glowstrz
06-23-2004, 12:06 PM
Hi all...
I found this site and I want to tell my story since it has gone so well, but know how bad it can be.
In January of 2003 I got my first ever UTI @ the age of 23. Went to Planned Parenthood and was cured. A few weeks later I went back to Planned Parenthood with UTI symptoms but no pain. They gave me meds for the UTI and also a yeast infection which i didnt know I had. A few weeks later the UTI sypmtoms came back (with out pain) and I went back. Planned Parent hood said i did not have a UTI and tested me for STD's (all tests were negative). They took me into a room and told me "we dont know what you have". Well I just couldnt believe it. I cried while she told me to change my soap, shower more, shower quickly after exercising....all things which didnt help. They said to "ride it out". So I tried. But this constant urge to urinate was invading my life.
I was so stressed out by it, im sure I made it worse. Some time after that I was at work and it was AWFUL. I countn't think straight. Went to Emergency Care and they told me it was the remnants of the first UTI I had. SO they put me on more meds. Well needless to say a week later it all came back. At this point it was awful. I was at my WHITS end. I was miserable and depressed and stressed. I decided that it was time to see a real Dr. I had avoided it because I didnt have insurance at the time. But at that point i didnt care. I needed help and it didnt matter what it cost! I went to see a urologist. This was after 5 or 6 months after this all started. I told him what was going on and between July and September he tried differnt things ruling out other possible causes.
He did a cystocopy and told me that I probably had IC. I left the Dr. in tears. The thought of having this disease my whole life scared and angered me to no end. But witht he help of a good friend I relaxed and realized that I was hopefully on my way to recovery. In September we started the DMSO's, which are no fun, but after 3 of them...i had a little relief and that was enough for me to continue. I also started Elmiron around the same time.
With the combination of the DMSO's and the Elmiron, my dr was confident i would feel better. I had 12 or 13 Dmso's in total. I was supposed to keep getting them untill i felt 100% better. But the holidays were coming and I was to be out of town. He told me to schedual an appointment for when i came back (as i was to be away for over 2 weeks). But between my last appointment and when i returned the combo of the DMSO's and the Elmiron kicked in. Haven't been back to the Dr. since December. I just make sure to take my Elmiron when i am supposed to and stay as stress free as I can.
Everyday when I take my meds I think my lucky stars I feel better.
So there is hope to find relief. I hope you all can. This disease goes undiagnosed for so long, it is just awful. Only puts more stres onto the patient. Good LUCK!
I found this site and I want to tell my story since it has gone so well, but know how bad it can be.
In January of 2003 I got my first ever UTI @ the age of 23. Went to Planned Parenthood and was cured. A few weeks later I went back to Planned Parenthood with UTI symptoms but no pain. They gave me meds for the UTI and also a yeast infection which i didnt know I had. A few weeks later the UTI sypmtoms came back (with out pain) and I went back. Planned Parent hood said i did not have a UTI and tested me for STD's (all tests were negative). They took me into a room and told me "we dont know what you have". Well I just couldnt believe it. I cried while she told me to change my soap, shower more, shower quickly after exercising....all things which didnt help. They said to "ride it out". So I tried. But this constant urge to urinate was invading my life.
I was so stressed out by it, im sure I made it worse. Some time after that I was at work and it was AWFUL. I countn't think straight. Went to Emergency Care and they told me it was the remnants of the first UTI I had. SO they put me on more meds. Well needless to say a week later it all came back. At this point it was awful. I was at my WHITS end. I was miserable and depressed and stressed. I decided that it was time to see a real Dr. I had avoided it because I didnt have insurance at the time. But at that point i didnt care. I needed help and it didnt matter what it cost! I went to see a urologist. This was after 5 or 6 months after this all started. I told him what was going on and between July and September he tried differnt things ruling out other possible causes.
He did a cystocopy and told me that I probably had IC. I left the Dr. in tears. The thought of having this disease my whole life scared and angered me to no end. But witht he help of a good friend I relaxed and realized that I was hopefully on my way to recovery. In September we started the DMSO's, which are no fun, but after 3 of them...i had a little relief and that was enough for me to continue. I also started Elmiron around the same time.
With the combination of the DMSO's and the Elmiron, my dr was confident i would feel better. I had 12 or 13 Dmso's in total. I was supposed to keep getting them untill i felt 100% better. But the holidays were coming and I was to be out of town. He told me to schedual an appointment for when i came back (as i was to be away for over 2 weeks). But between my last appointment and when i returned the combo of the DMSO's and the Elmiron kicked in. Haven't been back to the Dr. since December. I just make sure to take my Elmiron when i am supposed to and stay as stress free as I can.
Everyday when I take my meds I think my lucky stars I feel better.
So there is hope to find relief. I hope you all can. This disease goes undiagnosed for so long, it is just awful. Only puts more stres onto the patient. Good LUCK!