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lifesabath
06-04-2004, 12:29 PM
My Name is Danielle, I just came here yesterday and looking to see if people feel like I do how do you cope.

About a year ago I started to get a dull pain in my pelvic area on the right side. As the months progressed it got worse and worse. Many times I ended up in the Emergency room and given something for the pain and sent home. Here is Canada there is a major doctor shortage but after many visits to walk in clinics i finally got a GP. I was sent to a specialist a GNYO and was told I probally had Endometeosis. (FORGIVE MY SPELLING HERE I AM NOT ALL THAT GREAT) Ok so I had a laprosopy and I didn't have Endo and I didn't have Pelivc Inflamitory diease. The pain comes on real strong and lasts for about 2-3 months it gets worse when I exercise or walk alot. The pain seems to be in my bladder area but I am not a doctor. When I really have to pee it hurts. So the pain goes away for a month or two then crops up again. After reading online I figured it might be IC. I confronted my doctor and I am going to be sent to another specialist. I don't understand why I had to figure out what this is. I have always gone to the bathroom alot. the least being 14 times a day the most being 16 times in 5 hours. This was at night so I don't sleep more then 5 hours ever without going to the bathroom. So I wonder does anyone have this pain come on then after a couple months go away and then come back after 2 months? Is the pain so bad you consider the ER? How do you cope with this pain. how does your families cope? I feel horrible for anyone who feels like me. This is a horrible thing to deal with. Since there are I think it is important to share and have someone to lean on cause sometimes family can;t undertand what this is like.

Thanks for reading

kelly McC
06-04-2004, 12:40 PM
Hi Danielle,Welcome:welcome:
I cant say for sure if you have IC but I am glad they are looking to see if thats whats causing your pain. It is not unusal to take a while for diagnose while doctors rule out other possibilities. Have you checked out the handbook here is a link http://www.ic-network.com/handbook/ also have you tried the diet to see if it helps?
http://www.ic-network.com/handbook/diet.html
Hope you can get some answers soon.
Kelly

SheriG
06-04-2004, 12:49 PM
:hi: Hi Danielle...Sorry you are having such a bad time with the pain. Do you know about the IC diet? Are you taking any meds? I can tell you that when my IC is really bad, there are many times I think of going to the ER, but never have, cuz I try to get by with my pain meds. Ic is a disease where pain can come and go, everyone is different...some people have pain all the time, some have no pain at all. and some, like you , have intermittant pain. I really hope you can get some answers soon. Please take care of yourself, and keep posting and let us know how you are doing. All the best, Sheri G:grouphug:

lifesabath
06-04-2004, 12:59 PM
Thanks everyone you are a great bunch of people. Thanks for the information and support:thumbsup:

lalarainbow
06-04-2004, 01:18 PM
HI Danielle,
I hope you can get into a Urologist soon and get some answers... I live in NS. so I had to wait a long time to get an appointment...I am Elmiron - I can feel good for several days and then can have a flare that last for a month or so.. Yes the pain is horrible .. I only have tylenol for the pain.. Pyridium makes me too sick and my Dr. is reluctant in prescribing pain killers... I am trying Bextra which is an anti-inflamatory.. heating pads - ice paks and Tens unit is what I use..
Where are you in Canada?? you can email me at pjjessome@ns.sympatico.ca
I don't know anyone in person who has IC
only my on line friends...No support groups around here..
Read as much as you can and be well informed .. Make a list of any questions for the specialist...
There is lots of help at this sight!!!
~~Pam~~:hi:

Dixiefireball
06-04-2004, 02:17 PM
:hi: and :welcome: to the icn.
i'm sorry you are having such a hard time. We all are diff. with our ic pain and with treatments:( I do wish you the best and please know we are here for you.
sending you hugs and prayers
Please keep us updated.
Rhonda:kiss:

Sarojini
06-04-2004, 02:30 PM
:welcome: to the ICN!

I'm so sorry you are dealing with this pain. Unfortunately, a lot of doctors don't know much about IC yet, so you'll find many people on these boards who've done what you did... gone online and to the library and found info on the disorder themselves.

I hope you don't have IC, but if you do, you will find lots of support here.

SharonA
06-05-2004, 06:33 AM
Hi Danielle and welcome...

I am so glad you found us. I hope that you do not have IC but if you do, there are a lot of very caring people here who will try to give you as much help as they can. What I know about IC, I learned here. I know that it is a very confusing time for you right now. Try to relax and read everything you can about this disease. Things will begin to make sense to you after a while.

The most important thing that I can tell you is that there is life with IC. Like me, there are those of us who have found treatments that work and we live pretty normal lives. Search out doctors who are willing to spend the time with you to find what will work for you. I wish that the same treatments worked for all of us but that is not the case. IC is a very individualistic disease.

Remember, you are not alone. We are here for you. :kiss:

blue
06-06-2004, 07:14 PM
I'm so sorry that you are suffering.

I would suggest that you try the IC diet, and drink lot's of water. Keep a diary of your progress, so that you know if it's helping or not.

This way, when you get to your appointment, you can tell the doctor what you have tried, and if it's helped or not.

Kitten215
06-20-2004, 01:27 PM
Hey! My names kera and im 15 years old and i have ic, kidney disease, ibs,and endometrosis. i found out last year after over 60 days in the hospital. it all started when then thought it was my apendix and they took them out but the pain didnt go away. Then i ended up have 5 more surgerys in about 6 mounths and the 5 one got the pain mostly away. im now going for my 6 surgery and they want to put me on lupron( sorry im not the best speller). i was wonder if any one could help me out by telling me about lopron. im also on a tens. so email me! if you were on lupron i really need some help in that area! thanks so much! :thumbsup:

blue
06-22-2004, 08:52 PM
Hello, and welcome.

I've never heard of Lupron. I'm enterested in finding out what it is. Is it for your IC? Did they diagnose you with a cysto / hydro?