Has anyone found a way of dealing with that awful "sensation"...

[atkinsonfmaily]

that feels like arousal but orgasm seems to make worse? I have heard others mention the feeling, like the muscules are tight and won't relax... I don't know how to explain it. Just wondering if anyone has found a way to deal with it. It is so annoying!!

Heather

[Melanie]

I can't relate exactly, orgasm doesn't make me worse. But intercourse sure hurts like heck.

The only 2 things I've found that really help me are physical therapy (internal myofascial release). And Mr. Frosty (it's a condom filled w/ KY that I keep in my freezer and use after sex to calm and cool down).

[graceimnot]

I understand what you are saying. I am one of the few that can have some vaginal sex, my difficulty is when I start to reach orgasim I clench up and then it is gone. Does anybody have any ideas?

[Cheryl529]

Melanie, that is a great suggestion about the condom in the freezer filled with KY. Do you insert it after sex? If so, how long do you leave it in? Do you use a fresh condom everytime? :idea: :hmm:

[Cheryl529]

Graceimnot, I'm sorry to hear of your sexual frustration. It's hard for us with IC. First of all I would talk to your doctor to see what they have to offer.

Sometimes I experience the same thing. My husband says I let my mind wander to much and don't concentrate on what were doing. I'll think of what I need to do, bills, things of that nature. Or, sometimes my self esteem will get in the way and I get self conscious, etc.

I would suggest expierimenting more to see what you both like. One thing that surprisingly helps me from time to time is anal penatration. It's hard for me to have anal sex but if he uses his finer or a small sex toy that can really help. I would have never guessed it but it must be the extra stimulation, and, the good thing is if your too scared to have him in you b/c of size, etc a finger is much smaller. Just an honest suggestion.

Also, we've just discovered if he works on me first and manually rubs my clitoris for awhile that will help. Once I start enjoying it I lay at the edge of the bed as he stands. We then have "gentle" sex and he continues to rub my clitoris. This comination has helped me so much. I have to admit it's not the most flattering position. You have to have your legs somewhat up which can make your tummy bunch up. lol. But, if you love your partner hopefully things will be cool. I usually can let myself go and enjoy it much better in the dark to be honest. lol. I hope this honest advice helps you. Good luck. I suffer from a low sex drive so I love learning new things and hearing advice. good luck. -Cheryl :woohoo:

[Melanie]

Melanie, that is a great suggestion about the condom in the freezer filled with KY. Do you insert it after sex? If so, how long do you leave it in? Do you use a fresh condom everytime? :idea: :hmm:

Yes, you can insert it (depending upon how firm the condom is and how "open" you are). I often just put it on the outside and sometimes slightly inserted. I leave it in/on until it feels better (or until the cold becomes too uncomfortable).
I don't use a fresh condom everytime. I just wash it very well afterwards and put it back in the freezer (wrapped up in a paper towel). But I do get new ones from PT occasionally.

[heybrej]

Oh yes! When I am in a flare or have a UTI, I get that feeling 24-7!! I feel like I am aroused (even though I know it is just irritation). I HATE being touched by my bf when I feel this way, so i pleasure myself, because thats what I feel I should do! Lol....call me a horney lil dog;) BUT, when I orgasm, 2 mins later, the feeling is WORSE and actually more painfull! Grrrr.......Usually to solve the problem a bit, I use my heating pad directly on my urethra (on low). This makes it feel better because it masks the irritation. When warmth is applied, I just dont feel that "sensation". Warm baths are also great!

_breanna_

[atkinsonfmaily]

BUT, when I orgasm, 2 mins later, the feeling is WORSE and actually more painfull!

That is exactly how I feel!! It is SO frustrating!!

Heather

[Evea]

I feel that sensation also. I use the heating pad just like Breanna does, and it does help.

[navemj]

What do you mean by sensation? Is it before you have sex or just during the day? I think I might have the same thing.
Thanks,
NaveMJ

[atkinsonfmaily]

It happens throughout the day. Not during foreplay or pre-sex. It just feels like you are "turned-on", but after orgasm the sensation only gets more intense and aggrevating!

Heather

[janetm]

1) There is something called PSAS - persistent sexual arousal syndrome. They have a support group on yahoo.

2) Thanks to those of you with the courage to talk about sexual variations. Intercourse can be painful, but there are other things we can do and ways of working into intercourse.

[navemj]

Heather,
I know exactly how you feel. I have suffered with it long before IC. I thought I was abnormal so it helps to hear that others have it also. I have noticed that it is worse if I wear a pad for a long time. Do you have this problem? I am going to look up the PSA. I hope it helps. Hope you start to feel better!
Navemj