trigonits??

[bitty]

Hello. For years ( 10 or more) I have had a major bladder problem that comes and goes. I was tested many many times for UTI, etc. etc. About 6 years ago I went to a urologist who did a cystoscopy and he told me I had trigonitis- he put something in my bladder- do not know what. It did not help at all. I told him so and he seemed frustrated with me, telling me, "Well, you could get a hysterectemy!" Huh? I did not go back, never talked about it to doctors again (I was really disgusted with the lot of them) and just accepted this bladder thing- it gets very very bad at times- peeing every ten minutes, no sleep, etc. etc. It is also a now it's here, now it's not kind of thing. When it goes away I forget it, but eventually it always comes back and I feel like crying.

To complicate matters, I was diagnosed with Multiple Sclerosis last year, which can also cause bladder problems. The bladder thing is still here and has really reared its ugly head right now. I have tried Ditropan, baclofen and neurontin. Nothing works MS-wise, so I am went back to researching the trigonitis and found on several web pages that it is another name for IC.

Does anybody know anything about this connection between IC and trigonitis. Sorry this got so long.

[sleepyangel30]

I don't blame you, I would have not went back to that doctor either if he don't know what is really going on, I don't know if IC have a connection with trigonitis. Maybe the others here can answer that for you.

[ICNDonna]

Actually trigonitis is not IC. The trigone is an area in the bladder which can become inflamed. Many people with IC do have inflamed bladders, and many have been diagnosed as trigonitis before getting an IC diagnosis. IC is not usually diagnosed with a cystoscopy in the doctor's office, but rather with a hydrodistention (also called over-distention) in a hospital operating room with anesthesia. A bladder can appear to be completely healthy during a cysto, yet show the classical IC signs when it is distended.

I would encourage you to see a urologist. And ask about IC. The Patient Handbook at http://www.ic-network.com/handbook/ has information about diagnosis and treatments.

Warm hugs,
Donna

[VickiB]

I don't know about a connection between IC and trigonitis either, but it certainly sounds like your urologist left a lot to be desired! I went through a number of doctors on my way to diagnosis, and at one point gave up completely on ever finding anyone in the medical field who could help me. Like you, I was digusted with the lot of them! Eventually I hurt so bad that I thought I'll try one more urologist, and through him I found relief from the pain. (He even pointed me to this site) Don't give up your search. You shouldn't have to live in pain!

Vicki

[bitty]

Thanks for the responses. I will have to get my PCP, whom I do like, to dig out the old paperwork from the mean neurologist- what I had done was in a hospital and I was put under, but I thought it was only a cystoscopy.

For the past year, I was really just hoping it was somehow all connected to MS, but I am back to having my doubts because it does not respond to drugs typical of neurological problems.

I will read more info this afternoon. Does IC get worse during your cycle- this seems worse during periods and through ovulation.

Thanks again for responses, all.