More Pain for me... Fibromyalgia

[Morgan Stone]

Hi Everyone,

Sorry ive not been on for a little while.. I was offline due to changing telephone providers and was without a phone for almost 2 weeks! whew.. almost went crazy!

I went to my pain doctor on monday and after talking over some new problems Ive been having, he now thinks I am developing fibromyalgia... I wake up in the mornings so sore that I feel like someone beat me in my sleep, what little sleep I am getting that is. My hand and feet hurt, my arms and legs, back, even the bottom of my feet! ... it is taking me hours to get going in the morning now.. it just sucks :-(

I'm taking 30 mgs of oxycontin twice a day but they seem to be wearing off before time to take the next dose. Im gonna give it another week or so and if it doesnt do better, am going to make another appt with pain doctor and ask for either another dose so I can take it every 8 hours or something for breakthrough pain.. How many of you have fibromyalagia as well?

Sorry to gripe..as if the IC wasnt enough to deal with..

Wishing everyone a pain-free day/night :-)

[rjyoon]

I've had IC & fibromyalgia for 26 years. They started at the same time, so I assume they're related.

[TiaTia]

Morgan...

So sorry to hear that you are having to deal with the Fibro as well as the IC. I was diagnosed with Fibro about a year and a half after being diagnosed with IC. It started exactly as you described it...feeling like someone had been beating me all over. My husband had to actually lift me out of bed some mornings. I also had and have) what they call "restless legs", which is another joy of Fibro. It is like my legs have a major panic attack. I have to shift and kick them because they feel so...restless. I actually do it in my sleep sometimes without knowing it (my poor husband), but more often than not it keeps me awake. In the last year and a half, however, the Fibro has gotten better. It was at its worst for the first six months or so. I do know that when I was diagnosed I asked the doctor how I could be in so much pain when I was on daily narcotic pain management. She explained to me that narcotics, while helpful and sometimes essential for IC, do not help Fibro pain. Antiinflammatories are evidently the best for Fibro pain, but I cannot take them because I break out in hives. I did respond well to a steroid shot, though, but the relief was pretty short-lived, and you can only have the shots every three months.
Anyway, I hope you begin to find some relief soon. I know it can be overwhelming to be diagnosed with yet another chronic pain disease, and I will be praying for you...
Cristina

[lotsofgirls]

Hi Morgan,
I read your post and thought I should share this with you. Something interesting happens with me when my IC gets worse. I go thru what looks like fibro for days or weeks and it sounds exactly like what you have. Then my IC kicks in full speed and the body aches subside. When I had my last child right after her birth I went thru these body aches for 8 months and was even diagnosed with mild rhematoid arthritis, and I took anti inflammatories for it. However, it now is evident that it marked the onset of IC, and it was an all over body reaction. I have been doing alot of research into this, and it turns out that some ICers experience this type of body pain when their IC is getting worse or kicking up. However, the treatment is the same as for fibro, so I would take all the meds and treatment and hope it works. I hope you feel better soon I know how tiring and discouraging that pain is. I find a hot bath right away in the morning helps, and then I wear my good sneakers in the house all day and that helps with the feet. I use a hot pepper cream on my hands and elbows, and it does feel alot better.

Hope you start to feel better soon, we certainly have our challenges to face.
Cath :rolleyes:

[ICNJess]

I also have IC and Firbo/CFIDS, just among a few.

[tigger_gal]

I have fibro and myofascial pain syndrom, pfdd with my IC. hugs I know how you feel... I take 10 mg of flexeril 3 to 4 times a day it dose help with the stiffness but the pain mostly lingers thru-out the day.. I was told all these things seem to work hand in hand with IC on flares they all folllow.
brat

[Snuph]

I have IC and fibro. IC for six years and fibro for two years.
I take elavil (20 mg) at night to help my sleep. If I miss a night I feel awful by three the next day.
They advise exercise is very important so I take a water stretch class for fibro patients in a pool that is around 90 degrees.
I would suggest you research the fibro. a little more on the internet and you may find some better alternatives to talk to your doctor about. Here is a good place to start http://www.arthritis.ca/types%20of%20arthritis/fibromyalgia/?mode=static
Best of luck

[Morgan Stone]

Thanks everyone for your replies.. Its getting worse this week than it was last week and Ive layed around all week and done my best to not do much. I can't get into the pain doc again until june 16th so I have to wait till then for extra pain meds. I did find a bottle of naproxen that I hadnt taken and called to ask if it was ok for me to take it and they said it would be. I started those this morning. How often do those of you who have FM take the anti-inflammatories? Thanks for the link too.. Ive been reading lots on FM.

Wishing everyone a good day :-)

[DanaW]

I have had FM since I was 22. (almost 16 years) It really is hard to deal with both. Wish you well, DanaW

[YankeeCandle224]

and I have fibro as well. Please feel free to IM me any time you need to. I havent had a fibro pal in quite a long time. BTW, the duragesic patch isnt working as well as it was :-( I sometimes have to wear two patches at once to feel somewhat normal, and my pain doc knows this. Who knows what we will come up with on my next visit. I definately have fibro, CFS, hypothyroidism, IC with severe kidney/bladder infections coming closer and closer together. I'm scared, and I bet you are too. Please write. AND know youre not alone. Love Sandy