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Flowergirl
01-03-2012, 01:15 PM
Hi everyone.
I currently have an Interstim device. I had my interstim device put in about one and a half years ago. I do go to the bathroom a lot less. I was in the bathroom 15 - 25 times a day. Now I go 7 - 10 times a day. I even have days that I go only 7 times a day. I also experience a lot less pelvic pain. The pelvic pain was the main reason I decided to get the interstim although the device is not guaranteed or stated by doctors to help with pain. I tried all of the medicine therapies, physical therapy, pelvic floor exercises, etc. Nothing seemed to help and the pain was getting worse. This was a last resort for me. Before getting the device I spent a great deal of time researching it so that I could make an informed decision. Currently, I take Vicodin for pain as needed. I take it on average once every two weeks. I take Savella for my bladder and fibromyalgia daily. I also take elavil about once a month if I have a bad flare and I have continued on Lexapro. As you can see I am still on meds but the frequency in which I need them has decreased.

I still follow the IC diet and I still have flares if I eat the wrong thing but they are not as severe, but a flare is a flare......right! I have very mild pain on the site where the device was installed on occasion but this is only when I sleep on that side for more than 8 hours.

In the beginning I had to reset the device each week to get the setting where I received the most benefit. It felt weird in the beginning but not painful.

I have not touched the device in three months and I am doing well. It was a good decision for me and it is helping and I pray that it continues to help.

I think that everyone has to make their own decision about the interstim device. I had many factors that led to my decision. One of those factors was that my doctor is a skilled surgeon and was successful with other patients that I was able to speak with about their experience with the device. Other doctors offered but I did not feel comfortable with them. I left a doctor that tried to push me into getting the interstim. My current doctor was not pushy and continued to treat me until I made the decision to get the device.

I wish everyone a happy new year and less bathroom visits.

icnmgrjill
01-03-2012, 01:19 PM
Thanks for sharing FlowerGirl! I'm glad that it has and is continuing to help you! Yay! Love your new year wish for less bathroom visits! :::grins:::

Jem
01-12-2012, 01:31 PM
That's wonderful Flowergirl! Thanks very much for sharing your success story. It's great to read a positive story about s.n.s on the forum. Its particularly relevant to me right now as I have just been referred to a specialist to get the interstim device fitted. I am feeling so hopeful about it, especially now I have read your story. I know it's not the same for everyone, but here's hoping I'll be lucky like you have been. I've tried every other treatment there is and this is my final roll of the dice. It's been so depressing each time a treatment has failed, but now I have new hope to hold onto. My doctor is wonderful and I know he would never recommend anything that might harm me and that his motivations are completely genuine. Thanks again. Hope 2012 is a brilliant year for you!

Jen xxx