scared..

[bellaangela418]

Hello I am 25 yrs old.. i have had this issue since i was 13.. when i went to the doc i took all these test and they said everything was normal.. i pee 40-50 times a day.. My bladder never feels empty ever.. I just got health insurance so i will be goin back to the doc.. i am soo scared since i know how it feels to get tubes stuck up in me..:( and i just lost my best friend a few months ago. he passed away at 26.. and now i feel like i have no1.. please can someone help me.. i dont talk or tell me what i'm gonna be going through.. i dont know how 2 check messages here.. maybe u could email me.. Nykrazychick@aol.com thank u very much
Angela

[Dixiefireball]

:hi: and :welcome: to the icn. i'm sorry you are having a hard time right now.
Have you been dx with ic:confused: I'm so glad you have good health inc that way they will find out what is wrong with you.
Please let us know how you are sending you hugs and many prayers
Rhonda

[sleepyangel30]

i'm with dixie have you been dx with ic? i'm so sorry you are having a hard time. i sure wish there was an end to this crazy disease.

[ICNDonna]

:welcome: to the IC Network.

The best suggestion I can think of for you is to read the information in the Patient Handbook at http://www.ic-network.com/handbook There's information there about symptoms and diagnosis, as well as treatment options. I think learning more about IC is the best way to conquer your fears.

Sending warm healing thoughts,
Donna

[bellaangela418]

Hi thanx all.. if they stick tubes in me again 4 this will i have to be awake?? how will they see what my bladder looks like now?? please tell me that i can sleep through that.. and do u think that i can ever get a job since i go so much i can't... i am sooo depressed about this thanx

[Dixiefireball]

Hon what test are you talking about there is so many with IC i'm not sure which one it is:confused: if its the hydo. then most likely you will be a sleep (IF you have a good doctor that is). Please read the pat. handbook and this has alot of your answer you will just have to stroll threw it to find what your looking for. If you find the name of the test maybe we could be more helpful it really does sound like he hydo/c. but i'm not sure. http://www.ic-network.com/handbook

[bellaangela418]

Hi i dont recall all the test names.. the one u sleep for u the one u just said,do u have to stay in the hospital??? or do they do it in there office.. after the test do they leave a tube in there so u dont have 2 get up and go to the bathroom???? thanx

[Derby]

I am sorry that you are having a hard time right know. You will find lots of loving caring people here on this web sight. Please follow their advise and take some time to look at the patient hadbook. When I was first diagnosed the doctor printed some information from the patient handbook for me while I waited in her office then she made sure I had the web address so I could do some research on my own. It was very helpful to me. Please keep us updated.: grouphug:

Jeni

[rachelm]

I'm sorry your having a rough time. I agree with the others that you should check out the handbook and educate yourself about all the possible tests and treatments your dr. may want to do. I also take questions with me whenever I am discussing a new option and when I need to I take notes. It is also very helpful to have a second set of ears to help you remember some things.

Many uros do in office cystoscopies where they stick a probe with a camera inside your urethra. This is not usually done for patients susspected to have IC because 1. it can be very painful for us and 2 it doesn't give enough information about the state of the bladder lining. My urogyno did a Cystoscopy with hydrodistention to check the lining. You can read about this in the handbook but basically you are put to sleep and your dr. fills up your bladder with water to stretch the lining. The scope can take pictures of it to help diagnose pin point hemeraging or cracks in the bladder wall. It is usually done as a day surgery but many people are sore for a few weeks. Just as Dixie said there are many other types of tests that involve catheters or other parts inserted so you will want to know ahead of time what procedures he's going to do. I always have someone with me to drive me home just in case I hurt afterwards.

At this stage I would suggest to READ READ READ so that you will understand what the dr. wants to do. I hope you get a diagnosis and treatment plan soon. Please know that there are many very successful treatment options out there so you do have hope for living. It's a rollercoaster for me but I have found several treatments that help me live a semi-normal life at least part of the time. Know that there are many people on this board who will support you through this. I am so thankful for the information and support found here.

Rachel

[bellaangela418]

thanx all 4 replying very nice of u

[blue]

Contact your doctor, try to find out exactly what test you are having done. After you do that, let us know, we'll be able to help you more. This way, those of us that have gone through it, can tell you about our experience.

I'm sending you prayers!

[bellaangela418]

ok thanx i will be going to the dr soon.. and then i shall let everyone know! :thumbsup: :pray:

[blue]

Good luck! We'll be waiting to hear from you!

[bellaangela418]

thanx a lot :)

[blue]

Bella, I was just wondering how you are today.

[bellaangela418]

hi i'm ok and urself??:thumbsup: