Sharp Lower Back pain

[tommygal]

I don't think this would be a symptom of IC would it? But I don't know much about IC, so I wanted to find out. If I have IC I have probably had it since I was a little kid. I also have Eedometriosis. The last about 4 months now I have had a sharp, non-stop pain right in the middle barely above the buttocks. And I'm just trying to figure out what is causing is and what I can do about it. Has anyone else had this? The doctors have been no help in figuring it out whatsoever, and my parents won't take me to anymore doctors. So if anyone knows what this can be and what I can do about it, I would greatly appreciate it. Thank you!

[Sarojini]

Many people with IC get lower back pain... me included. It's because the nerves that go to your bladder connect to your spinal cord in the lower back, so sometimes you can get bladder pain that is "referred" to that area. Again, you really need to ask a urologist about it, but it is possible for IC to cause back pain!

[Coleen]

I too have the worst back pain ever.. It is non stop, constant. I have contacted a pain clinic to get some help hopefully on this matter. I too was told it is due to inflamation of my bladder which presses on a nerve in my back. I attended a IC Support meeting this past weekend and got the name of a DR at a pain clinic that someone else that has IC went to and got some kind of spinal block or sacral nerve block which helped within 6 days he was pain free.. So I am hoping to be accepted then seen by the same dr. My back pain is my biggest com[plaint at this time. My bladder pain is constant at this time also which I take pain meds for But that doesnt even touch my back pain. Certain days it is unbearable. So I can definately relate and I too seek some sort of releif. I have had this same backache since I first started with a Severe kidney infection in Sept of 03..... Same back ache every day since then with NO RELEIF.... Id say Im pretty sick of it also.. But I would say definately IC related. I never had any back problems before...... Good luck on trying to find some releif. I am in the same boat....

[ShawnaAB]

I just took my daughter to the pain clinic at Childrens in Boston and saw Dr. Lin (awesome). He put her on a TENS unit and neuronton that is helping her pain a bit, it more just takes the edge off it. She is also going to start accupuncture next Monday, we have heard it can offer a great deal of releif. We also saw a new gyn. and she is going to have surgery on July 14 to remove any endometriosis that they can see. She had this done last summer along with a cystoscopy, she had 6 months of no pain what so ever then it started going back slowly to now were she is in such constant pain she has not been to school in 6 weeks. If taking out the new endo. doesn't work then she will have another cystoscopy. The hard thing is she has so many things going in it is hard to say which is causing her major back pain. (IC, endo, kidney disease, IBS)

Good luck, but talk to your uro. and gyn because they can both be the cause of awful back pain.

[tommygal]

Your duaghter sounds like me!!! If she has email and ever wants to talk tell het she can email me. It is also hard for me to tell what is causing what! I have endo, acid refulx disease, IBS, and of course looking into the IC, and not sure if there is something else too. How old is your duaghter? I'm 18, and just graduated. I did miss almost all of my high school, and part of my jr high years of going to school. It was hard being so sick and missing almost all of school! But I got through it! Your daughter is lucky to have been diagnosed. It took me 5 years to just find out I had endo! And now that I have it, I feel worse then ever! Don't know if the lap made me worse or not, but I'm in really bad shape now.
Your lucky you live in a place to get good medical treatment. There isn't much around here to help me. My gyn. was horrible, and didn't beleive me on anything! He said my back pain wasn't endo, but I have had several people say it probably is, including a gyn online I talked to, and a nurse I talked to. So yeah, I do need a new gyn. but have no way of doing so right now. I just started a bcp and we'll see how that goes.
So is anything helping your daughter, or is it too soon to tell?
Thanks for the reply! Always nice to know I'm not the only young person out there suffering like this. She is lucky to have a Mom who will research and help her out with feeling better!

[crystilclear]

I also have the lower back pain with the IC. I don't know what they do about it. No one has helped me with that yet either. I'm trying to take things one step at a time right now. Too many thins to address at once. Your parent's won't take you to anymore doctors? I'm so sorry. I have read before of your problems with them. That's really sad. Have you ever tried using the therma care back pads? You can buy them at Walmart and other places. I hope you get the care you need and start to feel better soon. Take care Chris :)

[tommygal]

Are therma back care packs better than heating pads? I have tried heating pads, and cold pads with sero percent relief! I don't have any money to get it, and my parents expect me to deal with the pain, and just get out of bed and do things, so they wouldn't buy me anything like that! Do you know if those help cramps by chance too? Because with the endo I get cramps from heck for about a week straight! If these work better than heating pads, than I think I will see if I can find a way to get them. Thanks for the suggestion!

[crystilclear]

I think they're better because they stick right on your body. I think they'd help your cramps too. If one of your parent's were in that much pain they'd probably get care!!! I know what you mean I have 3 kids and they run me over everyday. The older one kindof understands but the two younger ones don't. I think at one time or another we all have to deal with people who aren't understanding. I am still learning how to deal myself. People just aren't compassionate sometimes. I'm sorry you have to deal with things without the support and understanding you need. I hope you can find something that will help. Probably some other ladies will be able to help you with better ideas of alternitive ways of pain relief. Katrina is actually making a list of things that have helped other people deal with pain issues. I hope it all works out for you. Take care - Chris :D

[blue]

I have alot of back pain with my IC. I use the Therma Care Heat Wraps. I wear one almost every night at work. They are about $8. for a pack of two. I think they are fantastic, they help me more than anything. Well, the diet helps also. Anyway, I like the wraps, because of I need them on my stomach, I just wear them backwards, if it's my back hurting, I wear the heat part oon my back.

[tommygal]

Yeah, I have had quite a bit of people suggest those to me. It's just a matter of it I can get my parents to buy them!!! It would be so much simpler to get things to help if everything didn't cost a ton! Cuz I don't know way of buying anything myself. Wish me luck!!

[blue]

Have you checked into disability? You are so young, and unable to work.

[ICNDonna]

If you hve an electric heating pad, it should work about as well as the thermal pads. The big advantage of the thermal pads is that you can go about your activities without dealing with an electric cord. When I'm at home just relaxing and need to apply heat, I use the electric pad.

Warm healing thoughts,
Donna

[tommygal]

Yeah, I have tried to use a electric heating pad for years!!! It has never helped at all!!! It is nice for those cold days though. :P I guess I won't even try the thermal heay pads if the electric one isn't working, usually I'm laying around anyways so its no big deal if I'm attached to the wall! If ya know what I mean! *sigh* lovely pain kept me up most the night again...started bcp on sunday and its making the pains sooooo much worse!
Disability? But I live with my parents. I mention something like that to my mom, but she said I couldn't with what is wrong with me. Not sure its worth the bother to try. Too tired to worry about it!!!

[ad8123]

I am so sorry it is going so baddly for you, you definitly have IC? If so have you talked to your urologist about pain and referal to a pain clinic. I used the heating patches a lot-Walgreens and Walmart carry a brand that is only about $1 per pad, they are not as hot as the therma brand though. I am now using lididerm patches on my back and bladder-wow I fell so much better. As far as I know most people with IC get some time of back pain, but if you are lying down a lot check your posture, lay on your back with a pillow under your knees or on your side (my pain mang. md gave me a quick lesson in posture)

Good Luck Have your parents read any info from the ICA on this disease maybe you could get some for them, maybe it will help

May God bless and keep you.