I am new with this

[marinda]

I have this disease and I miss so bad making love to my husband. sometimes are good and some bad. So last night was bad!!!!!!! I have been in pain all day and My feet are swollen bercause of the stress.

[liznazz]

I'm so sorry you're feeling so badly. I've had some bad days too, and it can be very depressing. I've only been diagnosed for 2 months myself. I"m kind of going through the same thing now!! Try to hang in there.

[IBNPAIN]

Hi Marinda,:welcome:

I can so sympathize with you on your problem. It has been over a year since I have been able to have had a sex life. I am so lucky to have a husband who understands the pain I am in. It just got to be so painful that I started having massive anxiety attacks whenever the possiblity of intimacy came up that we both decided it just wasn't worth the stress or the suffering that I went through with afterwards.

I do have some encouraging news for you, though. I have had IC for 10 years and was finally diagnosed this April and have been taking Elmiron and having bladder instillations for the past 6 weeks and you know what? I can tell a big difference already. I actually have days where I have little to no pain. Sometimes for as many as 3 days in a row. After a decade of unbearable pain for everyday of the year, this is amazing to me. So maybe you will be one of the lucky ones who Elmiron will help, too.

The one thing that you have already done that is good is to find this websight. This is the best websight with the most supportive people I have ever come across. I have found so much useful information that has helped me. It is comforting to me to know that I am not alone in all of this. I also realize that I am a whole lot better off than many of these other women and my prayers go out to each of you. Any time you are feeling down, hopeless or just need to vent you pain and frustrations, this is the place to do it. You only find kindness here, never any negative output. I love these people. I hope you find strength in them, too.

I think you should get your husband to join you one day while you are reading these postings and let him see through the experiences of all of us other women just what you are going through. I know my husband found new respect for me when he read some of the messages and some of them even brought us both to tears. If you have his support through all of this your stress level will be lower and the pain will not seem as bad.

Marinda, hang in there. Just keep coming back here and keep your faith. I know it's hard, but never, ever give up hope.

You will be in my prayers tonight.
:pray:

Carol

[kelly McC]

hi and welcome you to the ICN.:hi: I am sorry your going through a bad time and hope it gets better for you.I would give your doctor a call and let them know your in pain. Please let us know how your doing .
Sending you tons of huggs:grouphug: :grouphug:
Kelly

[Dixiefireball]

Oh hon i'm sorry but your not alone here i have good days and bad days too right now i have an awful infection and if my husband even thinks about touching me in that way lord help him LOL.
Sunday we did something even tho i was scared to because of me just haveing surgery big mistake on my part because after that is when i started passing large skin like very gross bloody clots.
sorry to gross anyone out but it was gross to me also.:toilet: I would love to be able to lay down in the bed with my husband and make love like we use to and i pray that some day this will be able to happen again soon now a days its got to be quickies and I don't like those and have to suffer and if i have to suffer i want to at least be pleased.;)
maybe its just to soon after surgery and plus the uti but right now i feel like i have no sex life anymore.:( :mad: