please pray for me

[marinda]

I have been diognosed going on two years.
I have no type of insurance or any type of medical help.
I have tried all kinds of programs for help.
But either my husband makes too much or because we have no children. The doctor that diognosed me Knows that we have no money so Ive only seen him twice in two years.
My husband has to pay upfront for MY DMSO treatments.
I only take half and save the other half for the next treatment.
I live with so much pain because the doctor does not believe in giving pain prescriptions. Im always getting hurassed when I go
in to get a treatment.
I have gotten into the depression so bad that we had to go seek
help from the MHMR.
I been denied SSID two times and last Tuesday I went before a Judge. This disease is killing my dignity Im only 33yrs old.
All I want is the medical help. I know the little bit I get will help
more then getting no help.
And I feel so bad for my husband. He works his butt off for us.
I know if he didnt have me He would be way better off.
Now I have to wait 1 to 3 months to know SSIs decision.

PLEASE PRAY FOR ME...

[sleepyangel30]

I'm so sorry. My heart goes out to you. Plz don't give up SSID keep trying. Thats what I had to do and I finally got it. I didn't have IC at the time though. By the way, You are in my prayers:pray:

[Katrina]

Saying a prayer for you......I hope you win.

:pray: :pray: :pray:

[Dixiefireball]

Oh hon i feel so so sorry for you you will be in my prayers at least if you get ssd you can get medicare. if you tried for ssi and approved you can get medicaid.
as soon as you get approved I would change doctor's Alot of doctor believe IC is not painful and for some people it isn't but for others its the most awful pain they ever felt in there lifes.
I'm thankful i have an understand careing doctor I was in alot of pain until i meet him but i didn't know about ic before he found out what was wrong with me either. I have learned alot threw these last few years and i contuine to learn a little more each day.
the key to getting the best help is learning for your self what you need. listen to your body you have the right to be treated for pain.
if you need someone to talk to please feel free to PM me.

If you get turned down take a lawyer with you next time (if you didn't have one this time) if you had one I feel sure you will get it.
that is another key i have learned if a lawyer feels by your medical records you can get it then they will take the case never pay a lawyer to help you get your ssi or ssd. They will not take the case if they feel you will not get it.
sending you hugs and prayers
Rhonda
P.S
if you decide to keep this doctor after you get approved and have some inc. ask him to send you to a pain clinic if he doesnt want to help you with your pain they will.