I'm worried...

[crystilclear]

I woke up today stiff all over. My body aches everywhere. My chest is so sore and so is my leg and back. I feel like I got beaten up or something. I'm exausting all my other avenues of support because they just don't understand and I don't want to be a burden to them. I've been crying a lot. I just don't know what's going on inside of me. I'm afraid that it'll take years before they figure me out. My doctors are not understanding and extremely unsympathetic. I have a lousy insurance and have already cost us so much. I hate feeling like this. I feel so alone right now. I feel like I just can't tolerate this feeling. I'm in pain all over. I will run out of pain meds and then what? I feel like they just want to pass me off to someone else because I'm a chronic pain patient and it's hard to deal with. Well I wish they could step in my shoes so they'd know how it feels. I feel like I'm letting my husband down because I'm breaking out in tears off and on for a couple days. I am trying to be strong. I will do better as soon as I can take a pain pill when he gets home. But that won't solve my problems. Something needs to give here so I can function better. Sorry I've been posting like crazy. I feel like I have no other place to turn. Thank you ladies for all your support. Take care - Chris

[DeeOwlgrl]

Chris,
Sorry to hear you are feeling so bad and in so much pain. I know what you mean about wishing the docs were in your shoes...I've wished the same thing many times. Go ahead and cry and get it all out, because it's not good to keep it all bottled up inside...holding it in will only make you feel worse. Don't apologize for posting so much, either, because there are alot of great, caring people here on these boards. You don't ever have to feel alone.
I hope you get to feeling better soon!

:pray: and :grouphug:

Dee

[ibtracy]

Chris;
I know exactly how you feel as I have been there many times myself. I've missed alot of work due to days like you're having but the good thing is Im living proof that things will get better. Do you have pain meds? If you don't you need to get some if you have to go ER to get them. I'm not trying to push narcotics on you, from my experience that's the only way I can get through a day.

I wish you "get better" wishes and hope you're feeling somewhat better at least real soon!

You're in my thoughts and prayers, not that those words will make you feel any better. Sometimes its just rewarding to know you're not the only one that feels this way. I didn't leave the couch for 2 weeks straight a couple months ago, crying, sleeping, full of pain - IC sucks and that's all there is to it! Time heals all though so keep your chin up!

[dyno]

Chris,
Sorry you are feeling so bad. Is there another Dr. like your primary Dr. who can help you? Sometimes the uro and the primary will work together. It also sounds like you may be depressed. It might be time to see the primary anyway and see if they can help you. If these are new pains you are feeling, better get them checked out too.
We are all here for you.
Sending hugs,:grouphug:

[celine]

I know how you feel. There are definatley good and bad doctors out there. And alot of times, they base care on your insuranace,sad to say.Please keep looking,use every avenue you can find. Try a pain management clinic.Your in my prayers. Finding the right meds makes a huge difference. Celine

[Iris]

Hi, I am sorry that you are feeling so bad and down at heart. Do not feel alone, we are all here to help you through, I am sure we have all had the same feelings as you, at one time or another, so know where you are coming from with those feelings. Glad to give you a shoulder to lean or, or cry when needed. Please keep us posted as to how you are doing, hope you will start to feeling a little better really soon, hugs and know the feeling, Iris. :hi: :kiss: :grouphug: :flower:

[crystilclear]

I am so glad that I can talk to people who understand. Thank you all so very much. I ended up taking a vicidin and I feel a little better. The soreness all over seems to be muscular and the pain med isn't helping it very well. I truly appriciate all your replies. I'm trying to take it all oneday at a time. It's hard because I feel like I'm so run down and my kids need me to be ok. I need some form of pain management and I will not let them make me feel bad about it anymore. I need to be able to function better than this! It is really hard on my husband. It is hard for my problems not to affect our relationship. I am so thankful that I have him and he's supportive but sometimes he just has heard all he can take about my pain and suffering. I'm so grateful to you all. It helps so much to be able to talk. I'm starting cipro today for an infection. Hope it helps. Thanks gals! :kiss:

[SheriG]

Please don't ever apologize for posting here. We are all friends, and are here for each other. Do you take any antidepressants? If not, sounds like maybe you could benefit from one. I recently had a period of time where I cried all the time, and they changed my meds a bit, and it made a huge difference. I also understand how you feel about costing money for health care, but remember...you did not ask for this disease, and you deserve to be cared for by some good docs...maybe time to doc shop as well! I sincerly hope things will get better for you soon! I will keep you in my prayers!:pray: :kiss:

[crystilclear]

Thanks everyone for all of your kind words. I have a real bad infection right now. They called me this morning. What I don't understand is that the doc (primary) wants to do a vaginal exam? It doesn't make any sense to me. I don't want her to because the last time I was in there complaining of servere cramping she trtied to tell me it was just pms. She tried to give me birth control pills (it says in my chart I'm allergic to them). She kept pushing down on my bladder and made me flare for days afterwards. Then they kept asking what my symptoms were of an urinary tractr infection. Do you have cramping, frequency, pain during urination.... I kept saying yes all of the above but I have IC. They are clueless and don't listen. I don't want her examining me and fumbling around making it worse. I just don't understand why she thinks I need it? I had a pap smear not even a year ago and everything was normal. This past year I've had sonagrams, and a vaginal ultrasound. Everything has almost been checked from the inside out. What does SHE think she's goona find? Sorry this is just so frusterating. The doctors don't listen. She had to look up what IC was in her special medical dictionary while I was there. And I should let her do what????? I don't think so. I'm waiting to be seen by a real professional. Well thanks you all. I'm going to see if I can get some more pain meds that won't make me so tired if I have to take them during the day. Yah right I'd have better luck of them paying me to go somewhere else. I hope everyone is having a better time of this than I am. I know it will get better as soon as I get the proper help I need. Take care everyone and have a wonderful day. - Chris :kiss:

[ICNDonna]

Just a thought --- have you had blood work done to be certain you aren't deficient in something like iron, potassium, calcium? Deficiencies of any of those can cause muscle pain --- I learned from experience.

Sending warm healing thoughts,
Donna

[Katrina]

:grouphug: :grouphug: So sorry you are suffering....don't ever feel you need to appologize for posting or venting here. I am not sure why your doc would want to do a vaginal exam....I would ask and if her reason shows she doesn't understand IC than I would probably not be too willing.
I hope you feel better soon.

Take Care,