PAIN and otions running out

[sisterofic]

Dear list: I am emailing on behalf of my sister who has IC, IBS, Kidney disease and other illnesses.

She has had all of these diseases for many years. I am very worried about her. She takes the Fentanyl 50 patch and changes it every 72 hours for her intense pain and is dependant on it. She says if she even forgets to change the patch for 1 hour she starts going into withdrawal even with a current patch on. I understand her pain is real and she needs a pain medication but according to her Fentanyl 75 is now the highest dose they can give people because of the FDA and now if her body gets used to that level all she can do is scream in pain. If she goes to the ER all they want to do is pull the medicines.

Is there any real relief from the severe pain with IC? She told me she took one drug 3 years ago to help things and it made her liver start to shut down. I know she already also had Elavil. I also read some things on your web site and I know she already does the microwave packs, special diet and many other things. Her kidneys now shutting down and she will have to go on dialisis soon. She said she traded the pain for the devil by using the Fentanyl patch. Is that true? Have any of you been on Fentanyl and then come off again with any other successful pain relief?

I am very sad for my sister and I want to know can anyone help her tremendous suffering as she stays curled up in a ball crying from her pain even on Fentanyl?

[ICNDonna]

I believe I posted a response to this same message only a few days ago.

Hopefully someone who is on the same medication will respond.

Donna

[Dixiefireball]

i also posted under your other post I do pray she does get the helps she needs.
and things gets better for her what a kind sister you are.
sending hugs and prayers
Rhonda

[blue]

http://www.ic-network.com/forum/showthread.php?threadid=7562

Katrina put together a list, try this

[TiaTia]

Sister...

I tried to send you a Private Message, but it looks as if you are not accepting them, so...

I am sorry to hear that your sister is having such an awful time. I completely understand when she says that she feels as if she traded with the devil as far as the Fentanyl goes.

I was on Fentanyl for about a year or so, 200mcg. every 72 hrs. The law you referred to, regarding a limit of 75mcg., must be relatively new. I had to wean myself off the Fentanyl, because my Dr. wanted me to stay on it "for the rest of my life," as she put it, and I just wasn't okay with that.

I would be more than willing to go into all of it in further detail with you, but it really is too involved. long, etc., to do here. If you want that, send me a Private Message with an email or something where I can respond to you. Either way, good luck to you and your siter. You are both in my prayers. As others have said, she is blessed to have you care so much, and that is helping her already - more than you probably realize. Many, many people out there are struggling with this disease alone, and the difference is huge. Take care...
Cristina

[Katrina]

I will add a prayer and hug to the list Blue posted.
Luv ya Blue!