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CoyoteMystro
05-10-2004, 10:38 AM
Heya everyone.

I know I haven't been checking in lately but that's because I hurt more than usual but since I moved my desktop PC into my BR at the foot of my bed, I can be OL 24/7 while laying in the comfort of a bed, hehe.

Anyways, nothing really new about me to update you about.

Still having to wear a urethral catheter 24/7 and having to battle pain as a result of the dying bladder.

On March 16th this year I had a Cystscopy/Hydro done by Dr. Regula Wihgul at Memphis UT Medical Group. She confirmed the diagnosis of having IC and that my bladder capacity is only 120CC's and the bladder does not contract/expand anymore.

So she has me seeing a Urologist in Little Rock to discuss Bladder Augmentation. Dr. Wihgul informed me that my bladder isn't repairable by medications, that Elmiron and others WILL NOT benefit me.

On the 18th of this month I will meet with Dr. Finkbeiner at the University of Arkansas Medical Sciences in Little Rock Arkansas to discuss the Augmentation procedure and also the possibility of a cystectomy.

Anyways, that's about it. Take care everyone.

Kathi
05-10-2004, 11:41 AM
Sorry to hear that news Coyote. I'm glad you came & updated us, I've been wondering how you are doing. Hugs, Kathi:grouphug:

Dixiefireball
05-10-2004, 11:46 AM
i'm so sorry you are still in pain but glad to see you posting again:grouphug: sending you hugs and prayers
Rhonda

felineperson3
05-10-2004, 12:17 PM
Prayers:pray: for you, Coyote,

Best wishes for your new medical team to arrive at a solution that will make your life better & more pain-free for you-

Hugs & blessings--:cat:

Iris
05-10-2004, 12:19 PM
Hi, sorry to read that you are having to deal with pain so much. Glad to see you post though, wondered how you were doing, please let us know how things go for you, well wishes, Iris.:grouphug:

Judith56
05-19-2004, 05:05 PM
Let me know if I can answer any questions, I have had augmentation surgery as well as a cystectomy. I wish you the best of luck! Judith

JessicainArkans
05-21-2004, 02:27 PM
Yip, yip yipee!,
I get to see a picture of you, so nice, but where is your smile?
I know it is hard to smile with this stupid disease, I sure get comments about it lately!
People just think I am rude, which I can be LOL!!!
I want to see your smile, even if you fake it !! (Just for me?).
Love and hugs:D
Jessica