the doctor said I had IC but now I just have a inflammation and overactive bladder???

[tracyh]

I had been treated for IC for the last 2mths but I had a distention and a biospy on monday and even at the hosp. the doctor had told me that he had to do 3 biospys and I had IC . BUt when I went to the doctors office to get the test results he said that I dont have IC that there is alot of inflammation and I had a overactive bladder that I dont have IC and the test on the biospys came back ok so what is up with that I am so lost !!:confused: The doctor said 3 times that I had IC the very first time he went in the bladder he saw IC . I am not for sure what to think on this. Yesterday I was in so much pain I cryed almost the all day. I went to the bathroom 25 times 5 of that is at night. SO please let me know what you think . MY personal email is maylordblessu@aol.com THanks

[holles]

can you get a copy of the pathology report to see exactly what it was that was biopsied? it never hurts to get a second opinion either.

((hugs))

[ICNDonna]

Is your urologist offering a treatment plan? If not, and if he is not willing to treat your pain, my suggestion would be to get a second opinion --- or change doctors.

Warm hugs,
Donna

[Katrina]

Has me confussed....I thought with IC the biopsies were to rule out other things...not confirm IC.....wish I could help....I would upset too....probably seeking out a second opinion....atleast like Donna said.


So sorry you are suffering...hope you feel better soon.

[sleepyangel30]

My doctor told me my bladder llinening is red and chroniclly inflammed and I do have IC. If your doctor don't treat you with anything. it's best for you to find another uro and get a second opinion.

[blue]

I thought the biopsy was to rule out cancer! Maybe, there is some miscommunication between you and your doctor.

[Calli]

Actually, they can confirm IC with biospy. Biopsy is also for other things, like to see if there is Endo in the bladder wall.

My only problem is that mine didn't confirm neither IC nore Endo but the pathologist said the biopsy wasn't deep enough. The urologist said they would see it with this kind of biopsy but admited it wasn't taken into the muscle.

[Alexa]

No, actually, a biopsy is used to rule out other conditions, such as cancer. It cannot specifically diagnose IC. All of my physicians, including 3 urologists, have been consistent with this information.

http://kidney.niddk.nih.gov/kudiseases/pubs/interstitialcystitis/index.htm#4

How is IC diagnosed?
Because symptoms are similar to those of other disorders of the urinary system and because there is no definitive test to identify IC, doctors must rule out other conditions before considering a diagnosis of IC. Among these disorders are urinary tract or vaginal infections, bladder cancer, bladder inflammation or infection caused by radiation to the pelvic area, eosinophilic and tuberculous cystitis, kidney stones, endometriosis, neurological disorders, sexually transmitted diseases, low-count bacteria in the urine, and, in men, chronic bacterial and nonbacterial prostatitis.

The diagnosis of IC in the general population is based on:
Pinpoint bleeding on the bladder wall
presence of urgency, frequency, or pelvic/bladder pain
cystoscopic evidence (under anesthesia) of bladder wall inflammation, including Hunner's ulcers or glomerulations (present in 90 percent of patients with IC) absence of other diseases that could cause the symptoms

Diagnostic tests that help identify other conditions include urinalysis, urine culture, cystoscopy, biopsy of the bladder wall, distention of the bladder under anesthesia, urine cytology, and, in men, laboratory examination of prostate secretions.

Urinalysis and Urine Culture
These tests can detect and identify the most common organisms that infect the urine and that may cause symptoms similar to IC. However, organisms such as Chlamydia cannot be detected with these tests, so a negative culture does not rule out all types of infection. A urine sample is obtained either by catheterization or by the "clean catch" method. For a clean catch, the patient washes the genital area before collecting urine "midstream" in a sterile container. White and red blood cells and bacteria in the urine may indicate an infection of the urinary tract, which can be treated with an antibiotic. If urine is sterile for weeks or months while symptoms persist, the doctor may consider a diagnosis of IC.

Culture of Prostate Secretions
In men, the doctor might obtain prostatic fluid and examine it for signs of an infection, which can then be treated with antibiotics.

Cystoscopy Under Anesthesia With Bladder Distention
During cystoscopy, the doctor uses a cystoscope--an instrument made of a hollow tube about the diameter of a drinking straw with several lenses and a light--to see inside the bladder and urethra. The doctor will also distend or stretch the bladder to its capacity by filling it with a liquid or gas. Because bladder distention is painful in patients with IC, they must be given some form of anesthesia for the procedure. These tests can detect bladder wall inflammation; a thick, stiff bladder wall; and Hunner's ulcers. Glomerulations are usually seen only after the bladder has been stretched to capacity.

The doctor may also test the patient's maximum bladder capacity--the maximum amount of liquid or gas the bladder can hold. This must be done under anesthesia since the bladder capacity is limited by either pain or a severe urge to urinate. A small bladder capacity under anesthesia helps support the diagnosis of IC.


Cytoscope

Biopsy
A biopsy is a tissue sample that is then examined under a microscope. Samples of the bladder and urethra may be removed during a cystoscopy and later examined with a microscope. A biopsy helps rule out bladder cancer.


Take care :)

Alexa

[Calli]

Im sorry, I have no time to repost stuff but here's the link to my other thread:

http://www.ic-network.com/forum/showthread.php?s=&threadid=7545

Plus: I guess that my 5 urologists (from 2 different countries, specialised in IC, titles proffesors, heads of their departments) do not agree with your Urologists since they all support the biopsy diagnosis. Doctors. What can I say...

"At the same time, a small piece of tissue may be sampled, a biopsy, so that a pathologist may support the diagnosis. Under the microscope, an intense chronic inflammation of the connective tissue just below the mucosal surface may be observed in cases of IC. In the initial stages of IC, only very little scar tissue may be found, but the amount will rise later on. The pathological findings indicate a strong suspicion that the disease may be auto-immune in origin. It seems plausible that elsewhere in the body a similar auto-immune disorder may cause other health problems. "

But whatever, I don't care about diagnosis anymore, I just want my bladder not to be inflammed anymore.