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View Full Version : I'm working on my ic story here is some of it


Dixiefireball
05-08-2004, 06:20 PM
I was born on Oct 15 1974 i had a twin sister that died at birth she had no kidney her kidney was formed in me. Yes my mother said i was the hog LOL. i was eight pds 8 oz my sister was 2 pds 3oz she lived three hours.
before i was able to live out of the hosp i had to have bladder surgery before my first birthday they was cutting on my bladder again.
as time went on when i was in the third grade they had to cut into my bladder again iwas having way to many infection. Yes we all thought i was cure at this point i had mild uti threw out to the time i got married which was sept 14 91 still no problems until i got preg. with Brandon my son i was in the hosp with him seven times due to infection. when he was born on july 2 92 he was 8pds 3oz 21 in long hard labor the doctor said i couldnt have a bab that size they would have to take him but i did have him natural.
things seem to get better until six mths later i got preg with courtney i was high risk with her also:( i was in the hosp with her with many uti nine times plus my water broke with her when i was seven mths preg with her she ended up being an eight mth baby but still was 6pds 11 oz 20 in long still things go better after she was born. i had the norplant put into my arm for birth control after i had that taking out i got preg again with alex he was a healthy baby boy 7pds 14oz 21 half in long. after alex was born i had a tubeable i knew my health couldnt hold out another preg. even tho i still wanted one more girl but for my health i let them tie my tubes well that is when i believe my ic started i begain to work at the charles lea center I loved that Job. well i started being out more then i was in because of uti some was the true things other wasnt my family doctor finally said you are having too many uti i'm sending you to a uro. the first day i was there in the uro's office he sat down with me and my husband for over an hour just taking to me trying to figure out what was wrong with me he did all types of test and they all pointed to ic by the second week i was in for surgery came out at that time i had moderton sp? ic.
i did many treatment to try to get the pain under control some helped but didn't last long i felt like i had to be the biggest drug head in town and boy was i haveing alot of reaction to meds my body wasn't use to all that strong medicine to try to make a long story short at this point after many many diff treatments from dmso pain medicine elimron nerve blocks i finally told my doctor i was ready to give up and bless his heart he was ready to pull his hair out with me he could see i didnt want to talk to him he even asked me if i dress in drag woud that be easier well that was when i losen up I believe now he wish he hadnt said that to him because now i tell him all my personal stuff i have made his face trun red a few times. bless his soul he is such a sweet understand doctor. who really cares. i know i'm not done in this trail and error test but im welling to go that ex mile in hopes to help myself and to help others if i can in hope when the hunners are removed maybe just maybe i may have some of my life back. I hope i pray. at this point in my life i do take perocet 10 for pain i also take my own treatments at home heparin and marcaine which has been a God sent to me.
I just want you all to know i never gave up hope and never will there is a stong loveing women that was here that passed not long ago that learned me not to give up hope and we all know her as auntiedebbief.
I owe alot to this special angel i just hope she knew how much diff she made in my life. she was a loving stong lady who never gave up on hope or the Lord.
she was and still is right.

well everyone that is some of my story hopefully i will finish it for jill to post soon i have started it and i work on it each day I want to share my whole long drawed out story with all of you which will be done soon I hope.
I do believe my ic started because of all the surgery i have on my bladder and those nasty uti infections i have had also I do truely believe in my heart this is what caused my uti.
if my mother had knew those surgery would have messed up my life she would have stoped them before i was a year old i almost lost my life due to all those surgeries.

thank you for listening to my short story here I hope this will let you all know not to never give up hope where there is a will there is a way we just have to find the way.

sending you all hugs and prayers
Rhonda

sleepyangel30
05-08-2004, 06:40 PM
seems like you lived a very painful life, i pray that some day that you, I and others will have our lives back. :angel: remember god and the angels are with you. god kept you here for a reason,
I'm glad you made it through all the sugeries because I and others here would have not met you if you didn't survive. :angel:

Dixiefireball
05-08-2004, 06:45 PM
My mother always said i was her mircle child I was the only child also. thank you for your kind repley.

sleepyangel30
05-08-2004, 06:46 PM
you are welcome

gwyn
05-09-2004, 01:30 AM
thanks for sharing , i too am grateful for aunt deb and i although i am struggling now i am still holding on!!! hugssss

Babs RN
05-09-2004, 05:24 AM
Rhonda,
Thanks for sharing your story so far. You are one strong woman. I also noticed we have the same birthday--except I'm older. Sigh.


Barb

Sarojini
05-09-2004, 06:29 AM
Hey Rhonda... it's lookin' good... keep it up :) It will be great to add your story to the collection of patient stories!

You've been through a lot!!!

mayray518
05-09-2004, 08:19 AM
Writing my IC story was one of the most therapeutic things I did to deal with what IC did to my life. Cant wait to read the finished product. Teresa (mayray)

Katrina
05-10-2004, 08:25 AM
Rhonda...after reading my stories someone replied once "you must be an angel"....my reply to you Rhonda....is that you must be an angel..but that I know in my heart that you are. :angel:

God Bless You as you continue to fight for relief.:love:


:kiss:

Dixiefireball
05-10-2004, 11:17 AM
thank you :grouphug: that means alot to me for all the kinds words you have all offer me.
i finished up my story and i have sent it in to Jill. So hopefully we will be able to all read it soon when jill gets the time to edit it and touch it up for me (i have asked her to do so I trust Jill completely she is an angel)
sending you all my love
Rhonda:kiss:

Dixiefireball
05-10-2004, 11:24 AM
thank you :grouphug: that means alot to me for all the kinds words you have all offer me.
i finished up my story and i have sent it in to Jill. So hopefully we will be able to all read it soon when jill gets the time to edit it and touch it up for me (i have asked her to do so I trust Jill completely she is an angel)
sending you all my love
Rhonda:kiss:

sbaker
05-08-2007, 01:37 AM
It seems that your life has been pretty painfull. Im so sorry to hear your story and I will pray that someday you find the right combination of things to give you the relief you need.