View Full Version : its possibale i have ic
06-22-2004, 05:04 PM
hi i talked to my doctor today for my test results he said i have a inflamed bladder but he dont know why are how igot it or how to get rid of my proublem he is treating me with medicine you would treat ic and he wants to do a test to messure how much urinie my bllader can hold what good can come from this painful test and is it worth the pain i have read all the syptoms which i have all but the doctor is not sure if i have ic i need to know who i can talk to and were i can go for studies on this condichion. thanks for listening please forgive my spelling
06-22-2004, 05:21 PM
First of all, I want to say "Good for you" for posting. I have been too chicken to post before this. My doctor did the retention test with me too. That's normal. And your right, it's painful and embarassing.
It all sucks but I think it depends on how bad your symptoms are. This site should have the information your looking for.
Here is another site to look on:
You can email me @ email@example.com
06-22-2004, 05:29 PM
:welcome: to the IC Network.
A good place to find out about IC is the Patient Handbook at http://www.ic-network.com/handbook/ You'll find information there about symptoms and diagnosis of IC.
There are some advantages to having a definite diagnosis, and also some advantages to ruling out other possibilities.
Some doctors feel comfortable with diagnosing IC based totally on symptoms; others prefer to rule out other possibilities first.
My father had bladder cancer and had many of the same symptoms as I was having so it was very important to me to rule that out, which was done with biopsies.
Just remember that it's your body and you who must make the final decisions about tests and treatments.
Sending warm healing thoughts,
06-23-2004, 08:28 AM
:welcome: :welcome: Welcome to the ICN!
http://www.ic-network.com/ I too highly recommend the patient handbook that Donna gave you a link to....this link will have links to all the info ICN has for your own searching.
I hope the best for you.
06-23-2004, 09:33 AM
:hi: and :welcome: Do check out the Handbook plus all the other information available to you here. You can learn so much from all of it. :)
Hello and welcome, do check out the patient handbook that was recommended by the gals, and the network has a lot of good information, self help care and diet information if needed. Once again welcome, and let us know how you are doing, Iris.:hi: :welcome:
06-24-2004, 06:40 AM
Hun, you must be so frustrated!! ACK! I sincerely hope that the doctor finds something when they do the procedure. I believe that it's better to know what's wrong and begin to treat it than NOT knowing and having awful symptoms of a mystery disease. Good luck and PLEASE let us know how you're doing! As far as information and things like that, all the information the others gave is all that I have... Although, I've read tons of articles and medical journals and things of that nature as well. They all pretty much have the same information, but worded differently. Also, if you have any questions, I'd be glad to answer them as well as anyone else here!! Love and hugs!!
07-22-2004, 07:19 PM
will i had that test done where they messure how much your bladder holds and my doctor said he feels i have ic and knows a doctor who thats all he dose is ic and is trying to find a cure he wants to use me as a lab rat he says i am the 1st male to have such a bad case he has tryed a procedure on two woman that is working for them he gave them a shot of stairroids there bladder has anybody here of this before if you have are just want to talk my e-mail is firstname.lastname@example.org or you can call me at 314-845-6360 or e-mail me your number and i will call you thanks harold detremend to find a cure :woohoo: :woohoo:
08-13-2004, 04:00 PM
i had it done today not too bad but i wont lie after every time i pee the pain is bad and it burns the bad part is i pee every 15 min but i got pain pills hope it gets better from here jus thougt i give a up date :yikes:
08-13-2004, 05:18 PM
I just wanted to applaud you for posting and getting involved with your condition. Educating yourself and taking the initiave with IC is a great step toward helping to feel more comfortable with treatments. The ICN is a great way to get the information and support that is needed. Good luck to you!
08-15-2004, 04:44 PM
Hey Harold- :hi: :butterfly After a year of being diagnosed with ic my third urogyno did a cysto and said it may not be ic but an inflammatory disease. The urodynamics tests I took a year ago were uncomfortable because of the catheter but the chemicals did not show 100% and were not that bad. But then I may not have ic, I may have an inflammatory disease of the bladder. Get some kind of cysto or exam that examines the inside of the bladder wall. Anyway elmiron helped me a lot and so did the atarax. Although my hair is coming out in strings from the elmiron and it made me queezy.Also go for more opinions. Trust me your not alone in this.
Keep writing we are here for you,
Powered by vBulletin® Version 4.2.0 Copyright © 2013 vBulletin Solutions, Inc. All rights reserved.