blood clotting disorders

[kirasieni]

Out of curiosity has anyone here been diagnosed with any kind of blood clotting disorder? During my pregnancies I have had alot of bleeding and last time my placenta abrupted so when I was pregnant this time my Dr did a test and sure enough I have a clotting disorder which causes my body to produce clots more easily. Expecially during pregnancy when my hormones are high. I wondered if this could be a link to IC.
I expecially was wondering when I heard that herapin injections are a treatment. See why I linked this in my head? ALso my mom was diagnosed with urethral syndrome which alot of drs think is IC and she has the clotting disorder too.

[rjyoon]

I have Idiopathic Thrombocytopenia Purpura. It's different than what you mentioned, and is unrelated to any IC treatment. My hematologist does think that the IC & ITP are related somehow, as he has another patient with the same combination.

[crystilclear]

During my pregnancy with my daughter I bled until I gave birth to her. The doctors treated my symptoms and never tried to figure out the reason behind it all. Every month I get my period I have blood clots come out. The doctor says it's nothing to worry about but when I went to the hospital 3 weeks ago they thought I was miscarrying because the clots were so big. I don't like the doctors I see. They don't want to help at all. One keeps saying I have PMS. The gyno did a vaginal exam and said he ruled out endo (which I've been told can only be done by Laproscopy). I really don't know if it is caused by IC or if it is harmful. I hope you get some answers soon. I'm sorry I wasn't much help. Take care - Chris :)

[kirasieni]

I have something similar to factor v leiden. I was reading that they think fibro li linked to it. My brother died from a stroke from it at 32 years of age. I just think its interesting that some form of herapin (SP) treats both dont you?

[Judith56]

I have something called superior vena cava syndrome- not good! I have clots in my superior vena cav which is a major artery that goes into the heart as well as blood clots in many of the viens in my chest. I had angioplasty almost two years ago. I am on Coumadin for the rest of my life. I have this because I have a chem port in my chest for IV meds. I don't know if I am ever able to get rid of the port if I would still have to be on Coumadin. But becuase of my other health issues, I most likely will always have a port. Judith

[Indy]

I have antiphospholipid syndrome that I found out before years before my IC. It caused 8 miscarriages from blood clots in the placenta. I have to take a baby aspirin every day of my life to prevent clotting and can't take hormones.

I did have a successful pregnancy being treated with aspirin and heparin injections.

This is an autoimmunity problem and I believe IC is too. I also have fibromylagia.

This stuff is all related!

[Babs RN]

I have antphospholilid antibody disorder, and Factor V Leiden mutation. Thw APSL makes too may clots in the araa affected and the factor V is a protein-C d(so therefore I make clots and then can't ger rid of them. I on injectable Heparin for my entire pregnancy,,the worst thng I have expericed are a blood clot in my land a left sided stroke. Still alive and kicking at almost 34. if you need to talk, PM me.


Hugs,
Barb

[BLOORE74]

Ever since I got ic & they put me on all kinds of meds I have a problem w/ my blood clotting. Even just shaving my legs if I just slightly cut them I bleed like crazy! I also bruise easily. When I went 4 surgery they were putting in my iv & the nurse had a problem & she took it out & restarted again, 3 TIMES!!!! Every spot she poked bleed like crazy!!! She asked if this usually happens I told her yes & told her my meds & she didn't know which one would do that. I don' t take any blood thinners. They almost didn't do the surgery cuz of the bleeding, I said u poked & protted me & took 4 tries to get my iv in & we're about 2 go into the operating room, U better do my surgery!!!!!The funny thing is I told both my docs about the blood thing & I never got a response from sither of them on in, huh. But I should've followed up on it. I just try 2 be careful, being on demerol doesn't help.

[Mimi-in-Chicagoland]

I have factor V leiden which is genetic. I have had a TIA and a stroke. I had a PFO hole in my heart that let the clots pass. I was on coumadin for about 9 months, but I'm off of it now. My hemotologist said I could go without the coumadin unless I had another blood clot. I'm not taking hormones, and I take preventative measures when I travel to prevent clots--like walking every hour during long road trips and if I were to travel overseas I would give myself a heparin shot. For my recent surgery, I had support hose, compression stockings, and a heparin injection. For pregnancy, I will be on heparin shots and have a c-section (interstim implant).