hkh5
12-02-2010, 10:38 AM
In August 2008, I had a presacral neurectomy (cutting the network of nerves from the uterus to the spine) to treat my severe endometriosis. They were not the most ethical of doctors: while they were in there they also decided to "fix" my retroverted uterus by tying it to my bladder with 2 sacral ligaments (they also removed my appendix for no reason and without my permission; insurance ended up refusing to pay for it so I ended up paying $5000 out of pocket for my stupid appendix).
Anyway, I developed my first-ever UTI 8 months later, in April 2009. I had another UTI in July 2009, another in September 2009, and another in November 2009. After the last UTI, my bladder symptoms continued and I've been in a constant flare since then. At first the urgency/frequency was mild, but it has become progressively worse over the past year - these last 3 months have been absolutely intolerable. I had another UTI in March 2010, one in September 2010, and one just this past week.
I had a laparoscopy last week wherein they removed an endo adhesion from my bladder to my bowel, and they untied my uterus from my bladder (basically put everything back the way it was). They also did a hydrodistenton/cystoscopy that did not show any IC inside my bladder. I was so hopeful that this surgery might help my urgency/frequency, but so far there has been no improvement (still peeing 25-30x per day).
I did some research on long-term effects of presacral neurectomy, and some studies have shown that approximately 5% of patients develop urinary urgency/freuqency as a result. Does anyone have more info about this? Or how they might go about correcting it if it is a nerve problem (and not a bladder issue)??
Anyway, I developed my first-ever UTI 8 months later, in April 2009. I had another UTI in July 2009, another in September 2009, and another in November 2009. After the last UTI, my bladder symptoms continued and I've been in a constant flare since then. At first the urgency/frequency was mild, but it has become progressively worse over the past year - these last 3 months have been absolutely intolerable. I had another UTI in March 2010, one in September 2010, and one just this past week.
I had a laparoscopy last week wherein they removed an endo adhesion from my bladder to my bowel, and they untied my uterus from my bladder (basically put everything back the way it was). They also did a hydrodistenton/cystoscopy that did not show any IC inside my bladder. I was so hopeful that this surgery might help my urgency/frequency, but so far there has been no improvement (still peeing 25-30x per day).
I did some research on long-term effects of presacral neurectomy, and some studies have shown that approximately 5% of patients develop urinary urgency/freuqency as a result. Does anyone have more info about this? Or how they might go about correcting it if it is a nerve problem (and not a bladder issue)??