View Full Version : Cystoprotek-has anyone had success?
spelt 70
03-17-2011, 12:15 PM
Tried Bladder Q a few years ago, but it didn't make a difference. I would really like to feel better. Has anyone tried cystoprotek and had success or side effects? I would like to get your feedback before sinking more money into false hope. I have pain most days and frequency on the worst days. Thanks for your help. I say a prayer each night for everyone with this relentless illness.:angel:
sailawaygrl
03-17-2011, 02:16 PM
I know a lot of people on here do take the supplements. I personally do not, so I can't off you much help there. I am sure someone will see your post soon and give their input.
I pray for all of us too,
Sandra
Mc2203
03-18-2011, 01:26 AM
Hi,
I would recommend cystoprotek. Ive been taking it for about 4 months and have definitely seen an improvement in my frequency. I can't comment on pain because I've never experienced it. I still have flares but they are MUCH more manageable. I still also have to watch what I eat but I can stray a little off the diet. I have just started a low dose of atarax and I am hoping that I get more relief with this combination.
Give it a try, I hope it helps you!
Sarah:)
VickiB
03-18-2011, 06:25 AM
CystoProtek seems to help me, though it's not been magical enough to let me stray far from the IC diet. However, two years worth of taking Elmiron never allowed for that either.
When I first started CystoProtek I noticed I was having episodes of erratic heartbeats. I took a two week break from it, the episodes stopped, and when I resumed they never re-appeared. I don't know if it was the CystoProtek or just coincidence. That would be the only possible side-effect I've experienced.
Vicki
knitter
03-27-2011, 06:44 PM
I just started it and haven't seen much change (they say it takes a few months) but definitely no side effects.
tracieg
03-28-2011, 03:03 AM
I would recommend it.. I started taking it around the beginning of march and have noticed a great difference. I noticed right away that it was helping me. I tried the elmiron and it seems that I was having more frequency. I am about to order my second bottle of cystoprotek. I like it so far. Hope it helps you...
passion4life
03-28-2011, 06:14 AM
I started CystoProtek in January 2011 in conjunction with my BCP (December 2010), IC Diet (October 2010), and Elmiron (August 2010).
I can definitely see improvements since adding the CystoProtek. The company suggests to give it three months before making a decision concerning its effectiveness.
As for me, I love it!!!
ginaaa22
03-28-2011, 04:43 PM
I started using cystoprotek and my frequency is down to 10-14 during the day and 1-2 at night. Sometimes all night. Elmiron did nothing to help. I started mine in Jan 11.
jonb1
03-28-2011, 06:17 PM
Has anyone had success with Cysta Q... I see alot more posts on Cystoprotek. I believe it caused me more frequency. I have been on Elmiron 5 months. Still trying to get frequency down. OABs didn't really help either.
Thanks for any advice!!
Jonathan
Jinny Jean
04-09-2011, 05:34 PM
I am curious to know where to get Cystoprotek? I wouldnt mine trying it too! :) Can you get it from a health food store?
ICNDonna
04-10-2011, 01:28 AM
It's available in the ICN Shop. There's a link to the Shop in my signature below.
Donna
Taramc
05-09-2011, 04:43 AM
Yes, I have been taking CystoProtek for over 3 years, never straying from six capsules a day. I started taking Desert Harvest Aloe Vera at the same time, so my success could be attributed to both supplements.
1. I was able to eat chocolate and candy containing citric acids after one year - NO FLARE.
2. The severity of my flares has gone down. I still flare from diet mistakes and have to remain dedicated to avoiding irritants. BUT when I do flare, it can be dealt with by one instill and a nap.
3. I no longer experience frequency or urgency when I am NOT flaring. I only get those while flaring, and not nearly as serious as before.
leahk
06-06-2011, 01:01 PM
I had digestive side effects with cysto-protek. I ordered it through amazon and if you schedule deliveries they give a price break. I couldn't really tell if it helped but I stopped after a few months because of the digestion issues; a big increase in flatulence...I'm going to try cysta-q because I didn't have that issue with it. I haven't heard of anyone else having this side effect so maybe I'm the only one. Good luck!
Wyllyam
06-24-2011, 10:05 AM
I'm beginning month 2, and it is definitely making a difference. The pain is reduced, and frequency is down. This is the first thing that has really made a difference. I'm personally not seeing any side effects at all, but YMMV
phoenixgirl
06-24-2011, 03:03 PM
I just started taking it yesterday, along with my other IC meds. Seems like my frequency is up but I don't know if it's due to the Cystoprotek or something else. Anyone else see an immediate increase in urinary frequency from Cystoprotek?
Bojana
07-05-2011, 02:00 AM
I am also wondering about CP and Aloe Vera and how efficient they are about frequency and urge. I donīt have much of the pain just the constant urge and need to pee, frequency. I am taking it too but not sure if it does anything for my frequency.
lisa7688
07-12-2011, 12:15 AM
Cystoprotek seems to be making my frequency worse. It also causes stomach problems for me which get worse instead of better. I have stopped and started it about 3 times with the same results. I wasn't able to stay on it more than 2-3 weeks at a time. I was disappointed that it didn't work.
Lisa
Bojana
07-12-2011, 01:00 AM
Thanks, for the answer. I do not think that CP is doing anything for my frequency.
So I think I will stop when I am done with this bottle and perhaps try some ingredients separately.
I am taking it for one year now, before I did the lowest dose 2 x day and now 4xd and I do not see any difference with my urge and frequency. I am disappointed as well. I know I should be lucky I do not have pain but this urgency and frequency ad making me insane and limiting my life nevertheless.:headbang:
I have only been taking CystoProtek for a few days, but I have noticed that both my bladder pain and frequency have increased even though I am very careful about what I eat and drink (three years of trial and error there), and if I don't take it with lots of food, I get digestive upset (a burning sensation that lasts for hours after taking it).
[I also started eliminating gluten from my diet at the same time (in addition ot all the other things I haven't eaten in years!), so that should have helped lessen my symptoms, IMO.] I am going to stick with the CystoProtek anyway for a while and see if it will help me eventually. But since I don't eat seafood, I don't know if the shellfish in the product is causing me problems, ugh!
I really want it to help, since Emiron isn't cutting it anymore and my urologist won't do instills or let me try anything else. :headbang:
Bojana
07-21-2011, 06:58 AM
Unfortunately CP doesnīt do anything for me anymore, my urgency and frequency is out of the roof, it hasnīt been so bad in 1-2 years and I run out of options here as well, I have few left so after I am done, I wonīt get new one. I am happy for everyone who have success with CP, unfortunately I am not one of them:(:(
vBulletin® v3.8.1, Copyright ©2000-2012, Jelsoft Enterprises Ltd.