I am so sick of being sick

[radstudent]

I have been in and out of the hospital all year. It started in December when I had my interstim revised. Then in January I started having rectal bleeding and I went in for a routine colonoscopy and ended up in ICU having seizures. I came home for a total of 4 days after that and ended up back in the hospital for 2 or 3 weeks. I got that all under control and finally got back to work in March. I worked for a sum total of 3 weeks and ended up in the ER in the middle of my shift for severe pain on April 3. I have been in the hospital most of the time since then. My computer broke during this time so I couldn't get online to talk then. I was in for 18 straight days, out for like 4 days and ended up back in again. Then after being in the hospital for another week, I had my interstim revised again because the lead had migrated. By this time it was May 4. I got out on that Thursday and wouldn't you know that Saturday morning I woke up with horrible chest pain. I go to the ER and find out I have a pulmonary embolism (a blood clot in my lung). Then they do an ultrasound of my legs and find 2 blood clots in my legs. This lands me in the hospital for another week and a half. I had to stop my birth control pills because they can cause blood clots. Of course the birth control pills were really helping to control my IC. Then a week later I end up in the ER AGAIN because I think I am getting another blood clot in my leg. They happen to do a urine test. It had blood in it and because I was also having back pain they did a CT scan of my abdomen and pelvis and found 2 kidney stones...another week in the hospital only to be told that the stones will pass on their own even though they still haven't and I am still having horrible pain. There have been so many days that the pain has been so bad that I have almost gone back to the ER but I haven't just because I dont want to be put back in the hospital. I am at the point that I just don't know what to do. I am on high doses of pain meds and they are not helping the pain and things just keep getting worse. Ok I think I have gotten it all out of my system now, I hope. Thanks for listening.

[ICNDonna]

I wish I could jump through my computer and give you a hug. You've really had a horrible year so far. I just hope you're better very soon.

Sending gentle hugs and prayers your way,
Donna

[blue]

I'm so sorry that things are so rough for you! It doesn't even seem as though it could be real! How much can one person take? Geez! Well, just so you know, you are in my prayers!

[vm]

You have absolutely been through the wringer, rad. :( I feel so awful for you. Please remember that I am only about 2 hours from you and my oldest is out of school. I would love to take a daytrip up your way if you ever want someone else with IC to talk to or just hang out with, OK? DO NOT hesitate to contact me, OK? :kissing:

[creatingkarma]

I feel bad for what all you have been through this year & am hoping that you feel better soon. I know that this doesn't help you, but I want you to know that you have helped me. I have been feeling sorry for myself lately because I have not found any relief for my IC. All that I have been through this year does not even come close to what you have been through. After reading your post, I have realized that I should quit feeling sorry for myself because there is always someone out there who is going through more than I. In a perfect world, there would be no illness, but as we all know, this is a far from perfect world. God sends us special people in our lives to help us through these hard times & I believe that you & everyone else on these boards are heaven sent.

:pray:
Karma

[SharonA]

I am sending you gentle :grouphug:and soft :kissing:. There are times when I wish we could say, "Beam me up, Scotty" and we could instantly be where we want to be. I would be sent to you to give those hugs and kisses in person. You have been through so much. I am so sorry. I really wish I could help. :kiss:

[Dixiefireball]

Rad i'm so so sorry you have been threw so much and still going threw so much i have been praying for you and suec has kept me updated on how you was.
hope things get better soon
btw welcome back we have missed you.
Rhonda

[Sue]

you with us again !! Welcome back !
Glad your computer is working again too.
Love, Sue Claus -:love: :grouphug: :butterfly :party:

[tillysav]

I am so sorry you have been so sick - enough already! I have wondered where you were and missed you. Sending a prayer your way right now!:pray: :pray: :pray:

Hope you are feeling better soon.:kiss:

[BLOORE74]

Boy, I don't feel so alone. I haope u r feeling better. I also have an intrstim, I had 2 have surgery again cuz my lead broke. I was still home on medical leave when it broke. I didn't do anything but sit on the couch. It sure is a expensive machine to just break like that. And of course there went another $56,000 for surgery. And since it's been fixed i haven't been able 2 work. It does nothing for my pain at all. I take demeol for pain. Is your interstim working 4 u? Mine is a piece of very expensive junk!!!!!!!!!!!!!!!!!!!!!:cussing:

[Iris]

Hi, sorry to read about your hospital stays, you sure have had a lot to go through during the year. Sending prayers and hugs your way, and hope things start to turn around for you soon, hugs and love Iris.:pray: :kiss: :grouphug: :flower:

[SheriG]

:dizzy: Poor Rad, my goodness, you have been thru hell and back! I feel terrible about all the things that you have gone thru and the horrible pain you have now. Some pain clinics are starting to use pumps for pain meds...perhaps worth looking into. I wish you painless days of warm sunshine ahead...I will keep you in my prayers :pray: Please post soon and let us know how you are doing!:flower:

[kim mondro]

im sorry you've been feeling so sick the past year. i thought i was bad with ic then finding out i had ibs and pelvice floor dysfunction then i found out today that im enimik however that's spelt (lack of iron) and im only 21 but im still not going through as much as you. jsut keep your hopes high and im really not religious but i will pray for you. i know how it feels not exactly but somewhat. if you ever need someone to talk to you can email me anytime at utterlyhopeless03@yahoo.com also where are you located? maybe we can meet for up for lunch or something. also what is interstim?
kim :kiss:

[peiti]

Rad,

I am sorry that you have been through so much. I will pray for you and hope you feel better soon. :pray:

[Julie Smith]

Dear Rad, Sometimes just when you think you've had all you can take, something else gets thrown on your plate again and again.

I admire you for being so strong. Sending you warm hugs and hoping one day very soooooooooooooooooooon you will be feeling better. My :pray: are with you. Remember your not alone with your ic family 24/7. :kiss: :thumbsup:

Julie

[Mimi-in-Chicagoland]

I'm so sorry, Louise. I know you're ready to be over all this by now. I'm guessing you have a hemotologist by now. Are you on blood thinners? I am very familiar with coumadin...we could start a club. The no birth control, thin blood club. :D I am so glad you went to the ER with the chest pain! I hope that you heal soon.