When our son was little we had to take him once a year 5 hours a way to a Pediatric Allergist for his yearly check, and we used to stay overnight and after the appt. we would take him to the Zoo (Oklahoma City) and to the museum and let him pick the restaurants, etc. He is almost 19 now and says he does not really remember the Dr. visits, but he does remember the Zoo, etc, so that is a wonderful thing...
Take Care,
Hugs,
Kan

[pele411]

i will never understand why so many doctors and nurses still mention cranberry juice?!? how do they not get that - it is probably the easiest part of our illness to understand. right before i had my surgery to diagnois my IC the nurse says "now after the surgery, in the recovery room, I will only let you have cranberry juice if you don't have IC" i wanted to be like uh, thanks, cuz i was probably going to want the juice either way AHHHHH :)

good luck, stay strong :)

Jessica

[Krowe5656]

Angela:
I know all about going to the ends of the earth to try and find a doc w/a clue. i myself do not understand why people choose to be doctors and know they are going to be in the people business and then act like the resent people for being sick, in pain and in need of decent emotional support and then be unwilling to provide the medical care people need?? i mean if you don't believe in pain reliefe of any means, be it pain meds or accupuncture why why why go into the medical field in the 1st place?? uggg it's so crazy! keep the faith and be good to you! (((Angela))) Lv, Kara