I don,t even know what to do

[malone]

Hi Guys,
I am sitting here just crying all the time. The short version is that I was on heavy meds--Oxycontin, Percoset anything that helped. I have a great doctor who is really smart and very compassionate. About 4 months ago the pain started to lessen and for the first ime in about 10 years I felt as if I was going into remission. Stopping the pain meds was a long involved process and at times not very pleasant but again I was so lucky to have a doc walk me through it. About a month ago it started from exposure to mold again I think, but I only had to take something once in awhile.. When it started to get really bad I did not take what I should have taken to get ahead of the pain and the pain took on a life of its own. Now my bladder is somewhat better but I have the most horrible, intolerable pain in my back/side that seems a little low for the kidney. I do have kidney stones and have passed about 5 in the past 15 years. The pain will radiate around to the front and down to my pubic bone. I do not want to become habituated again--it was heaven being off the meds--no pain, no constipation and I do not want the ordeal of getting off again. I am kind of scared b/c this pain is different. I took a sample to my uro but no traces of blood and I am on antibiotic for possible infection. I know I am rambling and I am so sorry but the true sadness I feel is overwhelming. I know its hard for us all so thanks for letting me just kind of let it all out. Sending you all hugs---Malone

[Marlana]

I will be praying for you and to let this pass. If you need the meds to help you now, please ask for them. It is not addiction when it is for medical use only. I hope this passes soon. Try your heating pad and ice. Maybe a nice hot bath will help too. Take care..

[SharonA]

Malone...I am so sorry that you are in such pain. Any type of pain is difficult but when you add not knowing why the pain is happening, it is twice as hard. I hope you get relief very soon. :kiss:

[Iris]

I am sorry to read you are experiencing so much pain, and hope that you can get something that will bring you some relief. It is hard when you have come as far as you have off your meds, and then have to go back for relief. Please keep us posted as to how you are doing, hugs and prayers Iris.:hi: :pray: :grouphug: :flower:

[Dixiefireball]

I'm sorry you are having so much pain again after getting better for a while that is such a bummer.
if heat isn't helping and your only using your pain medicine until you start getting better i don't see a problem with it as long as your taking it like it says on the bottle.
I also have to take pain medicine daily and can't cope without my meds see when i get up in the mornings and pee the pain hits and hits hard because i normally dont' get up to pee during the night so all that urine has been in my bladder over night which isn't good because that is between 6-8 hours my bladder hold all of this.
after use the bathroom i get my medicine out which is only a perocet 10/325 i try to only take a half at a time i really don't like having to take a whole one but will if the pain is God awful.
after i lay there for about 30-45 mins with a heating pad on my bladder and my medicine in me then i can ease up out of the bed and slowly start my day.
I don't like pain medicine either and before ic you couldnt had twised my arm to make me take one i hate pills any type of pills i hate them and always will.
but i rather take something i hate then suffer.
Please take your medicine if nothing else is helping dont feel bad on your self! there is alot of things wrose in life then having to take pain medicine.
things like suffering in pain. to me any ways.
Please let us know how your doing.
sending you hugs and prayers
Rhonda

[windwalker]

Sorry you are going through so much. I hope it subsides soon. Prayers going your way.